Re: [MOL] Stanford Diary .... here we went ! [00992] Medicine On Line


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Re: [MOL] Stanford Diary .... here we went !



Carol, Although it was quite an odeal for our dear friend, we are so happy
you are home safe and sound.  Soon things will be good for you again and we
will be praying that you have only the best of luck from here on in.   We
have been praying very hard for your sanity oops, meant safety!  LOL !  You
have been through a lot kiddo and we only want smoothe sailing for you from
here on out.  Love you, your friend, lillian


We invite you to take a look at our Album.
www.angelfire.com/sc/molangels/index.html

  ( Very informational, good tips, Molers pictures, art work and much
more....

----- Original Message -----
From: <Roses1@aol.com>
To: <mol-cancer@lists.meds.com>; <meningioma@hydra.welch.jhu.edu>
Sent: Sunday, October 22, 2000 10:03 PM
Subject: [MOL] Stanford Diary .... here we went !


> OK, I promised news when we returned, but was just too tired yesterday !
So
> here goes ... it's a long one !
>
> Left last Saturday morning & drove down to Sacramento ... got up Sunday &
> headed to San Francisco.  Got to have dinner & play at Fisherman's Wharf
to
> relax before the first day.
> Monday ... headed for Stanford ... scared to death.  They had decided to
> break the treatments into 3 days.  The first to be the longest doing the 2
> top tumors together that day.  Treatment lasted 2 hours on that luxurious
> cushiony table ... not !  They gave me 2 steroids, made me take an extra
> seizure med & sent me on my way.  It was pretty scarry, but I had lots of
> quality time with God that morning.  The scariest part that day would have
> been when the gammas hit something & numbed my throat & I had no feeling
in
> my neck area & couldn't swallow while that dose was going in.   But it did
go
> away when the gammas changed their next position.  We went back to the
motel,
> slept a couple of hours & went back to the wharf & walked around.  I was
> tired, but functioning.
> Tuesday ... back for day 2.  This was to be a shorter treatment, only
doing
> one of the bottom tumors, with the other one to be the last day.  On the
3rd
> "pass" the computer glitched & they called it a day, advising they could
do
> that last "pass" on the next day.  Treatment only lasted approx 1-1/2
hours
> .. just a quickie.  I knew that day why they called it the cyber knife ...
> hit a couple of spots where it felt like it  burned it's way in.  Ouch.
Same
> meds, same nap time & we went for a drive that evening to Scocilito (sp?)
> Wednesday .. ya hoo, one more shot & we are out of here.  First 2 days
were
> tolerable ...  tiring, but no real side effects .. we can do this !  Well,
2
> hours later & I staggered out.  They must have saved the best for last,
> 'cause I felt awful.  We drove to Fresno .. approx 3 hours ... to the in
laws
> for a couple of days to rest before the long drive home.  My brain felt as
if
> it was swelling beyond capacity, dizzy, sick to my stomach, total
confusion
> ... hey in-laws how do you like me so far ?  LOL  I felt so bad I couldn't
> spend better time with them.
> Friday ... headed for home.  Stopped at Weed, CA for the night feeling
> absolutely sick.  Fell apart on my poor husband, got a really good cry
out.
> But he held me until I felt safe once again (I think the poor man is
getting
> used to "sticking" me back together).
> Saturday ... tired and pressure again.  After sitting in the car for 6
hours
> again for the last leg home ...  I realized on the last "pit stop" the car
> noise was killing me.  When Michael turned off the engine, this huge
relief
> came over me.  Noise of the tiniest little bit, light & activity around me
> are my worst enemies.  It is almost the same as the prior craniotomies ...
I
> was so looking forward to bypassing that confusion stage.  Had lots of
pain
> that evening.
> Sunday ... determined for normal ?  Got up & washed the dishes ... what
could
> be more normal ?  I did it quite carefully not to clang any dishes !
Visited
> with my mother & tried doing a few chores around the house.  By the
afternoon
> I was seeing pretty colors in my left eye ... even when it was closed.
Oops.
>  Perhaps overdid a little ?  Took a seizure med & decided to shut up & lay
> down on the couch for awhile.  But that wouldn't last for long ... 'cause
> here I am !!!  LOL
> This was more fun than another craniotomy, and they didn't make me eat
jello.
>  I was hoping it to be a little less eventful on the side effects, but I
> guess that will just make me appreciate feeling better that much more
> special.  I am looking forward to food tasting like food again !  Hoping
this
> will help anyone going in for the same treatment.  I am planning on going
> into the office tomorrow ... wish me luck !  LOL  I know tomorrow will be
> better.
>
> Have a great week all !
>
> Love ya,
> Carol
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