Maybe you just need a rest, Beav. Some time to yourself may work as well as
the pity pot...
Just a thought from
Your friend,
Bridget
>From: beav76@uswest.net
>Reply-To: mol-cancer@lists.meds.com
>To: mol-cancer@lists.meds.com
>Subject: Re: [MOL] TSH TEST/PORT/BEAV
>Date: Thu, 31 Aug 2000 21:13:04 -0700
>
>I'll check into that Lillian on the infection, I have a lot of things but
>somewhere along the 3 yrs or so I've gotten so burnt out, one would think
>that
>there's nothing to it to get copies but I have reached a point just before
>my
>respit that if I had to look at one more pill I was going to just scream
>and I
>kept dropping things all the time. So I try to not overload and cut back on
>alot
>of things. As I see him deteriorating I think, what's the use, I'm just
>gonna
>throw all this stuff away someday. I guess I need the pity pot it sounds
>like
>huh?.....Beav
>
>Lillian wrote:
>
> > The Doctor more than likely meant the new drug was approved by the FDA
>and I
> > really hope this is the one to do the trick for Bucky. If they are
>drawing
> > blood it takes very little effort; but to send some off for the TSH test
>and
> > since we already know that chemo and radiation can throw the tyroid out
>of
> > whack, what is the harm. Also, didn't Bucky get a port put in? That is
> > another area that the medical field almost looks at last for infection.
> > It's just some ideas, does not mean I am right; but it never hurts to
>check
> > it our. Better to be safe than sorry. By the way Beav do you get
>copies of
> > all medical reports, biopsies and pathology reports. One would be amazed
>at
> > what they can learn from them. My prayers always, your friend, lillian
> >
> > We invite you to take a look at our Album.
> > www.angelfire.com/sc/molangels/index.html
> >
> > ( Very informational, good tips, Molers pictures, art work and much
> > more....
> >
> > ----- Original Message -----
> > From: <beav76@uswest.net>
> > To: <mol-cancer@lists.meds.com>
> > Sent: Thursday, August 31, 2000 3:00 PM
> > Subject: Re: [MOL] Thalidimide...
> >
> > > Lillian;
> > > Went to onc. today. Bucky is running a low grade fever and his
>right
> > leg
> > > (w/cancer) has been swelling and increased pain in hip so I just have
>to
> > let
> > > whatever manifest itself because they don't know what is going on yet.
> > > Complications with antibiotics is why they want to wait and see and
>keep
> > him off
> > > them as long as possible. Possible infection in leg or pnuemonia
>trying to
> > come
> > > back. w/c was up to 3.2 from 2.8 so that is good but is still low. He
>said
> > with
> > > all his problems a tsh test is the least of his worries and that the
> > primary
> > > care dr. can take care of that. He has been feeling better the last 2
>days
> > in
> > > spite of the increased pain and we are taking every minute of that and
> > doing the
> > > best we can with it. Chest x-ray looked good with no mets to the lungs
> > which is
> > > really good news. We are waiting for Dr. Lobelle to respond on new
>drug fo
> > r
> > > sarcomas. Wasn't clear whether it is approved for trials or by fda. He
>was
> > in
> > > clinic when he called and I didn't think to ask. Hope all is still
>going
> > well at
> > > your house. Your frend, Beav
> > >
> > > Lillian wrote:
> > >
> > > > Beav: Dr. Lobelle is right, they are finding that one has to take
> > another
> > > > drug along with thalidomide. It was in some of the information that
>I
> > had
> > > > sent out. If you want to look it up go to the forums archives. Your
> > friend,
> > > > lillian
> > > >
> > > > We invite you to take a look at our Album.
> > > > www.angelfire.com/sc/molangels/index.html
> > > >
> > > > ( Very informational, good tips, Molers pictures, art work and
>much
> > > > more....
