Re: [MOL] Myelodysplasia/Reply [02007] Medicine On Line


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Re: [MOL] Myelodysplasia/Reply






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----- Original Message -----
From: "Steve Quayle" <mylodcontrol@hotmail.com>
To: <mol-cancer@lists.meds.com>
Sent: Thursday, August 24, 2000 7:04 AM
Subject: Re: [MOL] Myelodysplasia/Reply


> Tonia,
> Thanks very much for your reply.  My father is 65. He lives in England
(and
> incidentally has a daughter living in Atlanta USA).  He's had MDS for
approx
> three years now.  The treatment has been regular transfusions but now
there
> is a problem with a build up of iron in his system.
>
> It has been recommended that he starts a new procedure whereby he takes
some
> kind of transfusion which strips out the iron. This will need to be done
> every day for approx 11 hours!
>
> Do you have any knowledge of this process?  I'm obviously also looking for
> any effective treatment for MDS.
>
> Thanks very much for your time and kind consideration.
>
> Best regards,
>
> Steve Quayle.
>
> >From: TON1213@aol.com
> >Reply-To: mol-cancer@lists.meds.com
> >To: mol-cancer@lists.meds.com
> >Subject: Re: [MOL] Myelodysplasia/Reply
> >Date: Thu, 24 Aug 2000 09:29:33 EDT
> >
> >Dear Steven:
> >
> >I feel I can be of help to you.  My name is Tonia and my father was
> >diagnosed
> >with MDS and since has transformed to AML.  This started for us on April
> >12,2000.
> >
> >One wonderful site to contact is www.mds-foundation.org
> >or call them direct and you will be able to speak to a nurse
1.800.MDS.0839
> >
> >If you need anyone to speak to, please feel free to contact me through
this
> >forum or to my address directly.
> >
> >Sometimes it just helps to speak with someone who has been there(and
still
> >is).
> >If you would like to share with me the details of your father  i.e.- age,
> >stage of MDS, suggested TX for him, where you live I may be able to help
> >further.
> >
> >Please keep us informed on your journey.
> >
> >Tonia
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