Re: [MOL] Gail [01625] Medicine On Line


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Re: [MOL] Gail



I believe it is neupogen

Peggy

beav76@uswest.net wrote:

> Hi Gail;
>     I believe their is a drug (neuopoin) that helps build white blood cells. Lillian
> knows more aboout that. I would think his dr. would put him on that. I will be
> praying for you and your husband as well....Your friend.....Beav
>
> John, O\, Donnell, , @dns.inet911.com wrote:
>
> > Judith,
> >
> > You are so right.  Anything that can make a person feel as bad as chemo does
> > must surely be working on the nasty cancer cells.  John is more tired today.
> > Went for his first blood count since chemo started.  His white blood cell count
> > is at 500, versues 5000.  So he is on some antibiotics and has been told to stay
> > away from crowds, stores, restaurants, and people in general.  Mercy!!  Still we
> > will plug away.  We are confident this is just a slip off the ladder.  I wish I
> > could take some of his illness and fight it for him and give him back his
> > health.  I watch him sleep, and he looks so peaceful.   We go back Friday to see
> > the doctor.  He'll get a good going over then.
> > I want to thank you all for listening to me rant on Sunday.  Sure do feel better
> > though.  You all are great, and know that there are prayers being said for all
> > of you.
> > Will talk later.
> > Gail
> >
> > Judith Tilton wrote:
> >
> > > Dear Gail,
> > > One hurdle accomplished....first chemo...yea!!  I will say prayers for you
> > > and John and your family.   One day at a time is all one can do.   I don't
> > > believe anything is written in stone!!  You are a good partner and it sounds
> > > like you are doing all the right things.   Eating is very important.  (I
> > > like the taste of the Balance drinks).   I resume a stronger dose of chemo
> > > tomorrow and am looking forward to it ambiguously.  Feel like something has
> > > been progressing in the the 6 weeks I've been without it....and then kinda
> > > of dread the downside of the chemo itself.  Hwever, I am going to approach
> > > it this time with the idea that if its making me feel disgusting, it must be
> > > doing something to those cancer cells.  I am just about finished with a
> > > little book, "CANCER.....THERE'S HOPE"  by Richard and Annette Bloch (of H&R
> > > Block fame) and it has served me with optimism.
> > > Again, you are in thoughts and prayers.
> > > Judith T.
> > > -----Original Message-----
> > > From: John O\ Donnell <" <brexton@america.net>"@dns.inet911.com>
> > > To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
> > > Date: Sunday, September 24, 2000 10:31 AM
> > > Subject: Re: [MOL] Gail
> > >
> > > >Hi,
> > > >
> > > >Well, we finished our first round of chemo on Friday.  So far so good.
> > > John is
> > > >extremely tired.  He hasn't had any nausea to speak of.  His appetite is
> > > awful.
> > > >Healthy he only weighs 130 lbs or so, but he is down to 101.  He knows he
> > > needs
> > > >to keep his strength up, but eating is not on the top of the list of things
> > > to
> > > >do.  I have been making those shakes that the body builders take.  About
> > > 2000
> > > >calories each.  I have been able to get one of those a day into him.
> > > Hopefully
> > > >that will keep him from losing any more weight.  The doc has aked that we
> > > not
> > > >take any herbs or stuff as it will interfere with the chemo.  I also asked
> > > at
> > > >our visit if the chemo does not get any positive results would he consider
> > > >alternative treatment and drugs.  He said yes.  .He said John is not a
> > > candidate
> > > >for clinical trials because the cancer has spread and not confined.  Is
> > > this to
> > > >be taken as set in stone?   So we'll just plug on and pray real hard.  Our
> > > >youngest son is getting married the end of October at DisneyWorld.  We have
> > > to
> > > >keep John healthy enough so we can attend.  Thanks for all your words of
> > > wisdom
> > > >and prayers.  We can certainly use them.
> > > >
> > > >Lillian wrote:
> > > >
> > > >> I believe not knowing is more frightening than knowing.  At least when
> > > one
> > > >> knows they can start researching and make good sound decisions with the
> > > >> doctor.  This is John's cancer, his body, not the doctors. Cancer takes
> > > >> control from us; so we have to gain as much control back as we can.  Will
> > > be
> > > >> praying and waiting to hear, good luck to you both, warmly, lillian
> > > >>
> > > >> We invite you to take a look at our Album.
