Re: [MOL] so many questions... [01066] Medicine On Line

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Re: [MOL] so many questions...

Welcome to our wonderful forum.  We want you to know that we are here for you and will help in any way we can.  We will provide you with daily medical articles, latest treatment therapies and giving you links to information that will help you to better understand cancer. Knowledge gives you the power to make the very best decisions for yourself.
Please know that we are not in the medical profession and all information is not intended to replace your physicians directions.   We do have combined year's of expierence with  cancer and opinions.  We are not endorsing any perticular product, treatment, medications, centers or doctors.
We have our own web site  and album. Here the resources are numerous.  From how to talk to your doctor, questions to ask about your treatment.  Resources in cancer centers,  work related issues, benefits, financial and more.  Photo's and testimonials of survivors and photo's of those that have left a legacy to our forum. 
Some of the best support on line is provided through our many wonderful forum members.  Friendships are made, tips on their treatments are given.  We cry together and yes, even laugh together.  It is the spirit of the members of this forum that makes this the best "Home away from Home".  Here you can vent and be understood; as all on the forum are on the cancer journey.  Whether it be active, remission, survival, loved one's or caregivers.  Each plays an intricate roll in helping you.  To sign onto our forum please go to:
Included are URL'S to help you gain the knowledge and give you the power.   When you are at the NCI site  check into trials. Explore the URL's of alternative sites.  
If we may be of further help please just ask and won't you join us in chat?    Warmly, your friend, lillian
This site will take you directly to nasopharyngeal carcinoma...

National Cancer Institute

Univ of Penn

Cancer Notes on the Net

Medicine On Line

MD Anderson

Mem. Sloan-Kettering


           International Bibliographic Information on Dietary
           Supplements (IBIDS) Database (Office of Dietary
               Searchable database of published, scientific literature on
               dietary supplements, vitamins, minerals, and botanicals.  IBIDS
               contains over 300,000 citations and abstracts.  Developed to
               assist the public, health care providers, and researchers in
               locating credible, scientific literature on dietary supplements.
           NIH National Center for Complementary and Alternative
          Medicine (NCCAM)
               Conducts and supports research and training; disseminates
               information on complementary and alternative medicine to
               practitioners and the public.   NCCAM resources include the
               CAM Citation Index (searchable & browsable database of more
               than 180,000 citations from 1996-1998 extracted from MEDLINE);
               and the NCAAM Clearinghouse (contains information on NCCAM
               programs, conferences, and research activities).

           Stephen Barrett, MD
               Guide to health fraud and "quackery."  Of particular note is the
               section entitled, "Special Message for Cancer Patients Seeking
               'Alternative' Treatments.   

           University of Texas Center for Alternative Medicine Research
           in Cancer (UT-CAM)
               Investigates the effectiveness of alternative and complementary
               therapies used for cancer prevention and control.  Website
               contains evaluative information on various therapies, including
               herbal & plant therapies (e.g., essiac), biologic & organic
               therapies (e.g., cartilage), chemical & pharmacologic therapies
               (e.g, antineoplastons, hydrazine sulfate) as well as special
               regimes & integrated systems (e.g., Gerson, macrobiotics).
               One of eleven centers established by the National Center for
               Complementary and Alternative Medicine (NCCAM) at the
               National Institutes of Health (NIH).

We invite you to take a look at our Album.                                      
  ( Very informational, good tips, Molers pictures, art work and much more....
We invite you to take a look at our Album.                                      
  ( Very informational, good tips, Molers pictures, art work and much more....
----- Original Message -----
From: Winn
Sent: Friday, August 11, 2000 6:19 AM
Subject: [MOL] so many questions...

This is my first morning as a member of MOL-cancer... seems to be a wealth of knowledge out there, perhaps you can help us!
My Dad, age 58, was diagnosed last week with nasopharyngeal carcinoma.  As you all must be aware of the many tests that are performed, we now know he is in stage III (T3N0).  How much your life can change with only a phone call!  The American Cancer Society states that only 0.25% of American with cancer have this type - fairly uncommon.  Anyone have any information or know anyone with this type of cancer?
I just moved home from Houston, TX where the world renowned MD Anderson is located.  Now we are in a small area in Colorado.   Dad's doc's seem wonderful and we are all crazy about them, but you can't help but question if they could be as good as a large medical center would be.  Dad doesn't seem to open to a second opinion.
Treatment will begin next week and involve radiation 5x week, 7 weeks.  Chemo (cisplastin) every 21 days, then 3 months of cisplastin and 5FU. 
We are trying to educate ourselves as much as possible.  Any information you have or anything you wish to share is greatly appreciated.  We are a family of FAITH and so many of you appear to lean on Him for your support -  Thank you.