Re: [MOL] Thalidimide... [00294] Medicine On Line


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Re: [MOL] Thalidimide...



Hi Beav. I also did some searches for you, including trial drugs currently 
being tested, and like Lillian couldn't find anything. Are you sure of the 
spelling?
Your friend,
Bridget


>From: beav76@uswest.net
>Reply-To: mol-cancer@lists.meds.com
>To: mol-cancer@lists.meds.com
>Subject: Re: [MOL] Thalidimide...
>Date: Tue, 05 Sep 2000 21:54:27 -0700
>
>Hi Lillian;
>    Dr. Lobelle called today and said the drug that he is talking about is 
>called
>Lomatrexul. I searched for information on this and couldn't find anything. 
>I was
>just wondering if you might find anything, I know you are really good at
>searches. It is a drug that is just been released to be used for clinical
>trials. His research nurse will call us to see if Bucky meets the protocal 
>for
>this drug. I would still like know about it if it's not to much trouble for 
>you
>to look up. Thanks for your help....your friend......Beav  (it is 
>formulated for
>sarcoma's)
>
>Lillian wrote:
>
> > Beav:  Dr. Lobelle is right, they are finding that one has to take 
>another
> > drug along with thalidomide.  It was in some of the information that I 
>had
> > sent out.  If you want to look it up go to the forums archives. Your 
>friend,
> > lillian
> >
> > We invite you to take a look at our Album.
> > www.angelfire.com/sc/molangels/index.html
> >
> >   ( Very informational, good tips, Molers pictures, art work and much
> > more....
> >
> > ----- Original Message -----
> > From: <beav76@uswest.net>
> > To: <mol-cancer@lists.meds.com>
> > Sent: Wednesday, August 30, 2000 9:30 AM
> > Subject: Re: [MOL] mycosis fungoides
> >
> > > Amocci;
> > >      This is a very tough time, we have been there several times. The
> > doctor we
> > > have had most sucess with and seems to want to cure his patients (if 
>one
> > thing
> > > doesn't work he will research what else is available) is a cancer 
>research
> > doctor
> > > located in Tucson,Az. We highly recommend him because he will go past 
>the
> > call of
> > > duty for his patients and has been known to sit at their bedside in 
>their
> > final
> > > moments if nothing else worked. He works at the cancer center in
> > Tucson,Az. (520)
> > > 626-6824 his name is Dr. Michael Lobelle. I talked to him yesterday
> > because of
> > > the frustrations we are going through and he told me a new drug is 
>being
> > approved
> > > for clinical trials on thursday that would help for sarcomas which is 
>what
> > our
> > > problem is. He also said they are in trials with some vaccines. The 
>main
> > research
> > > nurses phone no. is (520) 626-6787. You find out general info. from 
>there
> > if you
> > > want to investigate first, Marilyn is her name. My husband would not 
>be
> > alive
> > > today if it wern't for this Dr.. The only reason we have not been with 
>him
> > > through the Thalidimide, is insurance. The onc. we have now reduced my
> > husband
> > > down to 150mg. because of low w/c count. Yesterday when I spoke to Dr.
> > Lobelle he
> > > told me that doesage is completely ineffective and we have to do some
> > thing else
> > > and was estactic that he has this drug coming this week. He tells you 
>the
> > truth
> > > and won't leave you hanging because "you've got cancer and your going 
>to
> > die
> > > attitude". Well that's all I have to offer you, we did try some
> > alternative
> > > therapys that boost the immune system in Tijuana,Mexico. All b.s. 
>aside it
> > works.
> > > I have seen it work on many patients myself plus I took 3 injections 
>for
> > > pnuemonia and I can verify that it will boost the immune sytem so it 
>can
> > fight.
> > > Sometimes you have to try anything that can atleast prolong life until
> > something
> > > comes along that may be the cure.Anyway the ph. in Tijuana is
> > 1-800-785-0490. I
> > > know there have been some posts on Drs. down there. I would highly
> > recommend this
> > > for someone who has been battered with chemo and radiation. It brings 
>your
> > > strength back. Good luck.....Beav
> > >
> > > AMocci9820@aol.com wrote:
> > >
> > > > molers,
> > > > I need your help as a group.This is what this forum is all about 
>no?Ive
> > > > posted some
> > > > questions and the only one that has responded was lilian?My mom dx 
>with
> > sclc
> > > > with mets to brain, now lymph node in chest and groin,possible
> > liver.What can
> > > > we expect?Be honest Im already 
>numb.dx4/00,radiation5/00,chemo6/00.Chemo
> > > > doesnt appear to be working.
> > > > Were exploring dr.Nagourney in california he says he is only one of 
>two
> > in
> > > > the country that will perform a chemo sensetivity test.With 90 
>percent
> > > > accuracy he will tell you what cocktail to use.Obviously he needs a 
>gram
> > of
> > > > tumor.Which now doesnt seem a problem.
> > > > also trying to line up alternatives.That is difficult cause who 
>knows
> > the
> > > > right answer.
> > > > Any input about a vaccine?anti angenesis 
>drugs?antineoplastons.HELPPPPP
> > > > throw out some input.Money is not an issue.
> > > > amocci
> > > > 
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