[MOL] Re:Heu there Pauli [00458] Medicine On Line


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[MOL] Re:Heu there Pauli



Glad to hear your Dad is back home, this will paint an entirely different
and positive painting on the canvas of life.  Your friend, lillian


We invite you to take a look at our Album.
www.angelfire.com/sc/molangels/index.html

  ( Very informational, good tips, Molers pictures, art work and much
more....

----- Original Message -----
From: "Pauli Franklin" <crazyranch@earthlink.net>
To: <mol-cancer@lists.meds.com>
Sent: Wednesday, October 11, 2000 2:25 PM
Subject: Re: [MOL] Myelo Dysplasia - Anyone!! Can you give me any INFO?


> Thanks to everyone!!!!  I am so happy!  My dad came home Monday night!  He
> is very weak, but determined to get stronger.  I am not sure of his
> intentions from this point on.... I have a few of my own!!!  Tonight is my
> last class this week and I will be able to put in a bunch of research
time!
> I just know that without your support and prayers for us, it certainly
would
> have been a lot harder on me!!!
> Extremely grateful!!!
> Pauli
>
>
> ----- Original Message -----
> From: <beav76@uswest.net>
> To: <mol-cancer@lists.meds.com>
> Sent: Wednesday, October 11, 2000 12:17 AM
> Subject: Re: [MOL] Myelo Dysplasia - Anyone!! Can you give me any INFO?
>
>
> > Pauli and Tonia;
> >     This is what this forum is all about isn't it?  I am so elated that
> you have
> > someone to help you Pauli... Gosh Tonia you are so strong!!!  Best
wishes
> and
> > prayers for both of you....Beav
> >
> > TON1213@aol.com wrote:
> >
> > > Pauli-
> > >
> > > I have to make this brief because I am short on time right now.  I
will
> reply
> > > a more detailed one later -- maybe tomorrow.  My name is Tonia and I
> live in
> > > Michigan.  I am a special needs school teacher by day and an AML
> researcher
> > > by night.  My information that I will pass on to you is based on my 5
> months
> > > of research, my dads doctors and many phone call made.  Please keep in
> mind
> > > I, like you, am just searching for anything to help my dad.  My dad is
> 68 had
> > > myleodysplasia (MDS)which transformed to acute myleogenous leukemia
> (AML).
> > > He was diagnosed April 2000.
> > >
> > > You have so many questions that I too had.  First off, the symptoms he
> is
> > > experiencing with chemo are all common -- but scary just the same-His
> WBC is
> > > low but that will come up.  Typically, your counts are not effected by
> the
> > > chemo for 10 to 14 days.  He is right on track.  Becoming neutrapenic
IS
> > > expected, if he doesn't, chemo was not doing it's job.  The WBC needs
to
> be
> > > over 1000 for his immune system to start combating infection.  My dad
is
> > > currently at the same as your dad.  He is on day 13 after a stem cell
> > > transplant.
> > >
> > > Think of your dads counts as the Dow Jones average.  Stocks go up and
> down
> > > without any notice or logic.  So do a patients counts after chemo.
They
> will
> > > come up again.  If the doctors feel the need to help boost his counts,
> they
> > > will start giving him neupagin(not spelled correctly) to "trick the
> white
> > > blood cells WBC into start producing again. This entire process is
very
> long
> > > and stressful.  Stay focused on the positive and never give up hope.
> Always
> > > challenge the doctors with questions and why they are treating him as
> they
> > > do.
> > >
> > > I have lots of phone numbers and websites for you.  First, please give
> me
> > > more info.  Where are you located, does your dad have blasts?
> Approximately
> > > 30% of all MDS patients transform to AML.  Unfortunately our dads are
in
> that
> > > statistic.
> > >
> > > By the way, we were told dad would not live to see the Fall   WRONG,
> that he
> > > would not be eligible for a transplant WRONG.
> > >
> > > Stay focused like you are and keep searching for answers.  I hope I
can
> be of
> > > some help.
> > >
> > > Your friend,
> > >
> > > Tonia
> > >
> >
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