Hi Gail;
I believe their is a drug (neuopoin) that helps build white blood cells. Lillian
knows more aboout that. I would think his dr. would put him on that. I will be
praying for you and your husband as well....Your friend.....Beav
John, O\, Donnell, , @dns.inet911.com wrote:
> Judith,
>
> You are so right. Anything that can make a person feel as bad as chemo does
> must surely be working on the nasty cancer cells. John is more tired today.
> Went for his first blood count since chemo started. His white blood cell count
> is at 500, versues 5000. So he is on some antibiotics and has been told to stay
> away from crowds, stores, restaurants, and people in general. Mercy!! Still we
> will plug away. We are confident this is just a slip off the ladder. I wish I
> could take some of his illness and fight it for him and give him back his
> health. I watch him sleep, and he looks so peaceful. We go back Friday to see
> the doctor. He'll get a good going over then.
> I want to thank you all for listening to me rant on Sunday. Sure do feel better
> though. You all are great, and know that there are prayers being said for all
> of you.
> Will talk later.
> Gail
>
> Judith Tilton wrote:
>
> > Dear Gail,
> > One hurdle accomplished....first chemo...yea!! I will say prayers for you
> > and John and your family. One day at a time is all one can do. I don't
> > believe anything is written in stone!! You are a good partner and it sounds
> > like you are doing all the right things. Eating is very important. (I
> > like the taste of the Balance drinks). I resume a stronger dose of chemo
> > tomorrow and am looking forward to it ambiguously. Feel like something has
> > been progressing in the the 6 weeks I've been without it....and then kinda
> > of dread the downside of the chemo itself. Hwever, I am going to approach
> > it this time with the idea that if its making me feel disgusting, it must be
> > doing something to those cancer cells. I am just about finished with a
> > little book, "CANCER.....THERE'S HOPE" by Richard and Annette Bloch (of H&R
> > Block fame) and it has served me with optimism.
> > Again, you are in thoughts and prayers.
> > Judith T.
> > -----Original Message-----
> > From: John O\ Donnell <" <brexton@america.net>"@dns.inet911.com>
> > To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
> > Date: Sunday, September 24, 2000 10:31 AM
> > Subject: Re: [MOL] Gail
> >
> > >Hi,
> > >
> > >Well, we finished our first round of chemo on Friday. So far so good.
> > John is
> > >extremely tired. He hasn't had any nausea to speak of. His appetite is
> > awful.
> > >Healthy he only weighs 130 lbs or so, but he is down to 101. He knows he
> > needs
> > >to keep his strength up, but eating is not on the top of the list of things
> > to
> > >do. I have been making those shakes that the body builders take. About
> > 2000
> > >calories each. I have been able to get one of those a day into him.
> > Hopefully
> > >that will keep him from losing any more weight. The doc has aked that we
> > not
> > >take any herbs or stuff as it will interfere with the chemo. I also asked
> > at
> > >our visit if the chemo does not get any positive results would he consider
> > >alternative treatment and drugs. He said yes. .He said John is not a
> > candidate
> > >for clinical trials because the cancer has spread and not confined. Is
> > this to
> > >be taken as set in stone? So we'll just plug on and pray real hard. Our
> > >youngest son is getting married the end of October at DisneyWorld. We have
> > to
> > >keep John healthy enough so we can attend. Thanks for all your words of
> > wisdom
> > >and prayers. We can certainly use them.
> > >
> > >Lillian wrote:
> > >
> > >> I believe not knowing is more frightening than knowing. At least when
> > one
> > >> knows they can start researching and make good sound decisions with the
> > >> doctor. This is John's cancer, his body, not the doctors. Cancer takes
> > >> control from us; so we have to gain as much control back as we can. Will
> > be
> > >> praying and waiting to hear, good luck to you both, warmly, lillian
> > >>
> > >> We invite you to take a look at our Album.
