Re: [MOL] essential thrombocythemia [01087] Medicine On Line

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Re: [MOL] essential thrombocythemia

Hi Michelle. The proper spelling for the drug is Agrylin (anagrelide 
hydrochloride) and over 2300 people have received it under a compassionate 
use protocol. I don't know if you have to be a US citizen or not.?
>From everything I've read, the prognosis appears to be quite positive. I 
believe Lillian has sent you some sites to check out. If I can be of any 
help, please let me know.
Welcome to our forum.
Your friend,

>From: "helen.p.k" <>
>To: <>
>Subject: [MOL] essential thrombocythemia
>Date: Fri, 11 Aug 2000 19:42:50 +1200
>My name is Michelle Bons, I am 37 years old, I live in New Zealand
>I was diagnosed with ET 7 years ago, and I am on hydrea,
>I have so many questions I really don't know where to begin    My platelet 
>count has been back up to around the 900  and my med's have been increased, 
>I don't know what I am supposed to have as symptoms as I don't know if half 
>of what I feel is in my head,
>My doc's have said that I should be on this new drug agrilide(sp?) but this 
>is not available here because of government funding.
>I do know that I am always so tired, I get blurred vision, and powerful 
>headaches, also I have terrible mood swings, I also get painful areas with 
>in my calf's and these last for about a week or two.
>I really would like someone to talk to
>I need someone who will answer my questions
>How long can I expect to live for?
>Can I have a heart attack?
>Can I have a stroke?
>Please E.Mail back to me at my friends E.Mail address

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