Re: [MOL] Myelo Dysplasia - Anyone!! Can you give me any INFO? [00450] Medicine On Line


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Re: [MOL] Myelo Dysplasia - Anyone!! Can you give me any INFO?



And we are so happy for you and your Dad! Love and prayers, Joicy

> From: "Pauli Franklin" <crazyranch@earthlink.net>
> Reply-To: mol-cancer@lists.meds.com
> Date: Wed, 11 Oct 2000 17:25:42 -0400
> To: <mol-cancer@lists.meds.com>
> Subject: Re: [MOL] Myelo Dysplasia - Anyone!!  Can you give me any INFO?
> 
> Thanks to everyone!!!!  I am so happy!  My dad came home Monday night!  He
> is very weak, but determined to get stronger.  I am not sure of his
> intentions from this point on.... I have a few of my own!!!  Tonight is my
> last class this week and I will be able to put in a bunch of research time!
> I just know that without your support and prayers for us, it certainly would
> have been a lot harder on me!!!
> Extremely grateful!!!
> Pauli
> 
> 
> ----- Original Message -----
> From: <beav76@uswest.net>
> To: <mol-cancer@lists.meds.com>
> Sent: Wednesday, October 11, 2000 12:17 AM
> Subject: Re: [MOL] Myelo Dysplasia - Anyone!! Can you give me any INFO?
> 
> 
>> Pauli and Tonia;
>> This is what this forum is all about isn't it?  I am so elated that
> you have
>> someone to help you Pauli... Gosh Tonia you are so strong!!!  Best wishes
> and
>> prayers for both of you....Beav
>> 
>> TON1213@aol.com wrote:
>> 
>>> Pauli-
>>> 
>>> I have to make this brief because I am short on time right now.  I will
> reply
>>> a more detailed one later -- maybe tomorrow.  My name is Tonia and I
> live in
>>> Michigan.  I am a special needs school teacher by day and an AML
> researcher
>>> by night.  My information that I will pass on to you is based on my 5
> months
>>> of research, my dads doctors and many phone call made.  Please keep in
> mind
>>> I, like you, am just searching for anything to help my dad.  My dad is
> 68 had
>>> myleodysplasia (MDS)which transformed to acute myleogenous leukemia
> (AML).
>>> He was diagnosed April 2000.
>>> 
>>> You have so many questions that I too had.  First off, the symptoms he
> is
>>> experiencing with chemo are all common -- but scary just the same-His
> WBC is
>>> low but that will come up.  Typically, your counts are not effected by
> the
>>> chemo for 10 to 14 days.  He is right on track.  Becoming neutrapenic IS
>>> expected, if he doesn't, chemo was not doing it's job.  The WBC needs to
> be
>>> over 1000 for his immune system to start combating infection.  My dad is
>>> currently at the same as your dad.  He is on day 13 after a stem cell
>>> transplant.
>>> 
>>> Think of your dads counts as the Dow Jones average.  Stocks go up and
> down
>>> without any notice or logic.  So do a patients counts after chemo.  They
> will
>>> come up again.  If the doctors feel the need to help boost his counts,
> they
>>> will start giving him neupagin(not spelled correctly) to "trick the
> white
>>> blood cells WBC into start producing again. This entire process is very
> long
>>> and stressful.  Stay focused on the positive and never give up hope.
> Always
>>> challenge the doctors with questions and why they are treating him as
> they
>>> do.
>>> 
>>> I have lots of phone numbers and websites for you.  First, please give
> me
>>> more info.  Where are you located, does your dad have blasts?
> Approximately
>>> 30% of all MDS patients transform to AML.  Unfortunately our dads are in
> that
>>> statistic.
>>> 
>>> By the way, we were told dad would not live to see the Fall   WRONG,
> that he
>>> would not be eligible for a transplant WRONG.
>>> 
>>> Stay focused like you are and keep searching for answers.  I hope I can
> be of
>>> some help.
>>> 
>>> Your friend,
>>> 
>>> Tonia
>>> 
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>> 
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