( Very informational, good tips, Molers pictures, art work
and much more....
----- Original Message -----
Sent: Saturday, December 09,
2000 10:24 AM
Subject: Re: [MOL] Re:
Dean
Lillian,
Yes it is, it's like
ulcerative colitis, commonly known as IBD or IBS, (inflammatory
bowl disease, or inflammatory bowl syndrome) in as much as it
effects the intestines. Different, in that is it terminal. However,
you may die long before crohns kills you. with many other things.
You have it from birth, the doctors are not sure just how you get
it, genes or from some child hood disease, that then screws up you
immune system. Most every one who has it, has been dig. since
they are between 7 to 17, after that they consider you old, if you
haven't had an attack an/or been dig. This disease causes you to
bleed from your intestines when you are in an attack, because the
antibodies your system makes to fight off any infection or virus, go
then an attack all bacteria in your system, even the ones you need,
like what's in the intestine, causing the bowl to be eaten into.
There is where the blood comes from, the irritation in your
intestine. Allot of people have had to have surgery to
remove that part of the bowl that seems to stay irritated more that
the rest of the intestine, and also have had to remove it
completely, attaching a bag instead. It is a very painful
disease, I've had to go on disability (doctor made me), but
then I was so very sick, because of the last attack. It lasted for 5
1/2 years. I have small attacks allot, but not as bad as
the last long one. I have to take allot of medicine when this
happens. Or should I say you are suppose to. I try an use as much
natural thing to keep me in remission as I can. Reason being,
the medication makes me crazy, not that I'm not already, lol,
but....
When I do have to go on the meds, I take
Ascol, prednisone, flagyl, pain meds, folic acid, have also taken
imnran (sp)...you have a problem absorbing the things from foods
that help you keep from getting anemic. It can be a very dreaded
disease, but I try and keep myself well, with eating right, taking
injectable vit., and trying to stay stress free. I was doing
good at it also until Michael got sick, then of course it
reared it's ugly head...Oh yes you can't get more that feet away
from a bathroom either, because to say you make at least 10
trips a day to the potty is putting it mild!! If it's not bad enough
from the disease, the side effects from the meds. are a joy as
well..lol. Oh well I'm still going strong even with every thing,
because I really do rely on GOD, because knowing that if I didn't,
heaven knows what state of mind I would be in by now. I do have
a great web site/support group, similar to this one, that I visit
quite often, keeps me up dated on the latest going on with this. If
any one else has crohns then they know what I'm talking about...it
is not a nice thing to have. Here is the web site, if any one does
have it, and/or wants to take a look. http://qurlyjoe.bu.edu/cduchome.html,
http://qurlyjoe.bu.edu/FanMail/IBDSucksArticles/CROHNSILIEOCOLITISCOLOSTOMY.htm
Anyway I hope this helps you understand what I have.
xo Dean
----- Original Message -----
Sent: Saturday, December 09,
2000 12:38 AM
Subject: Re: [MOL] Re:
Dean
The alert is very much appreciated, I copied
it and have it hanging right in front of my nose. Thanks and
hope you are doing all right. By the way, what is chrons
disease? I assume this is an auto-immune disorder?
Your friend, lillian
