Re: [MOL] Gail [01457] Medicine On Line


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Re: [MOL] Gail



Dear Gail,
One hurdle accomplished....first chemo...yea!!  I will say prayers for you
and John and your family.   One day at a time is all one can do.   I don't
believe anything is written in stone!!  You are a good partner and it sounds
like you are doing all the right things.   Eating is very important.  (I
like the taste of the Balance drinks).   I resume a stronger dose of chemo
tomorrow and am looking forward to it ambiguously.  Feel like something has
been progressing in the the 6 weeks I've been without it....and then kinda
of dread the downside of the chemo itself.  Hwever, I am going to approach
it this time with the idea that if its making me feel disgusting, it must be
doing something to those cancer cells.  I am just about finished with a
little book, "CANCER.....THERE'S HOPE"  by Richard and Annette Bloch (of H&R
Block fame) and it has served me with optimism.
Again, you are in thoughts and prayers.
Judith T.
-----Original Message-----
From: John O\ Donnell <" <brexton@america.net>"@dns.inet911.com>
To: mol-cancer@lists.meds.com <mol-cancer@lists.meds.com>
Date: Sunday, September 24, 2000 10:31 AM
Subject: Re: [MOL] Gail


>Hi,
>
>Well, we finished our first round of chemo on Friday.  So far so good.
John is
>extremely tired.  He hasn't had any nausea to speak of.  His appetite is
awful.
>Healthy he only weighs 130 lbs or so, but he is down to 101.  He knows he
needs
>to keep his strength up, but eating is not on the top of the list of things
to
>do.  I have been making those shakes that the body builders take.  About
2000
>calories each.  I have been able to get one of those a day into him.
Hopefully
>that will keep him from losing any more weight.  The doc has aked that we
not
>take any herbs or stuff as it will interfere with the chemo.  I also asked
at
>our visit if the chemo does not get any positive results would he consider
>alternative treatment and drugs.  He said yes.  .He said John is not a
candidate
>for clinical trials because the cancer has spread and not confined.  Is
this to
>be taken as set in stone?   So we'll just plug on and pray real hard.  Our
>youngest son is getting married the end of October at DisneyWorld.  We have
to
>keep John healthy enough so we can attend.  Thanks for all your words of
wisdom
>and prayers.  We can certainly use them.
>
>Lillian wrote:
>
>> I believe not knowing is more frightening than knowing.  At least when
one
>> knows they can start researching and make good sound decisions with the
>> doctor.  This is John's cancer, his body, not the doctors. Cancer takes
>> control from us; so we have to gain as much control back as we can.  Will
be
>> praying and waiting to hear, good luck to you both, warmly, lillian
>>
>> We invite you to take a look at our Album.
>> www.angelfire.com/sc/molangels/index.html
>>
>>   ( Very informational, good tips, Molers pictures, art work and much
>> more....
>>
>> ----- Original Message -----
>> From: "John O\ Donnell" <" <brexton@america.net>"@dns.inet911.com>
>> To: <mol-cancer@lists.meds.com>
>> Sent: Monday, September 18, 2000 11:54 AM
>> Subject: Re: [MOL] undifferenciated adenocarcinoma/Reply to Gail !
>>
>> > Lillian,
>> >
>> > Thank you so much for all your information.  Our first visit with the
>> doctor is
>> > tomorrow.  I am compiling a list of questions to ask.  Course I am am
very
>> > scared and don't know that I'll like his answers, but at least we will
>> know what
>> > is available, what will help, what won't.  John has a very positive
>> outlook, and
>> > that helps me.  We won't stop trying till John says it's enough and
time
>> to
>> > stop.  So we're off and fighting.  Talk to you tomorrow.  Again, thank
>> you.
>> > Gail
>> >
>> > Lillian wrote:
>> >
>> > > I have been away on vacation, just returned today and saw your
message.
