Re: [MOL] Info Please [01016] Medicine On Line


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Re: [MOL] Info Please



And Miss Carol, I can see why a person would be  confused. I say Daddy's
cancer  spread but I don't know if that was the way it was actually worded.
I see the validity of not doing surgery according to what you were told but
I  don't agree about the chemo not working. I realize that Bac is rare and
there probably aren't a lot of stats but  I  am sooooo glad Daddy didn't go
with doing nothing as he had thought about in the beginning. We're on a roll
and going to keep on going. We in for thelong haul.  On th Lung-BAC list I
belong to also one person said her Dr said BAC is like cotton candy.
Pat Kimmi-KS
From: Carol Foulkes <crfoulkes@Juno.com>
To: <mol-cancer@lists.meds.com>
Sent: Thursday, August 10, 2000 8:30 PM
Subject: Re: [MOL] Info Please


> Dear Miss Pat,
>
> I am so confused anymore.  As you know, I have BAC.  I was told (as
> lately as today) that BAC does not "spread" nor metastasize, but "starts
> up" in a different place, therefore surgery would not be effective as it
> doesn't spread, but simply starts up in another place (should it happen)
> and to cut it out wouldn't stop it if it wanted to start somewhere else.
> Also, that chemo and other treatments have not proven (with what little
> statistics they have) to be effective.  And yet, I read your scribe and
> others and no one seems to have received the same info I did?  I am ONE
> BIG CONFUSED!
>
> Carol in Memphis
>
>
> On Thu, 10 Aug 2000 16:19:27 -0500 "Pat Kimmi" <lumber2@rainbowtel.net>
> writes:
> > Tom,
> >    My Dad,81, was dx with broncholoalveolar (a "subdivision" of
> > NSCLC ) in
> > Sept 99. After consults with surgeon, pulmonologist and oncologist
> > surgery
> > was ruled out-I'm still not sure why. Started Daddy on weekly tx of
> > Taxol-90mg and then carbo-?mg was given once a month; usually  with
> > second
> > tx of Taxol; in Feb 2000.  It was explained to us that weekly tx
> > rather than
> > monthly tend  to be easier to tolerate and possibly more effective.
> > He never
> > lost his hair or appetite. I think the only side effect he may have
> > had was
> > being somewhat tired. At one point he tried Taxotere which in his
> > case
> > almost did him in. By 3rd tx he was put on O2 full time and could no
> > longer
> > drive himself to tx. Switching back to Taxol, by 2nd one he was
> > pretty much
> > back to normal (he also has asthma and emphysema so that's very good
> > to go
> > back to not needing O2. His right lung is partially collapsed but
> > still
> > functional. The left lung with metastasized spots are what they are
> > judging
> > success of  chemo on. The 1st CT Scan in May showed decrease of
> > spots  and
> > CT Scan  in July showed further decrease in spots and no spread!!!
> > Now they
> > are trying him on monthly tx purely for his convenience (40 miles
> > round trip
> > for tx) and I don't think he likes it. He's had 1 tx; within 2 days
> > became
> > very nervous(for 3 days) Also had leg and joint pain which he said
> > he could
> > handle that with Tylenol. His dosage for monthly is now 330 mg so
> > quite an
> > increase at one time. I think he's going to try one more tx and ask
> > for
> > medication, if it doesn't help will go back to once a week which
> > they said
> > he could. Sorry this is so long; hope it helps. Daddy also took MGN3
> > for a
> > while; not sure how long, then quit. I think the  chemo is the main
> > cause of
> > cancer shrinking but also wonder aboout MGN3. He drinks green tea
> > and takes
> > some natural stuff; not sure what. Sending prayers to your brother
> > that he
> > fares as well with chemo. Pat Kimmi- Kansas
> > ----- Original Message -----
> > From: <NEW4TOM@aol.com>
> > To: <mol-cancer@lists.meds.com>
> > Sent: Thursday, August 10, 2000 3:33 PM
> > Subject: [MOL] Info Please
> >
> >
> > >   On July 12, my brother was diagnosed with NSCLC staged at IIIB,
> > with a
> > 6cm
> > > main tumor in his left upper lobe.  He began Taxol/Carbo
> > treatments every
> > > three weeks. (360mg Taxol/720mg Carbo).  > >
> > >
> >
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