Thank you for the information you shared with me.
Never even considered non-metallic utinsels to help with the salt - makes sense.
He will drink the Ensure or Boost but not much of it and won't let us make it
into shakes. No interest in food, liquid or solid.
He has Stage 3 Nasopharangeal Carcinoma.
Treatments include radiation 5x week for 7 weeks and chemo. The chemo schedule
is Cisplatinum on days 1, 22, 43 of radiation. Following radiation is
Cisplatinum day 1 and 5FU days 1-5 on the pump - this series for 3
months.
The nurses said 5FU is nothing like the
Cisplatinum, not near as bad. The research I've done doesn't look one bit
better than the Cisplatinum. Any info on 5FU and what to expect? Dad
is also on Ethyol (Amifostine) daily before radiation, to protect salivary
glands and taste buds, then in mega doses on chemo days to protect kidneys and
other. Getting started on the ethyol was a ride in itself...
Dad just had the second Cisplatinum. Have so
far still to go. He is an amazing man, so strong and wonderful.
Kills your soul to see this and not be able to help. You guys are great
and to see a reply is a real thrill. Thanks.
Subject: Re: [MOL] side effects - can you
help?/REply
Dear Friend: I know this is playing havoc on you and
no wonder.
In all the researching that I have done these past year's I
am discovering more and more Doctors are using a two or three prong chemo
therapy. Meaning different types of chemo. They are also giving
the chemo in lower dosages. Many on our forum have been on this chemo
program, not sick to their stomach, not loosing their hair. The
researchers are saying that the low dosage has the same affect as an
aggressive dosage.
Use plastic utensils and plates to take away some of the
salt taste.
phenergan-antionousee (sp) makes patients want to
eat.
What chemo drugs is he on? For what type of cancer
and stage? I really suggest that you talk with his Doctor and get that
dosage lowered. I would not let this go. Some chemo's do cause
chills.
I am sorry to hear your father is going through so
much. Warmly, your friend,
lillian
