Is the surgery your husband had called the Whipple Surgery???? Thanks
lillian
We invite you to take a look at our Album.
www.angelfire.com/sc/molangels/index.html
( Very informational, good tips, Molers pictures, art work and much
more....
----- Original Message -----
From: "Brenda Anderson" <banderson0511@yahoo.com>
To: <mol-cancer@lists.meds.com>
Sent: Friday, September 08, 2000 12:44 PM
Subject: Re: [MOL] clinical trials, etc.
> Hi, Bridget,
> Wow, how nice you live in Canada! I have always
> wanted to visit there. My husband went somewhere up
> there on a hunting trip (I believe it was in Ontario,
> though).
> I don't mind you asking ANY question. The main reason
> I joined this list is to share information and
> support, and you can't do that too well if you don't
> know the situation.
> When Charles had surgery, they removed 40% of his
> liver, removed his gallbladder, did a resection
> connecting the bile ducts to the jejunum (part of the
> stomach), and put in a biliary catheter, which we have
> to flush 2 x daily with saline solution. It was an
> extensive surgery (12 hours). The day we left the
> hospital, the doctor who did the surgery told us that
> all the path reports were negative for cancer.
> On our first visit to the onc, she said she understood
> that there was cancer in one place and she asked us if
> that was our understanding. We told her "no" and she
> said she would contact the doctor who did the surgery.
> Today, she told us she did talk with our doctor, and
> the way she put it was "after they sent that specimen
> to pathology, the doctor did some more cutting to get
> all of it." I'm very skeptical about everything
> anyway, so I told her we would like a copy of what our
> doctor had sent her, which she readily agreed to.
> However, when I got to work this afternoon, I was
> looking over it, and the way the pages are numbered at
> the top, there are 2 pages missing. So I guess I'll
> contact our doctor and request ALL pages of the
> report.
> I don't believe anything till I see it in writing (and
> even then I'm not sure). Anyway, the onc wants to do
> 5FU once a week for 6 weeks, rest 2 weeks, then again
> for 6 weeks, rest 2 weeks, then chemo and radiation
> together 5 times a week for 4 to 5 weeks, and then as
> a follow up, 2 more rounds of the 5FU. They also want
> to give him something called "leucovorin" which they
> said was not chemo, but some type of protecting agent.
> I haven't had time yet to do any research on this one
> and I haven't heard of it. But I have heard some bad
> things about 5FU (aren't all of the drugs bad!!!).
> Anyway, Charles told her he did not want to start
> treatments until after the first of November because
> we have several things going on next month and he
> wants to be able to enjoy them (his son is getting
> married 10/14 and he is the best man, of course).
> Anyway, as of now, we're scheduled to start the
> treatments on November 7th if we decide to go ahead
> with it.
> Sorry, this is so long, but I don't know how to make
> it any shorter and give you the info. Look forward to
> hearing from you.
> Your friend,
> Brenda
>
> --- Bridget Rambeau <bsbridget@hotmail.com> wrote:
> > Hi Brenda. Good luck with your visit tomorrow. I'd
> > be interested in what she
> > recommends if you don't mind sharing the info.
> > I don't live in the States, I'm a good, ole Canadian
> > and reside in Halifax,
> > Nova Scotia. Are you familiar with this area? it's
> > on the east coast, (about
> > 5 hrs from Maine). I was in S.C. earlier this year
> > (visiting our dear
> > Lillian) and we went to Savannah while I was there.
> > I fell so in love with
> > the area that Lillian and her crew had to
> > practically have me physically
> > removed as roots were starting to sprout out all
> > over my body! LOL
> > Look forward to hearing from you.
> > Your friend,
> > Bridget
> > PS: Look out Lillian, I know where you live...
> >
> > >From: Brenda Anderson <banderson0511@yahoo.com>
> > >Reply-To: mol-cancer@lists.meds.com
> > >To: mol-cancer@lists.meds.com
> > >Subject: Re: [MOL] clinical trials, etc.
> > >Date: Thu, 7 Sep 2000 13:16:19 -0700 (PDT)
> > >
> > >Bridget,
> > >That's the same thing our doctor is telling us
> > about
> > >the chemo. As far as pain, Charles hasn't had any
> > >pain from the disease. He was uncomfortable for
> > >awhile after his surgery, but even then, he didn't
> > >have a lot of pain. We're going for our second
> > visit
> > >to the onc tomorrow. We will find out what she is
> > >suggesting as far as adjuvant therapy. What state
> > do
> > >you live in? We're in Georgia.
> > >Your friend,
> > >Brenda
> > >
> > >--- Bridget Rambeau <bsbridget@hotmail.com> wrote:
> > > > Hi guys. I've never heard of bile duct cancer
> > being
> > > > referred to as primary
> > > > liver cancer and was wondering where you got
> > that
> > > > information.
> > > > Yes I did have the surgery in Aug.'98.
> > > > Almost all sources I researched indicated
> > radiation
> > > > as an effective adjuvent
> > > > treatment. As far as the chemo, the way my
> > doctor
> > > > described it to me was
> > > > that it was intended to kill any stray cancer
> > cells
> > > > that may have drifted to
> > > > an area outside the primary site where the
> > radiation
> > > > was being done. Because
> > > > the drug (fu5) and the dosage were fairly mild
> > with
> > > > minimal side effects, I
> > > > decided better safe than sorry. One of the
> > problems
> > > > is the lack of many
> > > > clinical trials as it is such a rare form of
> > cancer.
> > > > So a lot of what they
> > > > don't know is because it's never been tested in
> > > > trials.
> > > > Now it's my turn. May I ask a question of you
> > that's
> > > > somewhat unrelated.
> > > > Following the surgery and up to this point, was
> > pain
> > > > (chronic) ever a
> > > > problem? Thanks.
> > > > Hope this helps some, I know how hard these
> > > > decisions are to make.
> > > > Your friend,
> > > > Bridget
> > > >
> > > >
> > > > >From: Brenda Anderson <banderson0511@yahoo.com>
> > > > >Reply-To: mol-cancer@lists.meds.com
> > > > >To: mol-cancer@lists.meds.com
> > > > >Subject: [MOL] clinical trials, etc.
> > > > >Date: Wed, 6 Sep 2000 07:19:08 -0700 (PDT)
> > > > >
> > > > >Dusti, thanks for your input. I have done some
> > > > >checking on clinical trials but the only ones
> > I've
> > > > >located are for people who haven't had surgery
> > to
> > > > >remove their tumors. Since it was bile duct
> > > > cancer,
> > > > >that means it is primary liver cancer, so why
> > chemo
> > > > to
> > > > >the whole body? I've done a lot of research
> > and
> > > > what
> > > > >I've found says radiation is a treatment, but
> > that
> > > > >chemo has not been shown to be effective.
> > Perhaps
> > > > >Bridget could shed some more light on this.
> > > > >
> > > > >Also, Bridget, I was wondering if you had
> > surgery?
> > > > >
> > > > >Your new friend,
> > > > >Brenda
> > > > >
> > > > >
> > > >
> > >__________________________________________________
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