Re: [MOL] Re: [MOLBeav and Bridget [01248] Medicine On Line


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Re: [MOL] Re: [MOLBeav and Bridget



Thanks Lillian, you're invited....Beav

Lillian wrote:

> Ah come on whine a little!  Maybe some days whine a lot.  We could have a
> wine party?   Yes I spelled it right.  We understand and will love you just
> the same.  Sure others might not understand this thing called pain; but we
> do and we are always here for you.   As always, lillian
>
> We invite you to take a look at our Album.
> www.angelfire.com/sc/molangels/index.html
>
>   ( Very informational, good tips, Molers pictures, art work and much
> more....
>
> ----- Original Message -----
> From: <beav76@uswest.net>
> To: <mol-cancer@lists.meds.com>
> Sent: Monday, November 27, 2000 2:27 PM
> Subject: Re: [MOL] Visit to Pain Clinic/Reply
>
> > Thanks so much Bridgette for the nice reply. I will tell my husband about
> you. He doesn't
> > savy the computer at all. Maybe this will get him interested. He broke his
> left wrist
> > before he was diagnosed with cancer. He has always been in chronic pain
> for many yrs.
> > Since about 1980.  He always thought he roped a few to many calves and had
> back problems.
> > Never knowing that it was the disease (cancer) he was suffering from. I
> got a call from
> > the e.r. nurse telling me that my husband drove himself to e.r. with his
> wrist broken. His
> > thumb was where his little finger used to be and that he was going into
> surgury. He had
> > nine pins put in. Since that day I have realized the pain that my husband
> has been in and
> > never complained much. He is able to take alot of pain but that really
> showed me that when
> > he complains it is a ++10.  I know exactly what you mean by not wanting to
> be known as the
> > whiner. His family doesn't understand his pain. They think I baby him to
> much and that I
> > have made a whiner out of him. I just ignore them. They don't have a clue
> how much pain he
> > is in. His onocologist is the only person that said he wasn't surprised
> that I had to call
> > paramedics to take him because pain was way out of control. My husband was
> afraid he was
> > being looked at by the paramedics as a whimp. I knew they knew he was in
> pain because I
> > already had given him 60mg. of instant release morphine, 15mg. of s.r.
> morphine and two
> > tylenol and he was rigid with pain two hrs. later. They also gave him 2cc
> of morphine with
> > no response. That is when he went to dauladid for breakthrough and so far
> it is working.
> > I am going to e-mail mensana and see what I can find out. They are
> supposed to have a good
> > pain clinic in Tucson too. I need to check into that. Our insurance
> changes on the 1st of
> > Dec. so I am hoping that will be a plus to better pain trtmt. Thanks so
> much for being
> > there Bridgette and  I will tell my husband about you......Love and
> prayers,    Beav
> >
> > Bridget Rambeau wrote:
> >
> > > Hi Beav.
> > > I know exactly how your husband feels. This group is what I've been
> hoping
> > > to find ever since I realized that there's probably no physical cure for
> the
> > > pain and any improvement in my quality of life was esentially going to
> be up
> > > to me. But I knew I was ill equipped to deal with this without
> professional
> > > help.
> > > Over the past couple of months I've done quite a bit of research in the
> area
> > > of chronic pain treatment. One of the places I received info from was
> the
> > > Mensana Clinic in Stevenson, Maryland. I'd requested some material from
> them
> > > and was quite impressed by their approach. They offer both an inpatient
> (for
> > > out-of-state patients) and outpatient program. The initial evaluation
> takes
> > > 1/2 - 3 hrs and determines acceptability, costs, etc. If you're
> interested
> > > they can be contacted @ 410-653-2403, or fax 410-653-3633, or e-mail @
> > > info@mensanaclinic.com; www.mensanaclinic.com.
> > > They are an accredited pain care facility and there are 191 programs in
> the
> > > USA with 20 in the seven-state Mid-Atlantic region. You could probably
> find
> > > the location of these by contacting the group which does the
> accredidations,
> > > called CARF (Commission on Accreditation of Rehabilitation Facilities).
> I'm
> > > afraid I've no contact point for them.
