Re: [MOL] Myelo Dysplasia - Anyone!! Can you give me any INFO? [00468] Medicine On Line


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Re: [MOL] Myelo Dysplasia - Anyone!! Can you give me any INFO?



So very welcome Pauli!!  Prayers go a long ways.... Love u and hope the best
with your dad.....Beav

Pauli Franklin wrote:

> Thanks to everyone!!!!  I am so happy!  My dad came home Monday night!  He
> is very weak, but determined to get stronger.  I am not sure of his
> intentions from this point on.... I have a few of my own!!!  Tonight is my
> last class this week and I will be able to put in a bunch of research time!
> I just know that without your support and prayers for us, it certainly would
> have been a lot harder on me!!!
> Extremely grateful!!!
> Pauli
>
> ----- Original Message -----
> From: <beav76@uswest.net>
> To: <mol-cancer@lists.meds.com>
> Sent: Wednesday, October 11, 2000 12:17 AM
> Subject: Re: [MOL] Myelo Dysplasia - Anyone!! Can you give me any INFO?
>
> > Pauli and Tonia;
> >     This is what this forum is all about isn't it?  I am so elated that
> you have
> > someone to help you Pauli... Gosh Tonia you are so strong!!!  Best wishes
> and
> > prayers for both of you....Beav
> >
> > TON1213@aol.com wrote:
> >
> > > Pauli-
> > >
> > > I have to make this brief because I am short on time right now.  I will
> reply
> > > a more detailed one later -- maybe tomorrow.  My name is Tonia and I
> live in
> > > Michigan.  I am a special needs school teacher by day and an AML
> researcher
> > > by night.  My information that I will pass on to you is based on my 5
> months
> > > of research, my dads doctors and many phone call made.  Please keep in
> mind
> > > I, like you, am just searching for anything to help my dad.  My dad is
> 68 had
> > > myleodysplasia (MDS)which transformed to acute myleogenous leukemia
> (AML).
> > > He was diagnosed April 2000.
> > >
> > > You have so many questions that I too had.  First off, the symptoms he
> is
> > > experiencing with chemo are all common -- but scary just the same-His
> WBC is
> > > low but that will come up.  Typically, your counts are not effected by
> the
> > > chemo for 10 to 14 days.  He is right on track.  Becoming neutrapenic IS
> > > expected, if he doesn't, chemo was not doing it's job.  The WBC needs to
> be
> > > over 1000 for his immune system to start combating infection.  My dad is
> > > currently at the same as your dad.  He is on day 13 after a stem cell
> > > transplant.
> > >
> > > Think of your dads counts as the Dow Jones average.  Stocks go up and
> down
> > > without any notice or logic.  So do a patients counts after chemo.  They
> will
> > > come up again.  If the doctors feel the need to help boost his counts,
> they
> > > will start giving him neupagin(not spelled correctly) to "trick the
> white
> > > blood cells WBC into start producing again. This entire process is very
> long
> > > and stressful.  Stay focused on the positive and never give up hope.
> Always
> > > challenge the doctors with questions and why they are treating him as
> they
> > > do.
> > >
> > > I have lots of phone numbers and websites for you.  First, please give
> me
> > > more info.  Where are you located, does your dad have blasts?
> Approximately
> > > 30% of all MDS patients transform to AML.  Unfortunately our dads are in
> that
> > > statistic.
> > >
> > > By the way, we were told dad would not live to see the Fall   WRONG,
> that he
> > > would not be eligible for a transplant WRONG.
> > >
> > > Stay focused like you are and keep searching for answers.  I hope I can
> be of
> > > some help.
> > >
> > > Your friend,
> > >
> > > Tonia
> > >
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