Re: [MOL] Thalidimide... [02509] Medicine On Line


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Re: [MOL] Thalidimide...



I remember reading that but was wondering if it pertains to particular types of
cancer or all in general. He has a rare one and nothing is of the norm with his
trtmts........Beav

Lillian wrote:

> Beav:  Dr. Lobelle is right, they are finding that one has to take another
> drug along with thalidomide.  It was in some of the information that I had
> sent out.  If you want to look it up go to the forums archives. Your friend,
> lillian
>
> We invite you to take a look at our Album.
> www.angelfire.com/sc/molangels/index.html
>
>   ( Very informational, good tips, Molers pictures, art work and much
> more....
>
> ----- Original Message -----
> From: <beav76@uswest.net>
> To: <mol-cancer@lists.meds.com>
> Sent: Wednesday, August 30, 2000 9:30 AM
> Subject: Re: [MOL] mycosis fungoides
>
> > Amocci;
> >      This is a very tough time, we have been there several times. The
> doctor we
> > have had most sucess with and seems to want to cure his patients (if one
> thing
> > doesn't work he will research what else is available) is a cancer research
> doctor
> > located in Tucson,Az. We highly recommend him because he will go past the
> call of
> > duty for his patients and has been known to sit at their bedside in their
> final
> > moments if nothing else worked. He works at the cancer center in
> Tucson,Az. (520)
> > 626-6824 his name is Dr. Michael Lobelle. I talked to him yesterday
> because of
> > the frustrations we are going through and he told me a new drug is being
> approved
> > for clinical trials on thursday that would help for sarcomas which is what
> our
> > problem is. He also said they are in trials with some vaccines. The main
> research
> > nurses phone no. is (520) 626-6787. You find out general info. from there
> if you
> > want to investigate first, Marilyn is her name. My husband would not be
> alive
> > today if it wern't for this Dr.. The only reason we have not been with him
> > through the Thalidimide, is insurance. The onc. we have now reduced my
> husband
> > down to 150mg. because of low w/c count. Yesterday when I spoke to Dr.
> Lobelle he
> > told me that doesage is completely ineffective and we have to do some
> thing else
> > and was estactic that he has this drug coming this week. He tells you the
> truth
> > and won't leave you hanging because "you've got cancer and your going to
> die
> > attitude". Well that's all I have to offer you, we did try some
> alternative
> > therapys that boost the immune system in Tijuana,Mexico. All b.s. aside it
> works.
> > I have seen it work on many patients myself plus I took 3 injections for
> > pnuemonia and I can verify that it will boost the immune sytem so it can
> fight.
> > Sometimes you have to try anything that can atleast prolong life until
> something
> > comes along that may be the cure.Anyway the ph. in Tijuana is
> 1-800-785-0490. I
> > know there have been some posts on Drs. down there. I would highly
> recommend this
> > for someone who has been battered with chemo and radiation. It brings your
> > strength back. Good luck.....Beav
> >
> > AMocci9820@aol.com wrote:
> >
> > > molers,
> > > I need your help as a group.This is what this forum is all about no?Ive
> > > posted some
> > > questions and the only one that has responded was lilian?My mom dx with
> sclc
> > > with mets to brain, now lymph node in chest and groin,possible
> liver.What can
> > > we expect?Be honest Im already numb.dx4/00,radiation5/00,chemo6/00.Chemo
> > > doesnt appear to be working.
> > > Were exploring dr.Nagourney in california he says he is only one of two
> in
> > > the country that will perform a chemo sensetivity test.With 90 percent
> > > accuracy he will tell you what cocktail to use.Obviously he needs a gram
> of
> > > tumor.Which now doesnt seem a problem.
> > > also trying to line up alternatives.That is difficult cause who knows
> the
> > > right answer.
> > > Any input about a vaccine?anti angenesis drugs?antineoplastons.HELPPPPP
> > > throw out some input.Money is not an issue.
> > > amocci
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