Thanks to everyone!!!! I am so happy! My dad came home Monday night! He
is very weak, but determined to get stronger. I am not sure of his
intentions from this point on.... I have a few of my own!!! Tonight is my
last class this week and I will be able to put in a bunch of research time!
I just know that without your support and prayers for us, it certainly would
have been a lot harder on me!!!
Extremely grateful!!!
Pauli
----- Original Message -----
From: <beav76@uswest.net>
To: <mol-cancer@lists.meds.com>
Sent: Wednesday, October 11, 2000 12:17 AM
Subject: Re: [MOL] Myelo Dysplasia - Anyone!! Can you give me any INFO?
> Pauli and Tonia;
> This is what this forum is all about isn't it? I am so elated that
you have
> someone to help you Pauli... Gosh Tonia you are so strong!!! Best wishes
and
> prayers for both of you....Beav
>
> TON1213@aol.com wrote:
>
> > Pauli-
> >
> > I have to make this brief because I am short on time right now. I will
reply
> > a more detailed one later -- maybe tomorrow. My name is Tonia and I
live in
> > Michigan. I am a special needs school teacher by day and an AML
researcher
> > by night. My information that I will pass on to you is based on my 5
months
> > of research, my dads doctors and many phone call made. Please keep in
mind
> > I, like you, am just searching for anything to help my dad. My dad is
68 had
> > myleodysplasia (MDS)which transformed to acute myleogenous leukemia
(AML).
> > He was diagnosed April 2000.
> >
> > You have so many questions that I too had. First off, the symptoms he
is
> > experiencing with chemo are all common -- but scary just the same-His
WBC is
> > low but that will come up. Typically, your counts are not effected by
the
> > chemo for 10 to 14 days. He is right on track. Becoming neutrapenic IS
> > expected, if he doesn't, chemo was not doing it's job. The WBC needs to
be
> > over 1000 for his immune system to start combating infection. My dad is
> > currently at the same as your dad. He is on day 13 after a stem cell
> > transplant.
> >
> > Think of your dads counts as the Dow Jones average. Stocks go up and
down
> > without any notice or logic. So do a patients counts after chemo. They
will
> > come up again. If the doctors feel the need to help boost his counts,
they
> > will start giving him neupagin(not spelled correctly) to "trick the
white
> > blood cells WBC into start producing again. This entire process is very
long
> > and stressful. Stay focused on the positive and never give up hope.
Always
> > challenge the doctors with questions and why they are treating him as
they
> > do.
> >
> > I have lots of phone numbers and websites for you. First, please give
me
> > more info. Where are you located, does your dad have blasts?
Approximately
> > 30% of all MDS patients transform to AML. Unfortunately our dads are in
that
> > statistic.
> >
> > By the way, we were told dad would not live to see the Fall WRONG,
that he
> > would not be eligible for a transplant WRONG.
> >
> > Stay focused like you are and keep searching for answers. I hope I can
be of
> > some help.
> >
> > Your friend,
> >
> > Tonia
> >
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