> > > >
> > > > ----- Original Message -----
> > > > From: <beav76@uswest.net>
> > > > To: <mol-cancer@lists.meds.com>
> > > > Sent: Wednesday, August 30, 2000 9:30 AM
> > > > Subject: Re: [MOL] mycosis fungoides
> > > >
> > > > > Amocci;
> > > > > This is a very tough time, we have been there several times.
>The
> > > > doctor we
> > > > > have had most sucess with and seems to want to cure his patients
>(if
> > one
> > > > thing
> > > > > doesn't work he will research what else is available) is a cancer
> > research
> > > > doctor
> > > > > located in Tucson,Az. We highly recommend him because he will go
>past
> > the
> > > > call of
> > > > > duty for his patients and has been known to sit at their bedside
>in
> > their
> > > > final
> > > > > moments if nothing else worked. He works at the cancer center in
> > > > Tucson,Az. (520)
> > > > > 626-6824 his name is Dr. Michael Lobelle. I talked to him
>yesterday
> > > > because of
> > > > > the frustrations we are going through and he told me a new drug is
> > being
> > > > approved
> > > > > for clinical trials on thursday that would help for sarcomas which
>is
> > what
> > > > our
> > > > > problem is. He also said they are in trials with some vaccines.
>The
> > main
> > > > research
> > > > > nurses phone no. is (520) 626-6787. You find out general info.
>from
> > there
> > > > if you
> > > > > want to investigate first, Marilyn is her name. My husband would
>not
> > be
> > > > alive
> > > > > today if it wern't for this Dr.. The only reason we have not been
>with
> > him
> > > > > through the Thalidimide, is insurance. The onc. we have now
>reduced my
> > > > husband
> > > > > down to 150mg. because of low w/c count. Yesterday when I spoke to
>Dr.
> > > > Lobelle he
> > > > > told me that doesage is completely ineffective and we have to do
>some
> > > > thing else
> > > > > and was estactic that he has this drug coming this week. He tells
>you
> > the
> > > > truth
> > > > > and won't leave you hanging because "you've got cancer and your
>going
> > to
> > > > die
> > > > > attitude". Well that's all I have to offer you, we did try some
> > > > alternative
> > > > > therapys that boost the immune system in Tijuana,Mexico. All b.s.
> > aside it
> > > > works.
> > > > > I have seen it work on many patients myself plus I took 3
>injections
> > for
> > > > > pnuemonia and I can verify that it will boost the immune sytem so
>it
> > can
> > > > fight.
> > > > > Sometimes you have to try anything that can atleast prolong life
>until
> > > > something
> > > > > comes along that may be the cure.Anyway the ph. in Tijuana is
> > > > 1-800-785-0490. I
> > > > > know there have been some posts on Drs. down there. I would highly
> > > > recommend this
> > > > > for someone who has been battered with chemo and radiation. It
>brings
> > your
> > > > > strength back. Good luck.....Beav
> > > > >
> > > > > AMocci9820@aol.com wrote:
> > > > >
> > > > > > molers,
> > > > > > I need your help as a group.This is what this forum is all about
> > no?Ive
> > > > > > posted some
> > > > > > questions and the only one that has responded was lilian?My mom
>dx
> > with
> > > > sclc
> > > > > > with mets to brain, now lymph node in chest and groin,possible
> > > > liver.What can
> > > > > > we expect?Be honest Im already
> > numb.dx4/00,radiation5/00,chemo6/00.Chemo
> > > > > > doesnt appear to be working.
> > > > > > Were exploring dr.Nagourney in california he says he is only one
>of
> > two
> > > > in
> > > > > > the country that will perform a chemo sensetivity test.With 90
> > percent
> > > > > > accuracy he will tell you what cocktail to use.Obviously he
>needs a
> > gram
> > > > of
> > > > > > tumor.Which now doesnt seem a problem.
> > > > > > also trying to line up alternatives.That is difficult cause who
> > knows
> > > > the
> > > > > > right answer.
> > > > > > Any input about a vaccine?anti angenesis
> > drugs?antineoplastons.HELPPPPP
> > > > > > throw out some input.Money is not an issue.
> > > > > > amocci
> > > > >
> > >
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