Re: [MOL] Thalidimide... [00314] Medicine On Line


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Re: [MOL] Thalidimide...



Thanks for looking Bridget, I spelled it the way it sounds so I could be wrong.
I might just have to wait and talk to research nurse about it when she calls.
Thanks again......Beav

Bridget Rambeau wrote:

> Hi Beav. I also did some searches for you, including trial drugs currently
> being tested, and like Lillian couldn't find anything. Are you sure of the
> spelling?
> Your friend,
> Bridget
>
> >From: beav76@uswest.net
> >Reply-To: mol-cancer@lists.meds.com
> >To: mol-cancer@lists.meds.com
> >Subject: Re: [MOL] Thalidimide...
> >Date: Tue, 05 Sep 2000 21:54:27 -0700
> >
> >Hi Lillian;
> >    Dr. Lobelle called today and said the drug that he is talking about is
> >called
> >Lomatrexul. I searched for information on this and couldn't find anything.
> >I was
> >just wondering if you might find anything, I know you are really good at
> >searches. It is a drug that is just been released to be used for clinical
> >trials. His research nurse will call us to see if Bucky meets the protocal
> >for
> >this drug. I would still like know about it if it's not to much trouble for
> >you
> >to look up. Thanks for your help....your friend......Beav  (it is
> >formulated for
> >sarcoma's)
> >
> >Lillian wrote:
> >
> > > Beav:  Dr. Lobelle is right, they are finding that one has to take
> >another
> > > drug along with thalidomide.  It was in some of the information that I
> >had
> > > sent out.  If you want to look it up go to the forums archives. Your
> >friend,
> > > lillian
> > >
> > > We invite you to take a look at our Album.
> > > www.angelfire.com/sc/molangels/index.html
> > >
> > >   ( Very informational, good tips, Molers pictures, art work and much
> > > more....
> > >
> > > ----- Original Message -----
> > > From: <beav76@uswest.net>
> > > To: <mol-cancer@lists.meds.com>
> > > Sent: Wednesday, August 30, 2000 9:30 AM
> > > Subject: Re: [MOL] mycosis fungoides
> > >
> > > > Amocci;
> > > >      This is a very tough time, we have been there several times. The
> > > doctor we
> > > > have had most sucess with and seems to want to cure his patients (if
> >one
> > > thing
> > > > doesn't work he will research what else is available) is a cancer
> >research
> > > doctor
> > > > located in Tucson,Az. We highly recommend him because he will go past
> >the
> > > call of
> > > > duty for his patients and has been known to sit at their bedside in
> >their
> > > final
> > > > moments if nothing else worked. He works at the cancer center in
> > > Tucson,Az. (520)
> > > > 626-6824 his name is Dr. Michael Lobelle. I talked to him yesterday
> > > because of
> > > > the frustrations we are going through and he told me a new drug is
> >being
> > > approved
> > > > for clinical trials on thursday that would help for sarcomas which is
> >what
> > > our
> > > > problem is. He also said they are in trials with some vaccines. The
> >main
> > > research
> > > > nurses phone no. is (520) 626-6787. You find out general info. from
> >there
> > > if you
> > > > want to investigate first, Marilyn is her name. My husband would not
> >be
> > > alive
> > > > today if it wern't for this Dr.. The only reason we have not been with
> >him
> > > > through the Thalidimide, is insurance. The onc. we have now reduced my
> > > husband
> > > > down to 150mg. because of low w/c count. Yesterday when I spoke to Dr.
> > > Lobelle he
> > > > told me that doesage is completely ineffective and we have to do some
> > > thing else
> > > > and was estactic that he has this drug coming this week. He tells you
> >the
> > > truth
> > > > and won't leave you hanging because "you've got cancer and your going
> >to
> > > die
> > > > attitude". Well that's all I have to offer you, we did try some
> > > alternative
> > > > therapys that boost the immune system in Tijuana,Mexico. All b.s.
> >aside it
> > > works.
> > > > I have seen it work on many patients myself plus I took 3 injections
> >for
> > > > pnuemonia and I can verify that it will boost the immune sytem so it
> >can
> > > fight.
> > > > Sometimes you have to try anything that can atleast prolong life until
> > > something
> > > > comes along that may be the cure.Anyway the ph. in Tijuana is
> > > 1-800-785-0490. I
> > > > know there have been some posts on Drs. down there. I would highly
> > > recommend this
> > > > for someone who has been battered with chemo and radiation. It brings
> >your
> > > > strength back. Good luck.....Beav
> > > >
> > > > AMocci9820@aol.com wrote:
> > > >
> > > > > molers,
> > > > > I need your help as a group.This is what this forum is all about
> >no?Ive
> > > > > posted some
> > > > > questions and the only one that has responded was lilian?My mom dx
> >with
> > > sclc
> > > > > with mets to brain, now lymph node in chest and groin,possible
> > > liver.What can
> > > > > we expect?Be honest Im already
> >numb.dx4/00,radiation5/00,chemo6/00.Chemo
> > > > > doesnt appear to be working.
> > > > > Were exploring dr.Nagourney in california he says he is only one of
> >two
> > > in
> > > > > the country that will perform a chemo sensetivity test.With 90
> >percent
> > > > > accuracy he will tell you what cocktail to use.Obviously he needs a
> >gram
> > > of
> > > > > tumor.Which now doesnt seem a problem.
> > > > > also trying to line up alternatives.That is difficult cause who
> >knows
> > > the
> > > > > right answer.
> > > > > Any input about a vaccine?anti angenesis
> >drugs?antineoplastons.HELPPPPP
> > > > > throw out some input.Money is not an issue.
> > > > > amocci
> > > > >
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