I don't mean to diminish what you have accomplished. I
have read through quite a few of the messages that are
going through this site - - If I had had more time to
deal with what is happening I would appreaciate this
site. I have been looking for a web site pertaining
to
Waldenstrom's Macroglobulinemia, the info I have found
says that is is very rare. My dad's dr won't tell us
how much time we have left. This disease, from the
info I find hits
--- Donna Boomsma <horselover64_2000@yahoo.com> wrote:
> I was looking for any information on Waldenstrom's
> Macroglobulinemia & any related cancer. I needed
> information on this disease quickly. I am trying to
> clean up my father's home & deal with family. I
> don't
> have time to read through 100 messages trying to
> find
> one that pertains to what I'm going through. I
> would
> have loved to have found this site when we found out
> what was happening with my dad. Unfortunately when
> we
> found out the disease & then this web site - I got
> home from the hospital & found 548 messages on my
> e-mail. Is there a way to send only messages that
> pertain to a question, or will I receive all of the
> messages? Our family is spread out through the US
> so
> we use e-mail to save on costs, especially at this
> time in our lives.
>
> --- Lillian <firefly@islc.net> wrote:
> > Welcome to our wonderful forum. We want you to
> know
> > that we are here for
> > you and will help in any way we can. We will
> > provide you with daily medical
> > articles, latest treatment therapies and giving
> you
> > links to information
> > that will help you to better understand cancer.
> > Knowledge gives you the
> > power to make the very best decisions for
> yourself.
> >
> > Please know that we are not in the medical
> > profession and all information is
> > not intended to replace your physicians
> directions.
> > We do have combined
> > year's of expierence with cancer and opinions.
> We
> > are not endorsing any
> > perticular product, treatment, medications,
> centers
> > or doctors.
> >
> > We have our own web site and album. Here the
> > resources are numerous. From
> > how to talk to your doctor, questions to ask about
> > your treatment.
> > Resources in cancer centers, work related issues,
> > benefits, financial and
> > more. Photo's and testimonials of survivors and
> > photo's of those that have
> > left a legacy to our forum.
> > www.angelfire.com/sc/nolangels/index.html
> >
> > Some of the best support on line is provided
> through
> > our many wonderful
> > forum members. Friendships are made, tips on
> their
> > treatments are given.
> > We cry together and yes, even laugh together. It
> is
> > the spirit of the
> > members of this forum that makes this the best
> "Home
> > away from Home". Here
> > you can vent and be understood; as all on the
> forum
> > are on the cancer
> > journey. Whether it be active, remission,
> survival,
> > loved one's or
> > caregivers. Each plays an intricate roll in
> helping
> > you. To sign onto our
> > forum please go to:
> > www.meds.com/forums/mol_con_signup.html
> >
> > Included are URL'S to help you gain the knowledge
> > and give you the power.
> > When you are at the NCI site check into trials.
> > Explore the URL's of
> > alternative sites.
> >
> > If we may be of further help please just ask and
> > won't you join us in chat?
> > Warmly, your friend, lillian
> >
> > TRADITIONAL SITES
> >
> > National Cancer Institute http://rex.nci.nih.gov
> >
> > Univ of Penn http://cancer.med.upenn.edu
> >
> > Cancer Notes on the Net http://www.cancernews.com
> >
> > Medicine On Line http://www.meds.com
> >
> > MD Anderson http://www.mdanderson.org
> >
> > Mem. Sloan-Kettering http://www.mskcc.org
> >
> >
> >
> > ALTERNATIVE MEDICINE WEBSITES
> > International Bibliographic Information
> > on Dietary
> > Supplements (IBIDS) Database (Office of
> > Dietary
> > Supplements/NIH)
> > Searchable database of published,
> > scientific literature on
> > dietary supplements, vitamins,
> > minerals, and botanicals.
> > IBIDS
> > contains over 300,000 citations and
> > abstracts. Developed to
> > assist the public, health care
> > providers, and researchers in
> > locating credible, scientific
> > literature on dietary
> > supplements.
> >
> > NIH National Center for Complementary
> and
> > Alternative
> > Medicine (NCCAM)
> > Conducts and supports research and
> > training; disseminates
> > information on complementary and
> > alternative medicine to
> > practitioners and the public.
> NCCAM
> > resources include the
> > CAM Citation Index (searchable &
> > browsable database of more
> > than 180,000 citations from
> 1996-1998
> > extracted from
> > MEDLINE);
> > and the NCAAM Clearinghouse
> (contains
> > information on NCCAM
> > programs, conferences, and research
> > activities).
> >
> > Quackwatch
> > Stephen Barrett, MD
> > Guide to health fraud and
> "quackery."
> > Of particular note is
> > the
> > section entitled, "Special Message
> > for Cancer Patients
> > Seeking
> > 'Alternative' Treatments.
> >
> > University of Texas Center for
> > Alternative Medicine Research
> > in Cancer (UT-CAM)
> > Investigates the effectiveness of
> > alternative and
> > complementary
> > therapies used for cancer
> prevention
> > and control. Website
> > contains evaluative information on
> > various therapies,
> > including
> > herbal & plant therapies (e.g.,
> > essiac), biologic & organic
> > therapies (e.g., cartilage),
> chemical
> > & pharmacologic
> > therapies
> > (e.g, antineoplastons, hydrazine
> > sulfate) as well as special
> > regimes & integrated systems (e.g.,
> > Gerson, macrobiotics).
> > One of eleven centers established
> by
> > the National Center for
> > Complementary and Alternative
> > Medicine (NCCAM) at the
> > National Institutes of Health
> (NIH).
> >
> >
> > We invite you to take a look at our Album.
> > www.angelfire.com/sc/molangels/index.html
> >
> > ( Very informational, good tips, Molers
> pictures,
> > art work and much
> > more....
> >
> >
>
=== message truncated ===
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