>> > > Please know how very sorry I am to hear that the two of you must go
>> through
>> > > this.  The journey is not easy, it is like a roller coaster ride; but
>> you do
>> > > have many wonderful people from this site to lift you up and nudge
you
>> > > forward.  Been known to give a little kick in the seat of the pants
>> > > sometimes; but I am sure we won't have to with you, right?  Here are
>> some
>> > > sites to look over that are very reliable.  The main thing right now
is
>> for
>> > > your husband to start building up his immune system and to protect
his
>> > > liver.  Ask your doctor about this.  Make sure your husband doctors
>> knows
>> > > everything he takes, whether it be traditional or alternative.  Many
use
>> > > both to help in their fight.  Here's some good questions to ask your
>> doctor
>> > > also.  Warmly, lillian
>> > >
>> > > QUESTIONS TO ASK YOUR HEALTH CARE TEAM
>> > >
>> > > Communicating effectively with your health care team is crucial in
being
>> > > informed about the diagnosis of your disease.  Don't be afraid to ask
>> > > questions or get a second opinion.  You may want to bring a friend, a
>> > > caregiver, a relative with you to help you remember questions and
>> answers
>> > > and to make notes.  Or, you could bring a tape recorder with you
during
>> > > these consultations and sessions with your doctor.
>> > >
>> > > It is also important to get your healthcare team to treat you as a
whole
>> > > person, not just cells inside a body.  Let the team know about what
you
>> do
>> > > for a living, your family situation, your future goals or plans.  Be
>> sure to
>> > > discuss what impact treatments may have on your life.
>> > >
>> > > There are many specific questions about certain diseases; however,
below
>> are
>> > > listed suggestions for general questions you should ask at the time
of
>> your
>> > > diagnosis and follow-up sessions, and questions about continuing
care.
>> > >
>> >
>>
> --------------------------------------------------------------------------
>> --
>> > > ----
>> > >
>> > > QUESTIONS TO ASK ABOUT THE DIAGNOSIS
>> > >
>> > > What is my diagnosis?   What is the stage of the disease?  Is it
>> localized?
>> > > Is it extended around an organ?  Has it spread?  Is my condition
>> genetic?
>> > > Is the diagnosis uncertain?  What should I tell my family and
children?
>> > > Where can I go for counseling?
>> > >
>> > > QUESTIONS TO ASK ABOUT TREATMENT OPTIONS
>> > >
>> > > What are my treatment choices, which do you recommend for me and why?
>> How,
>> > > where, when and how often will treatment be given? What are my
treatment
>> > > choices, which do you recommend for me and why? How, where, when and
how
>> > > often will treatment be given? What is the goal of treatment-cure or
con
>> trol
>> > > of my symptoms? Is the treatment experimental, controversial or
risky?
>> What
>> > > are all of the possible side effects? Are there safe and effective
>> > > treatments to control these side effects? How much time may I take to
>> weigh
>> > > my treatment options without harming my chances for recovery? What
>> happens
>> > > if I skip one or more treatment sessions due to side effects or
>> scheduling
>> > > problems? How will I know if the treatment is working? How long will
>> > > treatment last? What are the names of the drugs I will take? May I
drink
>> > > alcoholic beverages? Are there any special foods I should or should
not
>> eat?
>> > > Will I have to change my normal activities? Will I be able to have
>> children
>> > > after treatment? Are there options to preserve my fertility prior to
>> > > treatment? What are some signs of infection that may occur during
>> treatment?
>> > > Would this treatment aggravate or intensify any medical condition I
>> already
>> > > have? Will there be interactions with other medications I am taking?
>> Does my
>> > > age influence the side effects? Since my mouth may be affected by
>> treatment,
>> > > should I see a dentist before starting treatment? Will the treatment
>> affect
>> > > me emotionally or sexually? What will happen if I decide to do
nothing?
>> Are
>> > > there other options offered elsewhere? When treatments are completed,
>> how
>> > > often would I need to see you? Will other therapies be needed? Will
the
>> > > disease or treatment affect my ability to work or care for my family?
>> Will
>> > > my insurance or managed care plan cover all of the costs of
treatment?
>> > >
>> > > Welcome to our wonderful forum.  We want you to know that we are here
>> for
>> > > you and will help in any way we can.  We will provide you with daily
>> medical
>> > > articles, latest treatment therapies and giving you links to
information
>> > > that will help you to better understand cancer. Knowledge gives you
the
>> > > power to make the very best decisions for yourself.
>> > >
>> > > Please know that we are not in the medical profession and all
>> information is
>> > > not intended to replace your physicians directions.   We do have
>> combined
>> > > year's of expierence with  cancer and opinions.  We are not endorsing
>> any
>> > > perticular product, treatment, medications, centers or doctors.
>> > >
>> > > We have our own web site  and album. Here the resources are numerous.
