Re: [MOL] Myelodysplasia and blood transfusions : info needed [00129] Medicine On Line


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Re: [MOL] Myelodysplasia and blood transfusions : info needed



I don't know any thing about these treatments.  My Dad has leukemia that
started as Myelodysplasia, I am now deeply regretting not asking more
questions sooner, pushing issues, and questioning EVERYTHING  that the Dr.s
have done.  IF only I had it to do all over!!!  But we deal with the now,
so, MY advice to you is what has been given to me and I cherish it
greatly!!!  Get a second opinion!!!  ASK questions about everything that
they give him and everything that they do!!!  It is YOUR Dad's life!!! I
wish I could be of more help!  Hang in there and will keep you and your Dad
in our prayers!!
Pauli




----- Original Message -----
From: "Steve Quayle" <mylodcontrol@hotmail.com>
To: <mol-cancer@lists.meds.com>
Sent: Tuesday, October 03, 2000 11:35 AM
Subject: [MOL] Myelodysplasia and blood transfusions : info needed


> Dear all,
> My Dad has Myelodysplasia and has been taking blood transfusions (every
> month or so) for some time now.  We have now been informed that a
dangerous
> level of iron has built up in his system.
>
> The medical people have suggested a treatment whereby my father is hooked
up
> to some kind of machine for approx 8 hours every day to circumvent this
> build up.
>
> Has anyone any information about this treatment?  In particular I would
like
> to know :
> How long it actually takes each day;
> Whether it must be done every day;
> Are there any (unpleasant) side effects or considerations;
> How long can this treatement be used before other complications set in.
>
> Thank you very much in advance for any info which you can contribute.
>
> Steve Quayle.
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