Re: [MOL] REPLY ON EDEMA ! [00091] Medicine On Line


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Re: [MOL] REPLY ON EDEMA !



Susan,
I hope you don't mind me butting in here. Please call your hospice people. I
know that here in Australia, they are not just concerned with 'end of life
care' but with making the journey from this life to the next one as easy as
possible.
There are people who need symptom care (like adjusting pain meds., getting
aids (like bed rails) etc. Some of these people have been getting help from
hospice for years.
Do you have an outreach program where you are?
They are also great at juggling pain meds to get maximum while trying to
help people stay alert.
Hang in there.
:) Mam
----- Original Message -----
From: "Susan Ciccarone" <suzecicc@mail.com>
To: <mol-cancer@lists.meds.com>
Sent: Tuesday, October 31, 2000 12:52 PM
Subject: Re: [MOL] REPLY ON EDEMA !


> Hi, Lillian!  Sorry I haven't written, but things are hectic.  My mom was
in
> the ER again today with the swelling, cough, etc.  Interesting to note
that
> no one who's posted a reply mentions congestive heart failure, yet her
> doctors tell us that can be a cause of the swelling.  Mom was given Lasics
> by IV (she still has her port-o-cath in) and sent home.  She's on an
> anti-biotic because the doctor thought there might be an infection.
>
> Mom really hasn't been able to be alone for over a month now.  My sister
has
> been caring for her during the week with me taking her back to her house
for
> the weekends.  Now, Linda and I will trade nights taking care of her.
Does
> anyone have hints on how to make this easier?  What do you do when the
drugs
> take awhile to work and hugs just don't ease the pain?  Also, with the
meds
> mom is on, she tends to "space out" and isn't quite aware of what is doing
> on, sometimes even hallucinating.  How can we keep her safe from harm at
> night, while still staying sane with no sleep? I spent Sat. and Sun. with
> her and think I've had 3 hours of sleep for those 2 days.   Any and all
help
> will be greatly appreciated.  I'm heading for bed.....  Hugs to all!
Susan
> C.
> ------Original Message------
> From: "Lillian" <firefly@islc.net>
> To: mol-cancer@lists.meds.com
> Sent: October 30, 2000 8:05:50 AM GMT
> Subject: Re: [MOL] REPLY ON EDEMA !
>
>
> I had just received a message from Carol O regarding your mother and
Susan.
> I had inquired as we have not heard from Susan.
> My suggestions regarding the edema would be:
>
> I was treated for EDEMA of lower extremity and was given a very mild water
> pill.  The reason for it being mild is that we needed to make sure I was
not
> going to loose too much potassium and to make sure my blood pressure did
not
> drop.
>
> Oxygen is both wonderful and also carries with it some serious business.
I
> just had some heavy loads of oxygen and girlfriend, I felt better than I
had
> in a long time.  However; this is only temporary, at the most three days
and
> I was back where I started.  The problem with oxygen is that the more you
> use, the more dependency  and the less work the other organs will do.
Also
> if given too much oxygen then it can effect the brain functions and in
some
> cases the decrease in brain function is so severe that one goes crazy and
> some even die.
>
> I know there will be other Molers who will be able to give you more
> information.  Welcome to our forum.  Warmly, lillian
>
>
> We invite you to take a look at our Album.
> www.angelfire.com/sc/molangels/index.html
>
> ( Very informational, good tips, Molers pictures, art work and much
> more....
>
> ----- Original Message -----
> From: <Goldentrumpet@aol.com>
> To: <mol-cancer@lists.meds.com>
> Sent: Sunday, October 29, 2000 7:18 PM
> Subject: [MOL] Edema
>
>
> > My mother has lung cancer, diagnosed in 1998.  You've seen my sister,
> Susan
> > (Suzecicc), ask questions on this forum before and your advice has
always
> > been helpful to both of us.
> > Mom went into the hospital this past Thursday and was discharged Friday.
> > They admitted her because her oxygen level was extremely low although
she
> was
> > on portable oxygen with a cannula and a concentrator at home.  Her feet
> were
> > very swollen.  They placed her on oxygen with a mask and within 12
hours,
> she
> > was doing well enough to be switched to a cannula again at a much higher
> > liter of oxygen than we normally use at home.  Ruled out fluid on the
> lungs
> > and blood clots and sent her home with more steroids and antibiotics.
> >
> > We have noticed a pattern in that every time she has bronchitis or any
> form
> > of fluid on the lungs, her feet swell with edema.  This seems to go away
> once
> > the virus (or whatever) is treated with antibiotics.  However, this time
> they
> > discharged her once the white blood count was lowered and she seemed to
be
> > doing better.  Once home, her feet started to swell and they are now
very
> > "fat" with edema.  We have her at the highest level possible on the
> > concentrator which is 5-6 liters.  Has anyone else experienced this
> problem
> > when there is a low amt of oxygen saturation?  If so, are there masks
> > available that one can use at home to get a higher level of oxygen both
> thru
> > the mouth and the nose? Or does anyone have experience with the edema?
> Her
> > ring fingers are not swollen at all.  It is only the feet, legs and
> ankles.
> >
> > Thank you for your help.
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