>> From
>> > > how to talk to your doctor, questions to ask about your treatment.
>> > > Resources in cancer centers,  work related issues, benefits,
financial
>> and
>> > > more.  Photo's and testimonials of survivors and photo's of those
that
>> have
>> > > left a legacy to our forum.
>> > > www.angelfire.com/sc/nolangels/index.html
>> > >
>> > > Some of the best support on line is provided through our many
wonderful
>> > > forum members.  Friendships are made, tips on their treatments are
>> given.
>> > > We cry together and yes, even laugh together.  It is the spirit of
the
>> > > members of this forum that makes this the best "Home away from Home".
>> Here
>> > > you can vent and be understood; as all on the forum are on the cancer
>> > > journey.  Whether it be active, remission, survival, loved one's or
>> > > caregivers.  Each plays an intricate roll in helping you.  To sign
onto
>> our
>> > > forum please go to:  www.meds.com/forums/mol_con_signup.html
>> > >
>> > > Included are URL'S to help you gain the knowledge and give you the
>> power.
>> > > When you are at the NCI site  check into trials. Explore the URL's of
>> > > alternative sites.
>> > >
>> > > If we may be of further help please just ask and won't you join us in
>> chat?
>> > > Warmly, your friend, lillian
>> > >
>> > > TRADITIONAL SITES
>> > >
>> > > National Cancer Institute http://rex.nci.nih.gov
>> > >
>> > > Univ of Penn http://cancer.med.upenn.edu
>> > >
>> > > Cancer Notes on the Net http://www.cancernews.com
>> > >
>> > > Medicine On Line http://www.meds.com
>> > >
>> > > MD Anderson http://www.mdanderson.org
>> > >
>> > > Mem. Sloan-Kettering http://www.mskcc.org
>> > >
>> > > ALTERNATIVE MEDICINE WEBSITES
>> > >            International Bibliographic Information on Dietary
>> > >            Supplements (IBIDS) Database (Office of Dietary
>> > >            Supplements/NIH)
>> > >                Searchable database of published, scientific
literature
>> on
>> > >                dietary supplements, vitamins, minerals, and
botanicals.
>> > > IBIDS
>> > >                contains over 300,000 citations and abstracts.
Developed
>> to
>> > >                assist the public, health care providers, and
researchers
>> in
>> > >                locating credible, scientific literature on dietary
>> > > supplements.
>> > >
>> > >            NIH National Center for Complementary and Alternative
>> > >           Medicine (NCCAM)
>> > >                Conducts and supports research and training;
disseminates
>> > >                information on complementary and alternative medicine
to
>> > >                practitioners and the public.   NCCAM resources
include
>> the
>> > >                CAM Citation Index (searchable & browsable database of
>> more
>> > >                than 180,000 citations from 1996-1998 extracted from
>> > > MEDLINE);
>> > >                and the NCAAM Clearinghouse (contains information on
>> NCCAM
>> > >                programs, conferences, and research activities).
>> > >
>> > >            Quackwatch
>> > >            Stephen Barrett, MD
>> > >                Guide to health fraud and "quackery."  Of particular
note
>> is
>> > > the
>> > >                section entitled, "Special Message for Cancer Patients
>> > > Seeking
>> > >                'Alternative' Treatments.
>> > >
>> > >            University of Texas Center for Alternative Medicine
Research
>> > >            in Cancer (UT-CAM)
>> > >                Investigates the effectiveness of alternative and
>> > > complementary
>> > >                therapies used for cancer prevention and control.
>> Website
>> > >                contains evaluative information on various therapies,
>> > > including
>> > >                herbal & plant therapies (e.g., essiac), biologic &
>> organic
>> > >                therapies (e.g., cartilage), chemical & pharmacologic
>> > > therapies
>> > >                (e.g, antineoplastons, hydrazine sulfate) as well as
>> special
>> > >                regimes & integrated systems (e.g., Gerson,
>> macrobiotics).
>> > >                One of eleven centers established by the National
Center
>> for
>> > >                Complementary and Alternative Medicine (NCCAM) at the
>> > >                National Institutes of Health (NIH).
>> > >
>> > > We invite you to take a look at our Album.
>> > > www.angelfire.com/sc/molangels/index.html
>> > >
>> > >   ( Very informational, good tips, Molers pictures, art work and much
>> > > more....
>> > >
>> >
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