Re: [MOL] Thalidimide.../REPLY [00292] Medicine On Line


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Re: [MOL] Thalidimide.../REPLY



Beav:  As of yet I have not been able t find anything on lomatrexul; but I
will keep trying for you.  Warmly, your friend, lillian


We invite you to take a look at our Album.
www.angelfire.com/sc/molangels/index.html

  ( Very informational, good tips, Molers pictures, art work and much
more....

----- Original Message -----
From: <beav76@uswest.net>
To: <mol-cancer@lists.meds.com>
Sent: Tuesday, September 05, 2000 9:54 PM
Subject: Re: [MOL] Thalidimide...


> Hi Lillian;
>    Dr. Lobelle called today and said the drug that he is talking about is
called
> Lomatrexul. I searched for information on this and couldn't find anything.
I was
> just wondering if you might find anything, I know you are really good at
> searches. It is a drug that is just been released to be used for clinical
> trials. His research nurse will call us to see if Bucky meets the protocal
for
> this drug. I would still like know about it if it's not to much trouble
for you
> to look up. Thanks for your help....your friend......Beav  (it is
formulated for
> sarcoma's)
>
> Lillian wrote:
>
> > Beav:  Dr. Lobelle is right, they are finding that one has to take
another
> > drug along with thalidomide.  It was in some of the information that I
had
> > sent out.  If you want to look it up go to the forums archives. Your
friend,
> > lillian
> >
> > We invite you to take a look at our Album.
> > www.angelfire.com/sc/molangels/index.html
> >
> >   ( Very informational, good tips, Molers pictures, art work and much
> > more....
> >
> > ----- Original Message -----
> > From: <beav76@uswest.net>
> > To: <mol-cancer@lists.meds.com>
> > Sent: Wednesday, August 30, 2000 9:30 AM
> > Subject: Re: [MOL] mycosis fungoides
> >
> > > Amocci;
> > >      This is a very tough time, we have been there several times. The
> > doctor we
> > > have had most sucess with and seems to want to cure his patients (if
one
> > thing
> > > doesn't work he will research what else is available) is a cancer
research
> > doctor
> > > located in Tucson,Az. We highly recommend him because he will go past
the
> > call of
> > > duty for his patients and has been known to sit at their bedside in
their
> > final
> > > moments if nothing else worked. He works at the cancer center in
> > Tucson,Az. (520)
> > > 626-6824 his name is Dr. Michael Lobelle. I talked to him yesterday
> > because of
> > > the frustrations we are going through and he told me a new drug is
being
> > approved
> > > for clinical trials on thursday that would help for sarcomas which is
what
> > our
> > > problem is. He also said they are in trials with some vaccines. The
main
> > research
> > > nurses phone no. is (520) 626-6787. You find out general info. from
there
> > if you
> > > want to investigate first, Marilyn is her name. My husband would not
be
> > alive
> > > today if it wern't for this Dr.. The only reason we have not been with
him
> > > through the Thalidimide, is insurance. The onc. we have now reduced my
> > husband
> > > down to 150mg. because of low w/c count. Yesterday when I spoke to Dr.
> > Lobelle he
> > > told me that doesage is completely ineffective and we have to do some
> > thing else
> > > and was estactic that he has this drug coming this week. He tells you
the
> > truth
> > > and won't leave you hanging because "you've got cancer and your going
to
> > die
> > > attitude". Well that's all I have to offer you, we did try some
> > alternative
> > > therapys that boost the immune system in Tijuana,Mexico. All b.s.
aside it
> > works.
> > > I have seen it work on many patients myself plus I took 3 injections
for
> > > pnuemonia and I can verify that it will boost the immune sytem so it
can
> > fight.
> > > Sometimes you have to try anything that can atleast prolong life until
> > something
> > > comes along that may be the cure.Anyway the ph. in Tijuana is
> > 1-800-785-0490. I
> > > know there have been some posts on Drs. down there. I would highly
> > recommend this
> > > for someone who has been battered with chemo and radiation. It brings
your
> > > strength back. Good luck.....Beav
> > >
> > > AMocci9820@aol.com wrote:
> > >
> > > > molers,
> > > > I need your help as a group.This is what this forum is all about
no?Ive
> > > > posted some
> > > > questions and the only one that has responded was lilian?My mom dx
with
> > sclc
> > > > with mets to brain, now lymph node in chest and groin,possible
> > liver.What can
> > > > we expect?Be honest Im already
numb.dx4/00,radiation5/00,chemo6/00.Chemo
> > > > doesnt appear to be working.
> > > > Were exploring dr.Nagourney in california he says he is only one of
two
> > in
> > > > the country that will perform a chemo sensetivity test.With 90
percent
> > > > accuracy he will tell you what cocktail to use.Obviously he needs a
gram
> > of
> > > > tumor.Which now doesnt seem a problem.
> > > > also trying to line up alternatives.That is difficult cause who
knows
> > the
> > > > right answer.
> > > > Any input about a vaccine?anti angenesis
drugs?antineoplastons.HELPPPPP
> > > > throw out some input.Money is not an issue.
> > > > amocci
> > >
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