It's nice of you to ask Brenda and thankfully she's doing fine. She (my
sister) hopes to be released from hospital today or tomorrow to finish her
recovery at home.
All the best.
>From: Brenda Anderson <firstname.lastname@example.org>
>Subject: Re: [MOL] clinical trials, etc.
>Date: Wed, 13 Sep 2000 06:47:15 -0700 (PDT)
>Hi, Bridget, Thanks for your help; hope your sister
>is doing okay.
>--- Bridget Rambeau <email@example.com> wrote:
> > Hi Brenda. sORRY i DIDN'T GET THIS TO YOU YESTERDAY
> > BUT MY YOUNGER SISTER
> > was unexpectedly operated on for kidney stones and I
> > was at the hospital to
> > be with her as her husband couldn't be reached in
> > time. She was scared to
> > death so I rambled on until she was begging them to
> > take her in. LOL
> > Anyway, there are some sites below on the drug
> > leucovorin and they seem to
> > support what your doc has told you. Apparently it
> > has been in use for some
> > time and its purpose is to extend the live span of
> > the 5FU, which only lasts
> > for a matter of minutes on its own. Also, it appears
> > to have little side
> > effect on its own but can increase the side effects
> > of 5FU significantly.
> > One thing to check with your onc is the dosage he's
> > planning to use.
> > According to studies, a low dose is as effective as
> > a high dose.
> > I'll send this along for now and keep on looking.
> > Hope it helps.
> > Your friend,
> > Bridget
> > http://www.cancer-chemotherapy.com/leucvrn.htm
> > http://www.immunex.com/patient/pa02d.html
> > >From: Brenda Anderson <firstname.lastname@example.org>
> > >Reply-To: email@example.com
> > >To: firstname.lastname@example.org
> > >Subject: Re: [MOL] clinical trials, etc.
> > >Date: Fri, 8 Sep 2000 12:44:37 -0700 (PDT)
> > >
> > >Hi, Bridget,
> > >Wow, how nice you live in Canada! I have always
> > >wanted to visit there. My husband went somewhere
> > up
> > >there on a hunting trip (I believe it was in
> > Ontario,
> > >though).
> > >I don't mind you asking ANY question. The main
> > reason
> > >I joined this list is to share information and
> > >support, and you can't do that too well if you
> > don't
> > >know the situation.
> > >When Charles had surgery, they removed 40% of his
> > >liver, removed his gallbladder, did a resection
> > >connecting the bile ducts to the jejunum (part of
> > the
> > >stomach), and put in a biliary catheter, which we
> > have
> > >to flush 2 x daily with saline solution. It was an
> > >extensive surgery (12 hours). The day we left the
> > >hospital, the doctor who did the surgery told us
> > that
> > >all the path reports were negative for cancer.
> > >On our first visit to the onc, she said she
> > understood
> > >that there was cancer in one place and she asked us
> > if
> > >that was our understanding. We told her "no" and
> > she
> > >said she would contact the doctor who did the
> > surgery.
> > >Today, she told us she did talk with our doctor,
> > and
> > >the way she put it was "after they sent that
> > specimen
> > >to pathology, the doctor did some more cutting to
> > get
> > >all of it." I'm very skeptical about everything
> > >anyway, so I told her we would like a copy of what
> > our
> > >doctor had sent her, which she readily agreed to.
> > >However, when I got to work this afternoon, I was
> > >looking over it, and the way the pages are numbered
> > at
> > >the top, there are 2 pages missing. So I guess
> > I'll
> > >contact our doctor and request ALL pages of the
> > >report.
> > >I don't believe anything till I see it in writing
> > (and
> > >even then I'm not sure). Anyway, the onc wants to
> > do
> > >5FU once a week for 6 weeks, rest 2 weeks, then
> > again
> > >for 6 weeks, rest 2 weeks, then chemo and radiation
> > >together 5 times a week for 4 to 5 weeks, and then
> > as
> > >a follow up, 2 more rounds of the 5FU. They also
> > want
> > >to give him something called "leucovorin" which
> > they
> > >said was not chemo, but some type of protecting
> > agent.
> > > I haven't had time yet to do any research on this
> > one
> > >and I haven't heard of it. But I have heard some
> > bad
> > >things about 5FU (aren't all of the drugs bad!!!).
> > >Anyway, Charles told her he did not want to start
> > >treatments until after the first of November
> > because
> > >we have several things going on next month and he
> > >wants to be able to enjoy them (his son is getting
> > >married 10/14 and he is the best man, of course).
> > >Anyway, as of now, we're scheduled to start the
> > >treatments on November 7th if we decide to go ahead
> > >with it.
> > >Sorry, this is so long, but I don't know how to
> > make
> > >it any shorter and give you the info. Look forward
> > to
> > >hearing from you.
> > >Your friend,
> > >Brenda
> > >
> > >--- Bridget Rambeau <email@example.com> wrote:
> > > > Hi Brenda. Good luck with your visit tomorrow.
> > I'd
> > > > be interested in what she
> > > > recommends if you don't mind sharing the info.
> > > > I don't live in the States, I'm a good, ole
> > Canadian
> > > > and reside in Halifax,
> > > > Nova Scotia. Are you familiar with this area?
> > it's
> > > > on the east coast, (about
> > > > 5 hrs from Maine). I was in S.C. earlier this
> > year
> > > > (visiting our dear
> > > > Lillian) and we went to Savannah while I was
> > there.
> > > > I fell so in love with
> > > > the area that Lillian and her crew had to
> > > > practically have me physically
> > > > removed as roots were starting to sprout out all
> > > > over my body! LOL
> > > > Look forward to hearing from you.
> > > > Your friend,
> > > > Bridget
> > > > PS: Look out Lillian, I know where you live...
> > > >
> > > > >From: Brenda Anderson <firstname.lastname@example.org>
> > > > >Reply-To: email@example.com
> > > > >To: firstname.lastname@example.org
> > > > >Subject: Re: [MOL] clinical trials, etc.
> > > > >Date: Thu, 7 Sep 2000 13:16:19 -0700 (PDT)
> > > > >
> > > > >Bridget,
> > > > >That's the same thing our doctor is telling us
> > > > about
> > > > >the chemo. As far as pain, Charles hasn't had
> > any
> > > > >pain from the disease. He was uncomfortable
> > for
> > > > >awhile after his surgery, but even then, he
> > didn't
> > > > >have a lot of pain. We're going for our second
> > > > visit
> > > > >to the onc tomorrow. We will find out what she
> > is
> > > > >suggesting as far as adjuvant therapy. What
> > state
> > > > do
> > > > >you live in? We're in Georgia.
> > > > >Your friend,
> > > > >Brenda
> > > > >
> > > > >--- Bridget Rambeau <email@example.com>
> > wrote:
> > > > > > Hi guys. I've never heard of bile duct
> > cancer
> > > > being
> > > > > > referred to as primary
> > > > > > liver cancer and was wondering where you got
> > > > that
> > > > > > information.
> > > > > > Yes I did have the surgery in Aug.'98.
> > > > > > Almost all sources I researched indicated
> > > > radiation
> > > > > > as an effective adjuvent
> > > > > > treatment. As far as the chemo, the way my
> > > > doctor
> > > > > > described it to me was
> > > > > > that it was intended to kill any stray
> > cancer
> > > > cells
> > > > > > that may have drifted to
> > > > > > an area outside the primary site where the
> > > > radiation
> > > > > > was being done. Because
> > > > > > the drug (fu5) and the dosage were fairly
> > mild
>=== message truncated ===
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