> > >> www.angelfire.com/sc/molangels/index.html
> > >>
> > >> ( Very informational, good tips, Molers pictures, art work and much
> > >> more....
> > >>
> > >> ----- Original Message -----
> > >> From: "John O\ Donnell" <" <brexton@america.net>"@dns.inet911.com>
> > >> To: <mol-cancer@lists.meds.com>
> > >> Sent: Monday, September 18, 2000 11:54 AM
> > >> Subject: Re: [MOL] undifferenciated adenocarcinoma/Reply to Gail !
> > >>
> > >> > Lillian,
> > >> >
> > >> > Thank you so much for all your information. Our first visit with the
> > >> doctor is
> > >> > tomorrow. I am compiling a list of questions to ask. Course I am am
> > very
> > >> > scared and don't know that I'll like his answers, but at least we will
> > >> know what
> > >> > is available, what will help, what won't. John has a very positive
> > >> outlook, and
> > >> > that helps me. We won't stop trying till John says it's enough and
> > time
> > >> to
> > >> > stop. So we're off and fighting. Talk to you tomorrow. Again, thank
> > >> you.
> > >> > Gail
> > >> >
> > >> > Lillian wrote:
> > >> >
> > >> > > I have been away on vacation, just returned today and saw your
> > message.
> > >> > > Please know how very sorry I am to hear that the two of you must go
> > >> through
> > >> > > this. The journey is not easy, it is like a roller coaster ride; but
> > >> you do
> > >> > > have many wonderful people from this site to lift you up and nudge
> > you
> > >> > > forward. Been known to give a little kick in the seat of the pants
> > >> > > sometimes; but I am sure we won't have to with you, right? Here are
> > >> some
> > >> > > sites to look over that are very reliable. The main thing right now
> > is
> > >> for
> > >> > > your husband to start building up his immune system and to protect
> > his
> > >> > > liver. Ask your doctor about this. Make sure your husband doctors
> > >> knows
> > >> > > everything he takes, whether it be traditional or alternative. Many
> > use
> > >> > > both to help in their fight. Here's some good questions to ask your
> > >> doctor
> > >> > > also. Warmly, lillian
> > >> > >
> > >> > > QUESTIONS TO ASK YOUR HEALTH CARE TEAM
> > >> > >
> > >> > > Communicating effectively with your health care team is crucial in
> > being
> > >> > > informed about the diagnosis of your disease. Don't be afraid to ask
> > >> > > questions or get a second opinion. You may want to bring a friend, a
> > >> > > caregiver, a relative with you to help you remember questions and
> > >> answers
> > >> > > and to make notes. Or, you could bring a tape recorder with you
> > during
> > >> > > these consultations and sessions with your doctor.
> > >> > >
> > >> > > It is also important to get your healthcare team to treat you as a
> > whole
> > >> > > person, not just cells inside a body. Let the team know about what
> > you
> > >> do
> > >> > > for a living, your family situation, your future goals or plans. Be
> > >> sure to
> > >> > > discuss what impact treatments may have on your life.
> > >> > >
> > >> > > There are many specific questions about certain diseases; however,
> > below
> > >> are
> > >> > > listed suggestions for general questions you should ask at the time
> > of
> > >> your
> > >> > > diagnosis and follow-up sessions, and questions about continuing
> > care.
> > >> > >
> > >> >
> > >>
> > > --------------------------------------------------------------------------
> > >> --
> > >> > > ----
> > >> > >
> > >> > > QUESTIONS TO ASK ABOUT THE DIAGNOSIS
> > >> > >
> > >> > > What is my diagnosis? What is the stage of the disease? Is it
> > >> localized?
> > >> > > Is it extended around an organ? Has it spread? Is my condition
> > >> genetic?
> > >> > > Is the diagnosis uncertain? What should I tell my family and
> > children?
> > >> > > Where can I go for counseling?
