If anyone wants the phone number to the place in Eerett, Washington, I'll be
glad to e-mail it.
----- Original Message -----
From: <beav76@uswest.net>
To: <mol-cancer@lists.meds.com>
Sent: Monday, July 31, 2000 7:58 AM
Subject: Re: [MOL] Oh my goodness !!
> Hi carol;
> Seems like you don't have much choice in this matter. Is your cancer
located
> in your brain? If so I can tell you that I watched a man with brain tumors
> respond to this alternative trt. in mexico. When he first came in for
trtmt. he
> couldn't speak or recognize anybody (inc. wife), they just held hands and
she
> would take him wherever. After the fifth trtmt. he was talking with his
wife and
> he recognized her. He also didn't have that dredful look of fear on his
face. He
> was smiling. I never got there name and I don't know anymore then what I
seen but
> I will give you this number in case you may want to check it out.They
changed
> there name but it used to American Biologics. 1-800-785-0490 is their
number and
> the name of the trtmt. you want is called alivazatos. I have also seen
bald
> patients grow hair from this trtmt. Hope it can help you, It is expensive.
They
> do have a ph. no. of a place in Texas that checks on insurance cos. that
cover, I
> think blue shield does but I am not sure. Anyway best wishes to
you......Your
> friend Beav
>
> Roses1@aol.com wrote:
>
> > I haven't read e-mail for 2 days & it took me an hour !!! And how funny
...
> > I was seriously sharing the pity pot with Bridget last night, only she
didn't
> > know we were having a party there. And all the posts regarding hair
couldn't
> > have come at a better time. I went to the hospital yesterday to talk to
the
> > stereotactic radio surgeon doctor for the first time. It appears I have
3
> > choices for the 4 menengiomas growing in my little brain. The first
being
> > open surgery (again), however this of course will not stop the new
little
> > ones that we just don't see yet. No kidding. The second being
stereotactic
> > radiation. But because of where the tumors are grouped, it will be
extremely
> > difficult to do. And will take 2 hours bolted to a table. And I will
loose
> > groups of hair, which may or may not grow back. And of course it too
will
> > not stop future growths. And after 6 months they "hope" the present
tumors
> > will shrink to aleviate my pressure & headaches. And they are not sure
if
> > they can attach the frame to my head, due to the prior bone flaps from
> > previous craniotomies. Hmm. And the third option is total radiation ..
> > fractionated. Driving to the med school for 6 weeks Monday through
Friday
> > for daily treatments. This should stop all growth, now & future. It
will
> > also fry my hair out now & permanently, and for a lovely parting gift we
will
> > also get short term memory loss ... what a plus ! I can get movies &
watch
> > them over & over & over & over ! LOL (Did that more than once after
the
> > surgeries I am sorry to say !) Unfortunately in my occupation, memory
loss
> > is a real drag. I work in an insurance agency, head of the commercial
> > department with huge commercial accounts ... perhaps I could record all
my
> > conversations requesting coverage ??? LOL This proceedure does not of
> > course shrink the tumors, so the headaches & pressure I have is what I
will
> > get.
> > So needless to say last night was a drag & I was having my own pity
party.
> > My hubby was ever supportive & for that I am eternally grateful. I am
doing
> > better this morning, and yes I do realize better to live without hair
than
> > not to live ........... but I really like my thin shitty hair that I
have
> > fought to keep after each surgery !!! And I never never never wear
hats,
> > scarves or wigs and I just can't imagine doing so for the rest of my
life.
> > And I'm afraid bald just isn't a good look for me ... been there. I am
> > terribly confused & not sure just which way to turn. I am lucky I have
three
> > options, as some have none. But being a whiney little girl this morning
....
> > I DON'T LIKE ANY OF THEM !!!! LOL
> > Thank you for all your posts & support. They help more than you know.
> >
> > Love to all,
> > Carol
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