( Very informational, good tips, Molers pictures, art work
and much more....
----- Original Message -----
Sent: Saturday, December 09, 2000
10:24 AM
Subject: Re: [MOL] Re: Dean
Lillian,
Yes it is, it's like
ulcerative colitis, commonly known as IBD or IBS, (inflammatory
bowl disease, or inflammatory bowl syndrome) in as much as it
effects the intestines. Different, in that is it terminal. However,
you may die long before crohns kills you. with many other things. You
have it from birth, the doctors are not sure just how you get it,
genes or from some child hood disease, that then screws up you immune
system. Most every one who has it, has been dig. since they are
between 7 to 17, after that they consider you old, if you haven't had
an attack an/or been dig. This disease causes you to bleed from your
intestines when you are in an attack, because the antibodies your
system makes to fight off any infection or virus, go then an attack
all bacteria in your system, even the ones you need, like what's in
the intestine, causing the bowl to be eaten into. There is where
the blood comes from, the irritation in your intestine. Allot of
people have had to have surgery to remove that part of the
bowl that seems to stay irritated more that the rest of the intestine,
and also have had to remove it completely, attaching a bag instead. It
is a very painful disease, I've had to go on disability (doctor
made me), but then I was so very sick, because of the last attack. It
lasted for 5 1/2 years. I have small attacks allot, but not as
bad as the last long one. I have to take allot of medicine when
this happens. Or should I say you are suppose to. I try an use as much
natural thing to keep me in remission as I can. Reason being, the
medication makes me crazy, not that I'm not already, lol,
but....
When I do have to go on the meds, I take Ascol,
prednisone, flagyl, pain meds, folic acid, have also taken imnran
(sp)...you have a problem absorbing the things from foods that help
you keep from getting anemic. It can be a very dreaded disease, but I
try and keep myself well, with eating right, taking injectable vit.,
and trying to stay stress free. I was doing good at it also until
Michael got sick, then of course it reared it's ugly head...Oh yes you
can't get more that feet away from a bathroom either, because to
say you make at least 10 trips a day to the potty is putting it mild!!
If it's not bad enough from the disease, the side effects from the
meds. are a joy as well..lol. Oh well I'm still going strong even with
every thing, because I really do rely on GOD, because knowing that if
I didn't, heaven knows what state of mind I would be in by now. I
do have a great web site/support group, similar to this one, that I
visit quite often, keeps me up dated on the latest going on with this.
If any one else has crohns then they know what I'm talking about...it
is not a nice thing to have. Here is the web site, if any one does
have it, and/or wants to take a look. http://qurlyjoe.bu.edu/cduchome.html,
http://qurlyjoe.bu.edu/FanMail/IBDSucksArticles/CROHNSILIEOCOLITISCOLOSTOMY.htm
Anyway I hope this helps you understand what I have. xo
Dean
----- Original Message -----
Sent: Saturday, December 09,
2000 12:38 AM
Subject: Re: [MOL] Re:
Dean
The alert is very much appreciated, I copied
it and have it hanging right in front of my nose. Thanks and
hope you are doing all right. By the way, what is chrons
disease? I assume this is an auto-immune disorder? Your
friend, lillian
