( Very informational, good tips, Molers pictures, art work and
much more....
----- Original Message -----
Sent: Saturday, December 09, 2000
10:24 AM
Subject: Re: [MOL] Re: Dean
Lillian,
Yes it is, it's like ulcerative
colitis, commonly known as IBD or IBS, (inflammatory bowl disease,
or inflammatory bowl syndrome) in as much as it effects the
intestines. Different, in that is it terminal. However, you may die long
before crohns kills you. with many other things. You have it from birth,
the doctors are not sure just how you get it, genes or from some child
hood disease, that then screws up you immune system. Most every one who
has it, has been dig. since they are between 7 to 17, after that they
consider you old, if you haven't had an attack an/or been dig. This
disease causes you to bleed from your intestines when you are in an
attack, because the antibodies your system makes to fight off any
infection or virus, go then an attack all bacteria in your system, even
the ones you need, like what's in the intestine, causing the bowl to be
eaten into. There is where the blood comes from, the irritation in
your intestine. Allot of people have had to have surgery to
remove that part of the bowl that seems to stay irritated more that the
rest of the intestine, and also have had to remove it completely,
attaching a bag instead. It is a very painful disease, I've had to go
on disability (doctor made me), but then I was so very sick, because of
the last attack. It lasted for 5 1/2 years. I have small attacks
allot, but not as bad as the last long one. I have to take allot of
medicine when this happens. Or should I say you are suppose to. I try an
use as much natural thing to keep me in remission as I can. Reason
being, the medication makes me crazy, not that I'm not already, lol,
but....
When I do have to go on the meds, I take Ascol,
prednisone, flagyl, pain meds, folic acid, have also taken imnran
(sp)...you have a problem absorbing the things from foods that help you
keep from getting anemic. It can be a very dreaded disease, but I try and
keep myself well, with eating right, taking injectable vit., and trying to
stay stress free. I was doing good at it also until Michael got sick,
then of course it reared it's ugly head...Oh yes you can't get more that
feet away from a bathroom either, because to say you make at least 10
trips a day to the potty is putting it mild!! If it's not bad enough from
the disease, the side effects from the meds. are a joy as well..lol. Oh
well I'm still going strong even with every thing, because I really do
rely on GOD, because knowing that if I didn't, heaven knows what state of
mind I would be in by now. I do have a great web site/support group,
similar to this one, that I visit quite often, keeps me up dated on the
latest going on with this. If any one else has crohns then they know what
I'm talking about...it is not a nice thing to have. Here is the web site,
if any one does have it, and/or wants to take a look. http://qurlyjoe.bu.edu/cduchome.html,
http://qurlyjoe.bu.edu/FanMail/IBDSucksArticles/CROHNSILIEOCOLITISCOLOSTOMY.htm
Anyway I hope this helps you understand what I have. xo
Dean
----- Original Message -----
Sent: Saturday, December 09, 2000
12:38 AM
Subject: Re: [MOL] Re: Dean
The alert is very much appreciated, I copied it
and have it hanging right in front of my nose. Thanks and hope you
are doing all right. By the way, what is chrons disease? I
assume this is an auto-immune disorder? Your friend,
lillian