> > > >> www.angelfire.com/sc/molangels/index.html
> > > >>
> > > >>   ( Very informational, good tips, Molers pictures, art work and much
> > > >> more....
> > > >>
> > > >> ----- Original Message -----
> > > >> From: "John O\ Donnell" <" <brexton@america.net>"@dns.inet911.com>
> > > >> To: <mol-cancer@lists.meds.com>
> > > >> Sent: Monday, September 18, 2000 11:54 AM
> > > >> Subject: Re: [MOL] undifferenciated adenocarcinoma/Reply to Gail !
> > > >>
> > > >> > Lillian,
> > > >> >
> > > >> > Thank you so much for all your information.  Our first visit with the
> > > >> doctor is
> > > >> > tomorrow.  I am compiling a list of questions to ask.  Course I am am
> > > very
> > > >> > scared and don't know that I'll like his answers, but at least we will
> > > >> know what
> > > >> > is available, what will help, what won't.  John has a very positive
> > > >> outlook, and
> > > >> > that helps me.  We won't stop trying till John says it's enough and
> > > time
> > > >> to
> > > >> > stop.  So we're off and fighting.  Talk to you tomorrow.  Again, thank
> > > >> you.
> > > >> > Gail
> > > >> >
> > > >> > Lillian wrote:
> > > >> >
> > > >> > > I have been away on vacation, just returned today and saw your
> > > message.
> > > >> > > Please know how very sorry I am to hear that the two of you must go
> > > >> through
> > > >> > > this.  The journey is not easy, it is like a roller coaster ride; but
> > > >> you do
> > > >> > > have many wonderful people from this site to lift you up and nudge
> > > you
> > > >> > > forward.  Been known to give a little kick in the seat of the pants
> > > >> > > sometimes; but I am sure we won't have to with you, right?  Here are
> > > >> some
> > > >> > > sites to look over that are very reliable.  The main thing right now
> > > is
> > > >> for
> > > >> > > your husband to start building up his immune system and to protect
> > > his
> > > >> > > liver.  Ask your doctor about this.  Make sure your husband doctors
> > > >> knows
> > > >> > > everything he takes, whether it be traditional or alternative.  Many
> > > use
> > > >> > > both to help in their fight.  Here's some good questions to ask your
> > > >> doctor
> > > >> > > also.  Warmly, lillian
> > > >> > >
> > > >> > > QUESTIONS TO ASK YOUR HEALTH CARE TEAM
> > > >> > >
> > > >> > > Communicating effectively with your health care team is crucial in
> > > being
> > > >> > > informed about the diagnosis of your disease.  Don't be afraid to ask
> > > >> > > questions or get a second opinion.  You may want to bring a friend, a
> > > >> > > caregiver, a relative with you to help you remember questions and
> > > >> answers
> > > >> > > and to make notes.  Or, you could bring a tape recorder with you
> > > during
> > > >> > > these consultations and sessions with your doctor.
> > > >> > >
> > > >> > > It is also important to get your healthcare team to treat you as a
> > > whole
> > > >> > > person, not just cells inside a body.  Let the team know about what
> > > you
> > > >> do
> > > >> > > for a living, your family situation, your future goals or plans.  Be
> > > >> sure to
> > > >> > > discuss what impact treatments may have on your life.
> > > >> > >
> > > >> > > There are many specific questions about certain diseases; however,
> > > below
> > > >> are
> > > >> > > listed suggestions for general questions you should ask at the time
> > > of
> > > >> your
> > > >> > > diagnosis and follow-up sessions, and questions about continuing
> > > care.
> > > >> > >
> > > >> >
> > > >>
> > > > --------------------------------------------------------------------------
> > > >> --
> > > >> > > ----
> > > >> > >
> > > >> > > QUESTIONS TO ASK ABOUT THE DIAGNOSIS
> > > >> > >
> > > >> > > What is my diagnosis?   What is the stage of the disease?  Is it
> > > >> localized?
> > > >> > > Is it extended around an organ?  Has it spread?  Is my condition
> > > >> genetic?
> > > >> > > Is the diagnosis uncertain?  What should I tell my family and
> > > children?
