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----- Original Message -----
From: "deborah golden" <antiques@freeway.net>
To: <mol-cancer@lists.meds.com>
Sent: Wednesday, December 27, 2000 6:18 PM
Subject: Re: [MOL] chemotherapy for Stage III colon cancer /REPLY
> on 12/26/00 1:50 PM, RynLA@aol.com at RynLA@aol.com wrote:
>
> > Lillian,
> >
> > Thank you for your responce regarding my father. We are in Los Angeles
and
> > our oncologist is at Cedar's Sinai Hospital, a Dr. Fred Rosenfelt. If
you
> > can check him out I would appreciate it. My father just started therapy
> > today, it is for 5 days out of 28 day cycle for 6 months. 5FU and
Leucovoran
> > ? What do you mean by 3 prong and 2 prong? I am led to believe that
this is
> > the standard chemo for colon cancer. I have heard of CPT-11 but I
thought
> > that was for when the first attempt is not responsive. Please tell me
> > more...I am just beginning to learn more about all of this. My father
is
> > about 6 weeks out of surgery, tumor penetrated bowel wall but there is
no
> > visible spread to liver and lymph nodes came back negative. I could use
all
> > the help I can get....thanks.
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> > ------------------------------------------------------------------------
> >
> dear ryan. i hop you get theis as i am not verry good on the computer. I
> have had colon cancer for 3 years. 3 surguries the last one on nov. ll
00.
> also stage three. penatrated the colon wall on the last 2 bsut no
> spreading. I had 5 fu and luc. on the first go round and it only worked
for
> a few months. had the 2nd surgery 7 months later. then cpt ll for 11
> months. then the blood markers stared to go up again (cea and ca 19-9 test
> s) Make sure they do those for your dad every 2 weeks to see if the chemo
> is working. they did ct scans and pet scans but weren't sure is there
was
> another tumor or just seeds (cancers cells that haven't grown into tumors
> yet). so the next go round was with cpt ll and xeloda (a 5fu pill taken 3
> twice a day for 14 days following the cpt ll. If your dad needs cpt ll
> tell him to insist that they give it to him over 24 hrs and not the 90
> minute infusion that the insurance co. wants them to do. It has to be
> givenin a hospital and the ins. co. don't want to pay for it. however
the
> 24 hr. routine almost totally eliminated all the side effects.
>
>
>
> also tell your dad to call his insurance co. and ask if they have a case
> manager program. if so sign up. no extra cost and then you only have one
> person and one phone no. to call.
>
> also all the prayers from all the people you know and the power of
positive
> thingking really do work. start a journal and write down every thing.
keep
> charts of your blood marker tests. and keep a blessing journal and why you
> want to live. alll of these theings help.
>
> and don't forget to ask for help. you don't have to do it all yourself.
> and rest when your tired. It takes 6 to 8 weeks to start to feel somewhat
> normal and a while after that to not feel the terrible faatique in the
late
> afternoon and evening.
>
> I', doing well and am very positive after this last surqery.
>
> good lluck and write again. (antiques@freeway.net)
> dd
> '
>
>
>
> and
> iIiiiii
>
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