> > >> > >
> > >> > > QUESTIONS TO ASK ABOUT TREATMENT OPTIONS
> > >> > >
> > >> > > What are my treatment choices, which do you recommend for me and why?
> > >> How,
> > >> > > where, when and how often will treatment be given? What are my
> > treatment
> > >> > > choices, which do you recommend for me and why? How, where, when and
> > how
> > >> > > often will treatment be given? What is the goal of treatment-cure or
> > con
> > >> trol
> > >> > > of my symptoms? Is the treatment experimental, controversial or
> > risky?
> > >> What
> > >> > > are all of the possible side effects? Are there safe and effective
> > >> > > treatments to control these side effects? How much time may I take to
> > >> weigh
> > >> > > my treatment options without harming my chances for recovery? What
> > >> happens
> > >> > > if I skip one or more treatment sessions due to side effects or
> > >> scheduling
> > >> > > problems? How will I know if the treatment is working? How long will
> > >> > > treatment last? What are the names of the drugs I will take? May I
> > drink
> > >> > > alcoholic beverages? Are there any special foods I should or should
> > not
> > >> eat?
> > >> > > Will I have to change my normal activities? Will I be able to have
> > >> children
> > >> > > after treatment? Are there options to preserve my fertility prior to
> > >> > > treatment? What are some signs of infection that may occur during
> > >> treatment?
> > >> > > Would this treatment aggravate or intensify any medical condition I
> > >> already
> > >> > > have? Will there be interactions with other medications I am taking?
> > >> Does my
> > >> > > age influence the side effects? Since my mouth may be affected by
> > >> treatment,
> > >> > > should I see a dentist before starting treatment? Will the treatment
> > >> affect
> > >> > > me emotionally or sexually? What will happen if I decide to do
> > nothing?
> > >> Are
> > >> > > there other options offered elsewhere? When treatments are completed,
> > >> how
> > >> > > often would I need to see you? Will other therapies be needed? Will
> > the
> > >> > > disease or treatment affect my ability to work or care for my family?
> > >> Will
> > >> > > my insurance or managed care plan cover all of the costs of
> > treatment?
> > >> > >
> > >> > > Welcome to our wonderful forum. We want you to know that we are here
> > >> for
> > >> > > you and will help in any way we can. We will provide you with daily
> > >> medical
> > >> > > articles, latest treatment therapies and giving you links to
> > information
> > >> > > that will help you to better understand cancer. Knowledge gives you
> > the
> > >> > > power to make the very best decisions for yourself.
> > >> > >
> > >> > > Please know that we are not in the medical profession and all
> > >> information is
> > >> > > not intended to replace your physicians directions. We do have
> > >> combined
> > >> > > year's of expierence with cancer and opinions. We are not endorsing
> > >> any
> > >> > > perticular product, treatment, medications, centers or doctors.
> > >> > >
> > >> > > We have our own web site and album. Here the resources are numerous.
> > >> From
> > >> > > how to talk to your doctor, questions to ask about your treatment.
> > >> > > Resources in cancer centers, work related issues, benefits,
> > financial
> > >> and
> > >> > > more. Photo's and testimonials of survivors and photo's of those
> > that
> > >> have
> > >> > > left a legacy to our forum.
> > >> > > www.angelfire.com/sc/nolangels/index.html
> > >> > >
> > >> > > Some of the best support on line is provided through our many
> > wonderful
> > >> > > forum members. Friendships are made, tips on their treatments are
> > >> given.
> > >> > > We cry together and yes, even laugh together. It is the spirit of
> > the
> > >> > > members of this forum that makes this the best "Home away from Home".
> > >> Here
> > >> > > you can vent and be understood; as all on the forum are on the cancer
> > >> > > journey. Whether it be active, remission, survival, loved one's or
> > >> > > caregivers. Each plays an intricate roll in helping you. To sign
> > onto
> > >> our
> > >> > > forum please go to: www.meds.com/forums/mol_con_signup.html
> > >> > >
> > >> > > Included are URL'S to help you gain the knowledge and give you the
> > >> power.