> > > >> > > Where can I go for counseling?
> > > >> > >
> > > >> > > QUESTIONS TO ASK ABOUT TREATMENT OPTIONS
> > > >> > >
> > > >> > > What are my treatment choices, which do you recommend for me and why?
> > > >> How,
> > > >> > > where, when and how often will treatment be given? What are my
> > > treatment
> > > >> > > choices, which do you recommend for me and why? How, where, when and
> > > how
> > > >> > > often will treatment be given? What is the goal of treatment-cure or
> > > con
> > > >> trol
> > > >> > > of my symptoms? Is the treatment experimental, controversial or
> > > risky?
> > > >> What
> > > >> > > are all of the possible side effects? Are there safe and effective
> > > >> > > treatments to control these side effects? How much time may I take to
> > > >> weigh
> > > >> > > my treatment options without harming my chances for recovery? What
> > > >> happens
> > > >> > > if I skip one or more treatment sessions due to side effects or
> > > >> scheduling
> > > >> > > problems? How will I know if the treatment is working? How long will
> > > >> > > treatment last? What are the names of the drugs I will take? May I
> > > drink
> > > >> > > alcoholic beverages? Are there any special foods I should or should
> > > not
> > > >> eat?
> > > >> > > Will I have to change my normal activities? Will I be able to have
> > > >> children
> > > >> > > after treatment? Are there options to preserve my fertility prior to
> > > >> > > treatment? What are some signs of infection that may occur during
> > > >> treatment?
> > > >> > > Would this treatment aggravate or intensify any medical condition I
> > > >> already
> > > >> > > have? Will there be interactions with other medications I am taking?
> > > >> Does my
> > > >> > > age influence the side effects? Since my mouth may be affected by
> > > >> treatment,
> > > >> > > should I see a dentist before starting treatment? Will the treatment
> > > >> affect
> > > >> > > me emotionally or sexually? What will happen if I decide to do
> > > nothing?
> > > >> Are
> > > >> > > there other options offered elsewhere? When treatments are completed,
> > > >> how
> > > >> > > often would I need to see you? Will other therapies be needed? Will
> > > the
> > > >> > > disease or treatment affect my ability to work or care for my family?
> > > >> Will
> > > >> > > my insurance or managed care plan cover all of the costs of
> > > treatment?
> > > >> > >
> > > >> > > Welcome to our wonderful forum.  We want you to know that we are here
> > > >> for
> > > >> > > you and will help in any way we can.  We will provide you with daily
> > > >> medical
> > > >> > > articles, latest treatment therapies and giving you links to
> > > information
> > > >> > > that will help you to better understand cancer. Knowledge gives you
> > > the
> > > >> > > power to make the very best decisions for yourself.
> > > >> > >
> > > >> > > Please know that we are not in the medical profession and all
> > > >> information is
> > > >> > > not intended to replace your physicians directions.   We do have
> > > >> combined
> > > >> > > year's of expierence with  cancer and opinions.  We are not endorsing
> > > >> any
> > > >> > > perticular product, treatment, medications, centers or doctors.
> > > >> > >
> > > >> > > We have our own web site  and album. Here the resources are numerous.
> > > >> From
> > > >> > > how to talk to your doctor, questions to ask about your treatment.
> > > >> > > Resources in cancer centers,  work related issues, benefits,
> > > financial
> > > >> and
> > > >> > > more.  Photo's and testimonials of survivors and photo's of those
> > > that
> > > >> have
> > > >> > > left a legacy to our forum.
> > > >> > > www.angelfire.com/sc/nolangels/index.html
> > > >> > >
> > > >> > > Some of the best support on line is provided through our many
> > > wonderful
> > > >> > > forum members.  Friendships are made, tips on their treatments are
> > > >> given.
> > > >> > > We cry together and yes, even laugh together.  It is the spirit of
> > > the
> > > >> > > members of this forum that makes this the best "Home away from Home".
> > > >> Here
> > > >> > > you can vent and be understood; as all on the forum are on the cancer
> > > >> > > journey.  Whether it be active, remission, survival, loved one's or
> > > >> > > caregivers.  Each plays an intricate roll in helping you.  To sign
> > > onto
> > > >> our
> > > >> > > forum please go to:  www.meds.com/forums/mol_con_signup.html
> > > >> > >
> > > >> > > Included are URL'S to help you gain the knowledge and give you the
> > > >> power.
