Re: [MOL] Diagnosis of Primary Cancer Type [00953] Medicine On Line

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Re: [MOL] Diagnosis of Primary Cancer Type

Pat, Thanks for sharing the information with me about your mom.  I agree about the forum, I have not had much time to write but would like to get more involved.  Thanks again.
----- Original Message -----
From: Pat Kimmi
Sent: Saturday, December 30, 2000 7:46 PM
Subject: Re: [MOL] Diagnosis of Primary Cancer Type

My Mom had Mesothelioma and it is a rare cancer. I'm surprised they dx Mom's so quickly as we are in a rural area and she went to the community hospital. It was seen as a thickening of the lining of the lung. Mom's was so far advanced as she had asthma and was blaming all her symptoms on that until she got to where she couldn't get her breath and went to hosp. She did take some Taxol & Carbo tx but had reaction to it so quit. It is mainly caused by asbestos exposure. There is a good Meso forum with lots of info (it appears there are even  4 subtypes of meso). But please also stay on this forum as we have an excellent researcher in Lillian and lots of support & caring from the other Molers. Prayers to your family. Pat Kimmi-Kansas
----- Original Message -----
Sent: Saturday, December 30, 2000 10:45 AM
Subject: [MOL] Diagnosis of Primary Cancer Type

My dad was diagnosed with non small cell lung cancer stage IIIB with a pleural effusion.   The only treatment option provided was that of chemotherapy.  He received carboplatin and taxol for several months however the scan showed that the tumor continued to grow.  I talked to the doctor about some other options and he suggested changing the chemo to gemcide however didn't seem too excited about pursuing other options.  My dad started the gemcide however we also decided to go to another place for a second opinion on treatment options.  The second place says they are not so sure it is lung cancer.  They think it is mesothelioma.  They suggested and he is now scheduled to have a major surgery where they cut the ribs to take out a piece of the lining of the lung for a biopsy.  Apparently this mesothelioma cancer is a rare and difficult type of cancer to diagnose. 
Has anyone else out there had a similar type of situation whereby they diagnosis and treat you for one type of cancer then a different place thinks it is a different type of cancer?   I guess I'm a little surprised as both places are recognized as being comprehensive cancer centers.