I was saddened to read our leader, our Moses, is failing and loosing the
will of fight. Gosh, I sure know how he feels. When I first came home my
husband watched every move. Took everything I did away. (Of course I was
not up to any of it; but its the feeling one gets} One day I had to sit
down and talk to him. Told him I understood that many times I did not make
sense when I talked; but knew inside my head what I was trying to say. That
I could only do one little chore and then take a nap; but not to clip my
wings. That I had to be able to fly. Even if it meant I would fall and get
hurt (which I did a few times). I believe you are on the right path in your
thinking and wishing you luck. Your friend, lillian
We invite you to take a look at our Album.
www.angelfire.com/sc/molangels/index.html
( Very informational, good tips, Molers pictures, art work and much
more....
----- Original Message -----
From: <TON1213@aol.com>
To: <mol-cancer@lists.meds.com>
Sent: Monday, October 30, 2000 6:04 AM
Subject: [MOL] Re: Pauli ;)
> Hey Pauli:
>
> How is that laundry coming along? You made me laugh. I had just put my
4th
> load in before I read your email. The fourth child has put me over the
> top!!!! I believe you had 20,000 tons . LOL
>
> My dad's kidneys are damaged and he need to drink at least 1 gallon on
water
> daily to help flush them. His level was as high as 1.7 . The doctor said
if
> it reaches 2.0 he might as well pick out his casket!!!! Daddy said
drinking
> all this water is more difficult than the chemo and transplant. He is
> loosing weight like crazy. It's not the water that is difficult (in my
> opinion) I think he starting loosing his will to live. He is getting
tired
> of living in a plastic bubble. Every time he does anything, my mom makes
a
> big deal of it. She is just concerned but I can see how he feels like a
> toddler learning to walk. He doesn't have much control over his actions
and
> is constantly being watched.
>
> I had a talk with my siblings about this and I feel the best thing we can
do
> is to remind my dad what he has to live for. Not to be so fragile with
him.
> Try to have life go back to some sort of "normalcy". I don't know if this
> will work but the other approach isn't.... Any suggestions?
>
> What is new on your end? How is that Moffit appeal going? You have got to
be
> going CRAZY with the kids, school, the death of your grandma and of course
> your dad.... How is your husband throughout this? It appears that he
must
> be very supportive for you. I hope this is the case. As for the
> antidepressant drugs...
> I find a nice glass of red wine works pretty good....
>
> Write when you can. I hope your reports go well.
>
> Hugs back at ya!!!
> Tonia
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