Re: [MOL] side effects - can you help?/REply [00529] Medicine On Line

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Re: [MOL] side effects - can you help?/REply

Lillian - I'm glad I keep these emails!  You asked before if my dad has mouth sores - he didn't then but you should see him now.  His lips, inside his lips, cheeks, gums, top-bottom-sides of tongue, roof and throat are covered in the biggest, bloody sores you can imagine.  Doc had him on IV's from home and morphine every couple of hours.  They are improving now - almost 15 days of hell he went through.
These sore came after his first treatment of adjuvant chemo which consisted of carboplatin and 5FU.  Doc says the 5FU caused the sores, not the carbo.  Doc also thinks because Dad had so many radiation treatments to the insides of his mouth that the effect was intensified.
All agree, he will never do the 5FU again.  Doc plans the carboplatin alone for the next two tx.  Any info on you can share?  He's about had enough - don't know how much more he can physically take.  He's lost 70 lbs in 3 mo. and barely has enough energy to get himself back and forth to the bathroom.
I appreciate any advice you or the other molers can give.
Thanks - Lisa in Colorado
----- Original Message -----
From: Lillian
Sent: Friday, September 08, 2000 8:45 AM
Subject: Re: [MOL] side effects - can you help?/REply

Hope this will help you and your dad.  Does your father have mouth sores?  Here's a lot of informaion for the two of you.  Hope it helps, Warmly, your friend, lillian
A drug called phenergan-antinousee (sp?) increases appitite
\Much information on Cisplatinum:
Much Information on  5-FU:
Some informationon Nasopharangeal:
We invite you to take a look at our Album.                                      
  ( Very informational, good tips, Molers pictures, art work and much more....
----- Original Message -----
From: Winn
Sent: Friday, September 08, 2000 5:13 AM
Subject: Re: [MOL] side effects - can you help?/REply

Lillian, Beav:
Thank you for the information you shared with me. Never even considered non-metallic utinsels to help with the salt - makes sense. He will drink the Ensure or Boost but not much of it and won't let us make it into shakes.  No interest in food, liquid or solid. 
He has Stage 3 Nasopharangeal Carcinoma.  Treatments include radiation 5x week for 7 weeks and chemo. The chemo schedule is Cisplatinum on days 1, 22, 43 of radiation. Following radiation is Cisplatinum day 1 and 5FU days 1-5 on the pump - this series for 3 months.
The nurses said 5FU is nothing like the Cisplatinum, not near as bad.  The research I've done doesn't look one bit better than the Cisplatinum.  Any info on 5FU and what to expect?  Dad is also on Ethyol (Amifostine) daily before radiation, to protect salivary glands and taste buds, then in mega doses on chemo days to protect kidneys and other.  Getting started on the ethyol was a ride in itself...
Dad just had the second Cisplatinum.  Have so far still to go.  He is an amazing man, so strong and wonderful.  Kills your soul to see this and not be able to help.  You guys are great and to see a reply is a real thrill.  Thanks.
----- Original Message -----
From: Lillian
Sent: Thursday, September 07, 2000 7:16 PM
Subject: Re: [MOL] side effects - can you help?/REply

Dear Friend:  I know this is playing havoc on you and no wonder.
In all the researching that I have done these past year's I am discovering more and more Doctors are using a two or three prong chemo therapy.  Meaning different types of chemo.  They are also giving the chemo in lower dosages.  Many on our forum have been on this chemo program, not sick to their stomach, not loosing their hair.  The researchers are saying that the low dosage has the same affect as an aggressive dosage.
Use plastic utensils and plates to take away some of the salt taste.
phenergan-antionousee (sp) makes patients want to eat.
What chemo drugs is he on?  For what type of cancer and stage?  I really suggest that you talk with his Doctor and get that dosage lowered. I would not let this go. Some chemo's do cause chills.
I am sorry to hear your father is going through so much.  Warmly, your friend, lillian