( Very informational, good tips, Molers pictures, art work and much
more....
----- Original Message -----
Sent: Saturday, December 09, 2000 10:24
AM
Subject: Re: [MOL] Re: Dean
Lillian,
Yes it is, it's like ulcerative
colitis, commonly known as IBD or IBS, (inflammatory bowl disease,
or inflammatory bowl syndrome) in as much as it effects the intestines.
Different, in that is it terminal. However, you may die long before crohns
kills you. with many other things. You have it from birth, the doctors are not
sure just how you get it, genes or from some child hood disease, that then
screws up you immune system. Most every one who has it, has been
dig. since they are between 7 to 17, after that they consider you old, if
you haven't had an attack an/or been dig. This disease causes you to bleed
from your intestines when you are in an attack, because the antibodies your
system makes to fight off any infection or virus, go then an attack all
bacteria in your system, even the ones you need, like what's in the intestine,
causing the bowl to be eaten into. There is where the blood comes from,
the irritation in your intestine. Allot of people have had to
have surgery to remove that part of the bowl that seems to stay
irritated more that the rest of the intestine, and also have had to remove it
completely, attaching a bag instead. It is a very painful disease, I've
had to go on disability (doctor made me), but then I was so very sick, because
of the last attack. It lasted for 5 1/2 years. I have small attacks
allot, but not as bad as the last long one. I have to take allot of
medicine when this happens. Or should I say you are suppose to. I try an use
as much natural thing to keep me in remission as I can. Reason being, the
medication makes me crazy, not that I'm not already, lol,
but....
When I do have to go on the meds, I take Ascol,
prednisone, flagyl, pain meds, folic acid, have also taken imnran (sp)...you
have a problem absorbing the things from foods that help you keep from getting
anemic. It can be a very dreaded disease, but I try and keep myself well, with
eating right, taking injectable vit., and trying to stay stress free. I was
doing good at it also until Michael got sick, then of course it reared
it's ugly head...Oh yes you can't get more that feet away from a
bathroom either, because to say you make at least 10 trips a day to the
potty is putting it mild!! If it's not bad enough from the disease, the side
effects from the meds. are a joy as well..lol. Oh well I'm still going strong
even with every thing, because I really do rely on GOD, because knowing that
if I didn't, heaven knows what state of mind I would be in by now. I do
have a great web site/support group, similar to this one, that I visit quite
often, keeps me up dated on the latest going on with this. If any one else has
crohns then they know what I'm talking about...it is not a nice thing to have.
Here is the web site, if any one does have it, and/or wants to take a look.
http://qurlyjoe.bu.edu/cduchome.html,
http://qurlyjoe.bu.edu/FanMail/IBDSucksArticles/CROHNSILIEOCOLITISCOLOSTOMY.htm
Anyway I hope this helps you understand what I have. xo
Dean
----- Original Message -----
Sent: Saturday, December 09, 2000 12:38
AM
Subject: Re: [MOL] Re: Dean
The alert is very much appreciated, I copied it and
have it hanging right in front of my nose. Thanks and hope you are
doing all right. By the way, what is chrons disease? I assume
this is an auto-immune disorder? Your friend, lillian