Re: [MOL] Thalidimide... [02417] Medicine On Line


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Re: [MOL] Thalidimide...



Beav:  Dr. Lobelle is right, they are finding that one has to take another
drug along with thalidomide.  It was in some of the information that I had
sent out.  If you want to look it up go to the forums archives. Your friend,
lillian


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----- Original Message -----
From: <beav76@uswest.net>
To: <mol-cancer@lists.meds.com>
Sent: Wednesday, August 30, 2000 9:30 AM
Subject: Re: [MOL] mycosis fungoides


> Amocci;
>      This is a very tough time, we have been there several times. The
doctor we
> have had most sucess with and seems to want to cure his patients (if one
thing
> doesn't work he will research what else is available) is a cancer research
doctor
> located in Tucson,Az. We highly recommend him because he will go past the
call of
> duty for his patients and has been known to sit at their bedside in their
final
> moments if nothing else worked. He works at the cancer center in
Tucson,Az. (520)
> 626-6824 his name is Dr. Michael Lobelle. I talked to him yesterday
because of
> the frustrations we are going through and he told me a new drug is being
approved
> for clinical trials on thursday that would help for sarcomas which is what
our
> problem is. He also said they are in trials with some vaccines. The main
research
> nurses phone no. is (520) 626-6787. You find out general info. from there
if you
> want to investigate first, Marilyn is her name. My husband would not be
alive
> today if it wern't for this Dr.. The only reason we have not been with him
> through the Thalidimide, is insurance. The onc. we have now reduced my
husband
> down to 150mg. because of low w/c count. Yesterday when I spoke to Dr.
Lobelle he
> told me that doesage is completely ineffective and we have to do some
thing else
> and was estactic that he has this drug coming this week. He tells you the
truth
> and won't leave you hanging because "you've got cancer and your going to
die
> attitude". Well that's all I have to offer you, we did try some
alternative
> therapys that boost the immune system in Tijuana,Mexico. All b.s. aside it
works.
> I have seen it work on many patients myself plus I took 3 injections for
> pnuemonia and I can verify that it will boost the immune sytem so it can
fight.
> Sometimes you have to try anything that can atleast prolong life until
something
> comes along that may be the cure.Anyway the ph. in Tijuana is
1-800-785-0490. I
> know there have been some posts on Drs. down there. I would highly
recommend this
> for someone who has been battered with chemo and radiation. It brings your
> strength back. Good luck.....Beav
>
> AMocci9820@aol.com wrote:
>
> > molers,
> > I need your help as a group.This is what this forum is all about no?Ive
> > posted some
> > questions and the only one that has responded was lilian?My mom dx with
sclc
> > with mets to brain, now lymph node in chest and groin,possible
liver.What can
> > we expect?Be honest Im already numb.dx4/00,radiation5/00,chemo6/00.Chemo
> > doesnt appear to be working.
> > Were exploring dr.Nagourney in california he says he is only one of two
in
> > the country that will perform a chemo sensetivity test.With 90 percent
> > accuracy he will tell you what cocktail to use.Obviously he needs a gram
of
> > tumor.Which now doesnt seem a problem.
> > also trying to line up alternatives.That is difficult cause who knows
the
> > right answer.
> > Any input about a vaccine?anti angenesis drugs?antineoplastons.HELPPPPP
> > throw out some input.Money is not an issue.
> > amocci
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