Re: [MOL] chemotherapy for Stage III colon cancer /REPLY [00843] Medicine On Line


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Re: [MOL] chemotherapy for Stage III colon cancer /REPLY






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----- Original Message -----
From: "deborah golden" <antiques@freeway.net>
To: <mol-cancer@lists.meds.com>
Sent: Wednesday, December 27, 2000 6:18 PM
Subject: Re: [MOL] chemotherapy for Stage III colon cancer /REPLY


> on 12/26/00 1:50 PM, RynLA@aol.com at RynLA@aol.com wrote:
>
> > Lillian,
> >
> > Thank you for your responce regarding my father.  We are in Los Angeles
and
> > our oncologist is at Cedar's Sinai Hospital, a Dr. Fred Rosenfelt.  If
you
> > can check him out I would appreciate it.  My father just started therapy
> > today, it is for 5 days out of 28 day cycle for 6 months.  5FU and
Leucovoran
> > ?  What do you mean by 3 prong and 2 prong?  I am led to believe that
this is
> > the standard chemo for colon cancer.  I have heard of CPT-11 but I
thought
> > that was for when the first attempt is not responsive.  Please tell me
> > more...I am just beginning to learn more about all of this.  My father
is
> > about 6 weeks out of surgery, tumor penetrated bowel wall but there is
no
> > visible spread to liver and lymph nodes came back negative. I could use
all
> > the help I can get....thanks.
> > ------------------------------------------------------------------------
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> >
> dear ryan.  i hop you get theis as i am not verry good on the computer.  I
> have had colon cancer for 3 years.  3 surguries the last one on nov. ll
00.
> also stage three.  penatrated the colon wall on the last 2 bsut no
> spreading.  I had 5 fu and luc. on the first go round and it only worked
for
> a few months.  had the 2nd surgery 7 months later.  then cpt ll for 11
> months. then the blood markers stared to go up again (cea and ca 19-9 test
> s)  Make sure they do those for your dad every 2 weeks to see if the chemo
> is working.  they did ct scans and pet  scans but weren't sure is there
was
> another tumor or just seeds (cancers cells that haven't grown into tumors
> yet).  so the next go round was with cpt ll and xeloda (a 5fu pill taken 3
> twice a day for 14 days following the cpt ll.  If your dad needs cpt ll
> tell him to insist that they give it to him over 24 hrs and not the 90
> minute infusion that the insurance co. wants them to do.  It has to be
> givenin a  hospital and the ins. co. don't want to pay for it.  however
the
>   24 hr. routine almost totally eliminated all the side effects.
>
>
>
> also tell your dad to call his insurance co. and ask if they have a case
> manager program.  if so sign up.  no extra cost and then you only have one
> person and one phone no. to call.
>
> also all the prayers from all the people you know and the power of
positive
> thingking really do work.  start a journal and write down every thing.
keep
> charts of your blood marker tests. and keep a blessing journal and why you
> want to live.  alll of these theings help.
>
> and don't forget to ask for help.  you don't have to do it all yourself.
> and rest when your tired.  It takes 6 to 8 weeks to start to feel somewhat
> normal and a while after that to not feel the terrible faatique in the
late
> afternoon and evening.
>
> I', doing  well and am very positive after this last surqery.
>
> good lluck and write again.    (antiques@freeway.net)
> dd
> '
>
>
>
> and
> iIiiiii
>
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