> > > >> > > When you are at the NCI site  check into trials. Explore the URL's of
> > > >> > > alternative sites.
> > > >> > >
> > > >> > > If we may be of further help please just ask and won't you join us in
> > > >> chat?
> > > >> > > Warmly, your friend, lillian
> > > >> > >
> > > >> > > TRADITIONAL SITES
> > > >> > >
> > > >> > > National Cancer Institute http://rex.nci.nih.gov
> > > >> > >
> > > >> > > Univ of Penn http://cancer.med.upenn.edu
> > > >> > >
> > > >> > > Cancer Notes on the Net http://www.cancernews.com
> > > >> > >
> > > >> > > Medicine On Line http://www.meds.com
> > > >> > >
> > > >> > > MD Anderson http://www.mdanderson.org
> > > >> > >
> > > >> > > Mem. Sloan-Kettering http://www.mskcc.org
> > > >> > >
> > > >> > > ALTERNATIVE MEDICINE WEBSITES
> > > >> > >            International Bibliographic Information on Dietary
> > > >> > >            Supplements (IBIDS) Database (Office of Dietary
> > > >> > >            Supplements/NIH)
> > > >> > >                Searchable database of published, scientific
> > > literature
> > > >> on
> > > >> > >                dietary supplements, vitamins, minerals, and
> > > botanicals.
> > > >> > > IBIDS
> > > >> > >                contains over 300,000 citations and abstracts.
> > > Developed
> > > >> to
> > > >> > >                assist the public, health care providers, and
> > > researchers
> > > >> in
> > > >> > >                locating credible, scientific literature on dietary
> > > >> > > supplements.
> > > >> > >
> > > >> > >            NIH National Center for Complementary and Alternative
> > > >> > >           Medicine (NCCAM)
> > > >> > >                Conducts and supports research and training;
> > > disseminates
> > > >> > >                information on complementary and alternative medicine
> > > to
> > > >> > >                practitioners and the public.   NCCAM resources
> > > include
> > > >> the
> > > >> > >                CAM Citation Index (searchable & browsable database of
> > > >> more
> > > >> > >                than 180,000 citations from 1996-1998 extracted from
> > > >> > > MEDLINE);
> > > >> > >                and the NCAAM Clearinghouse (contains information on
> > > >> NCCAM
> > > >> > >                programs, conferences, and research activities).
> > > >> > >
> > > >> > >            Quackwatch
> > > >> > >            Stephen Barrett, MD
> > > >> > >                Guide to health fraud and "quackery."  Of particular
> > > note
> > > >> is
> > > >> > > the
> > > >> > >                section entitled, "Special Message for Cancer Patients
> > > >> > > Seeking
> > > >> > >                'Alternative' Treatments.
> > > >> > >
> > > >> > >            University of Texas Center for Alternative Medicine
> > > Research
> > > >> > >            in Cancer (UT-CAM)
> > > >> > >                Investigates the effectiveness of alternative and
> > > >> > > complementary
> > > >> > >                therapies used for cancer prevention and control.
> > > >> Website
> > > >> > >                contains evaluative information on various therapies,
> > > >> > > including
> > > >> > >                herbal & plant therapies (e.g., essiac), biologic &
> > > >> organic
> > > >> > >                therapies (e.g., cartilage), chemical & pharmacologic
> > > >> > > therapies
> > > >> > >                (e.g, antineoplastons, hydrazine sulfate) as well as
> > > >> special
> > > >> > >                regimes & integrated systems (e.g., Gerson,
> > > >> macrobiotics).
> > > >> > >                One of eleven centers established by the National
> > > Center
> > > >> for
> > > >> > >                Complementary and Alternative Medicine (NCCAM) at the
> > > >> > >                National Institutes of Health (NIH).
> > > >> > >
> > > >> > > We invite you to take a look at our Album.
> > > >> > > www.angelfire.com/sc/molangels/index.html
> > > >> > >
> > > >> > >   ( Very informational, good tips, Molers pictures, art work and much
> > > >> > > more....
> > > >> > >
> > > >> >
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