> > >> > > When you are at the NCI site check into trials. Explore the URL's of
> > >> > > alternative sites.
> > >> > >
> > >> > > If we may be of further help please just ask and won't you join us in
> > >> chat?
> > >> > > Warmly, your friend, lillian
> > >> > >
> > >> > > TRADITIONAL SITES
> > >> > >
> > >> > > National Cancer Institute http://rex.nci.nih.gov
> > >> > >
> > >> > > Univ of Penn http://cancer.med.upenn.edu
> > >> > >
> > >> > > Cancer Notes on the Net http://www.cancernews.com
> > >> > >
> > >> > > Medicine On Line http://www.meds.com
> > >> > >
> > >> > > MD Anderson http://www.mdanderson.org
> > >> > >
> > >> > > Mem. Sloan-Kettering http://www.mskcc.org
> > >> > >
> > >> > > ALTERNATIVE MEDICINE WEBSITES
> > >> > > International Bibliographic Information on Dietary
> > >> > > Supplements (IBIDS) Database (Office of Dietary
> > >> > > Supplements/NIH)
> > >> > > Searchable database of published, scientific
> > literature
> > >> on
> > >> > > dietary supplements, vitamins, minerals, and
> > botanicals.
> > >> > > IBIDS
> > >> > > contains over 300,000 citations and abstracts.
> > Developed
> > >> to
> > >> > > assist the public, health care providers, and
> > researchers
> > >> in
> > >> > > locating credible, scientific literature on dietary
> > >> > > supplements.
> > >> > >
> > >> > > NIH National Center for Complementary and Alternative
> > >> > > Medicine (NCCAM)
> > >> > > Conducts and supports research and training;
> > disseminates
> > >> > > information on complementary and alternative medicine
> > to
> > >> > > practitioners and the public. NCCAM resources
> > include
> > >> the
> > >> > > CAM Citation Index (searchable & browsable database of
> > >> more
> > >> > > than 180,000 citations from 1996-1998 extracted from
> > >> > > MEDLINE);
> > >> > > and the NCAAM Clearinghouse (contains information on
> > >> NCCAM
> > >> > > programs, conferences, and research activities).
> > >> > >
> > >> > > Quackwatch
> > >> > > Stephen Barrett, MD
> > >> > > Guide to health fraud and "quackery." Of particular
> > note
> > >> is
> > >> > > the
> > >> > > section entitled, "Special Message for Cancer Patients
> > >> > > Seeking
> > >> > > 'Alternative' Treatments.
> > >> > >
> > >> > > University of Texas Center for Alternative Medicine
> > Research
> > >> > > in Cancer (UT-CAM)
> > >> > > Investigates the effectiveness of alternative and
> > >> > > complementary
> > >> > > therapies used for cancer prevention and control.
> > >> Website
> > >> > > contains evaluative information on various therapies,
> > >> > > including
> > >> > > herbal & plant therapies (e.g., essiac), biologic &
> > >> organic
> > >> > > therapies (e.g., cartilage), chemical & pharmacologic
> > >> > > therapies
> > >> > > (e.g, antineoplastons, hydrazine sulfate) as well as
> > >> special
> > >> > > regimes & integrated systems (e.g., Gerson,
> > >> macrobiotics).
> > >> > > One of eleven centers established by the National
> > Center
> > >> for
> > >> > > Complementary and Alternative Medicine (NCCAM) at the
> > >> > > National Institutes of Health (NIH).
> > >> > >
> > >> > > We invite you to take a look at our Album.
> > >> > > www.angelfire.com/sc/molangels/index.html
> > >> > >
> > >> > > ( Very informational, good tips, Molers pictures, art work and much
> > >> > > more....
> > >> > >
> > >> >
> > > ------------------------------------------------------------------------
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