> > > I hope this info is of some help to you. Let me know how you make out if
> you
> > > decide to contact them. And I'll keep you posted on my progress. I have
> an
> > > interview in mid Dec. so I should have more info then.
> > > Please tell your husband he's not alone and if he's the e-mail type, I'd
> > > love to talk to him. I understand how debilitating pain can be and how
> > > difficult it often is for other people to relate. None of us want to be
> > > perceived as a "whiner" so often we tend to undermine the effect our
> pain
> > > has on us. Anyway, I'm here if he's ever like to talk.
> > > Good luck, dear friend. I look forward to hearing from you again.
> > > Your friend,
> > > Bridget
> > >
> > > >From: beav76@uswest.net
> > > >Reply-To: mol-cancer@lists.meds.com
> > > >To: mol-cancer@lists.meds.com
> > > >Subject: Re: [MOL] Visit to Pain Clinic
> > > >Date: Thu, 23 Nov 2000 11:12:42 -0700
> > > >
> > > >Bridget;
> > > >     Thanks for sharing, what a good thing. I never knew there are
> support
> > > >groups for pain
> > > >management. That should be a very helpful group.  I am going to see if
> I
> > > >can find a group
> > > >in Phx., for most people don't realize what a person is going through
> with
> > > >constant
> > > >chronic pain.  My husband met one person so far out of all our travels
> that
> > > >had the same
> > > >pain threshold that he had. They bonded instantly. Like finally he had
> > > >someone that could
> > > >relate to the feelings of drugs and pain. So happy for you and
> > > >again...Thanks for
> > > >sharing..Your friend,  Beav
> > > >
> > > >Bridget Rambeau wrote:
> > > >
> > > > > Hi and I'm sorry I didn't write yesterday; I decided to spend the
> day in
> > > >bed
> > > > > and just veg; it was great!
> > > > > I really liked the doctor at the Pain Clinic; her name is Dr.
> > > >Livingston. We
> > > > > spoke for well over an hour about what the outlook and options were.
> She
> > > > > feels the pain will probably be with me for life and doesn't see any
> > > >medical
> > > > > or surgical way to change that. We spoke about hypnosis and other
> > > > > non-traditional treatments but, without going into a bunch of
> detail,
> > > >she
> > > > > didn't feel these would be effective (from past experience). So, the
> > > >drugs
> > > > > are here to stay but we're going to be making some changes there
> that
> > > >might
> > > > > reduce the side effects some. Any improvement would be welcome.
> > > > > But it's not all bad news! The good news is I have an appt to see
> about
> > > > > participating in a Pain Self-Management Support Group. The group is
> led
> > > >by 3
> > > > > Professionals and deals with Diet & Nutritrion; Light Exercise;
> Mental
> > > > > Attitudes and Relaxation tecniques. Pretty much what I was hoping
> for so
> > > >I'm
> > > > > really excited about that. I think the next one starts in Jan. It's
> 3
> > > > > half-days a week for 4 weeks (and includes homework, YUK!).
> > > > > Anyway, there's the update. Hope nobody minds the group mailing but
> you
> > > >know
> > > > > me, Miss Efficiency.
> > > > > Your concern is so appreciated I couldn't begin to express how much.
> > > > > With so many wonderful people pulling for me, how can I lose?
> > > > > Love and all that other mushy stuff,
> > > > > Bridget
> > > > >
> > > > > >From: "lillian ripley" <lillianripley@hotmail.com>
> > > > > >To: bsbridget@hotmail.com
> > > > > >Subject: Your week to date
> > > > > >Date: Wed, 22 Nov 2000 21:00:25 -0400
> > > > > >
> > > > > >Okay, what happened to you informing me about the cat scan and the
> pain
> > > > > >clinic.  I really hope that it went well for you and you see some
> light
> > > >at
> > > > > >the end of the tunnel boo.  We had a nice time out with Jean (my
> aunt)
> > > >on
> > > > > >Sat night.  You would love the Economy Shoe Shop it's such a funky
> > > >place
> > > > > >and the food is inexpensive as well.  As a suggestion when you go
> in
> > > >there
> > > > > >go directly to the back where they have big rattan chairs sitting
> > > >around
> > > > > >tables - ultra comfortable and intimate if your with your own
> group.
> > > >Jean
> > > > > >said she would call you sometime soon.  Please let me know how
> things
> > > >went.
> > > > > >    Lillian  PS it was great to see you and Joan
> > > > > >
> > > > >
> > > > >
> > >
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