Re: [MOL] MDS/Pauli/Reply [00131] Medicine On Line


[Date Prev][Date Next][Thread Prev][Thread Next][Date Index][Thread Index]

Re: [MOL] MDS/Pauli/Reply



Tonia,
I sure hope you know what a lifeline you have been for me.  I am just so
discussed with the Hospital.  Unfortunately I am not the one in control.  I
don't get to spend much time with my dad, he is very weak - unable to get
out of bed.  With the Mediport not working they are having to put other IV's
in and it makes him cry.  We all love him very much and keep things upbeat
with him!  I just hope that things turn around soon, he is still not
responding on his own yet.  Day12.  God will see us through!  Thanks
again!!!
Pauli



----- Original Message -----
From: <TON1213@aol.com>
To: <mol-cancer@lists.meds.com>
Sent: Tuesday, October 03, 2000 10:53 AM
Subject: Re: [MOL] MDS/Pauli/Reply


> Pauli-
>
> My dads average stay is 21-28 days during chemo treatment. He is coming
home
> today!!!!  Day 22 after this last bout. His WBC is up to 1.5 and his ANC
is
> .8( the ANC is your absolut neutrphil count).  This is the part of your
white
> blood cells that actually do the fighting of infection in our body.  Your
> dads nurse should have his counts posted on a board in his room daily.  If
> this is not happening - insist on it.  You need to be aware of his counts,
> when they give him blood and platelets and why.  I question everything!!!!
> Regarding the sores in the mouth.  It happened to my dad too.  Putting
ginger
> on his food seemed to make it more appealing.  Apparently chemo really
wipes
> out their taste for food.  Another chemo patient suggested ginger and it
> seemed to help  A LITTLE.   Has your dad been able to exercise much?  Even
a
> few times around the ward is beneficial.  Also, how much weight has he
lost?
> My dad lost 40 pounds total.  Not that bad.  He has gained back 2 so
far....
>
> Another suggestion , if you don't already do this,  bring food from home.
> Just make sure you follow the guidelines for a neutrapenic patient.  We
are
> Italian and my dad loves homemade pasta and certain chicken dishes.  Home
> made soup is great on the thoat.  Any conveniences that can help him feel
"at
> home" will increase his attitude to be more positive.
>
> One thing I do when I am with my dad is that I do not dwell on his
illness,
> like my mom, instead I talk with him like I did prior to  this setback we
are
> in.  We talk about my kids, his  stocks, etc...
>
> No matter what the doctors says try to be upbeat!!  Never break down in
front
> of him.  I remember when the doctor told us that the first round of chemo
> didn't work. I had a big smile on my face and said to my dad and the
doctor,
> Okay, fine, what do we do next???  When I left the room I cried more than
I
> have ever cried in my life.  My faith in God has kept me close  to HIM and
I
> know that everything will be okay.  I cherish my time with my dad more
than
> ever.  Sometimes I just lay next to him and cuddle like I did when I was a
> little girl.  the other day I went to kiss him goodbye and he bent his
head
> down so I can kiss his bald spot (now all of his head is bald) just like I
> have done for the past 37 years, but this time our eyes met and we both
had
> tears.  Cherish your moments with him.
>
> I don't mean to lecture or sound so mushy - I guess I am in one of those
> moments....
> I have kept a sign posted in my car and on my fridge for the past 4 or 5
> years that says...  MAKE MEMORIES...   More than ever I live by those
words.
>
> Tonia
> ------------------------------------------------------------------------
> This is an automatically-generated notice.  If you'd like to be removed
> from the mailing list, please visit the Medicine-On-Line Discussion Forum
> at <http://www.meds.com/con_faq.html>, or send an email message to:
> majordomo@lists.meds.com
> with the subject line blank and the body of the message containing the
line:
> unsubscribe mol-cancer your-email-address
> where the phrase your-email-address is replaced with your actual email
> address.
> ------------------------------------------------------------------------
>

------------------------------------------------------------------------
This is an automatically-generated notice.  If you'd like to be removed
from the mailing list, please visit the Medicine-On-Line Discussion Forum
at <http://www.meds.com/con_faq.html>, or send an email message to:
majordomo@lists.meds.com
with the subject line blank and the body of the message containing the line:
unsubscribe mol-cancer your-email-address
where the phrase your-email-address is replaced with your actual email
address.
------------------------------------------------------------------------