Hi Carol, wish you had of told me we were having a pity party last night;
I'm sure I could have howled even louder. LOL
Even with 3 options I can see why you're not terribly thrilled with any of
them and why this must be a very difficult decision for you. Try to let your
spirit be your guide! I will be praying for you....
Your friend,
Bridget
>From: Roses1@aol.com
>Reply-To: mol-cancer@lists.meds.com
>To: mol-cancer@lists.meds.com
>Subject: [MOL] Oh my goodness !!
>Date: Sat, 29 Jul 2000 13:34:09 EDT
>
>I haven't read e-mail for 2 days & it took me an hour !!! And how funny
>...
>I was seriously sharing the pity pot with Bridget last night, only she
>didn't
>know we were having a party there. And all the posts regarding hair
>couldn't
>have come at a better time. I went to the hospital yesterday to talk to
>the
>stereotactic radio surgeon doctor for the first time. It appears I have 3
>choices for the 4 menengiomas growing in my little brain. The first being
>open surgery (again), however this of course will not stop the new little
>ones that we just don't see yet. No kidding. The second being
>stereotactic
>radiation. But because of where the tumors are grouped, it will be
>extremely
>difficult to do. And will take 2 hours bolted to a table. And I will
>loose
>groups of hair, which may or may not grow back. And of course it too will
>not stop future growths. And after 6 months they "hope" the present tumors
>will shrink to aleviate my pressure & headaches. And they are not sure if
>they can attach the frame to my head, due to the prior bone flaps from
>previous craniotomies. Hmm. And the third option is total radiation ..
>fractionated. Driving to the med school for 6 weeks Monday through Friday
>for daily treatments. This should stop all growth, now & future. It will
>also fry my hair out now & permanently, and for a lovely parting gift we
>will
>also get short term memory loss ... what a plus ! I can get movies & watch
>them over & over & over & over ! LOL (Did that more than once after the
>surgeries I am sorry to say !) Unfortunately in my occupation, memory loss
>is a real drag. I work in an insurance agency, head of the commercial
>department with huge commercial accounts ... perhaps I could record all my
>conversations requesting coverage ??? LOL This proceedure does not of
>course shrink the tumors, so the headaches & pressure I have is what I will
>get.
>So needless to say last night was a drag & I was having my own pity party.
>My hubby was ever supportive & for that I am eternally grateful. I am
>doing
>better this morning, and yes I do realize better to live without hair than
>not to live ........... but I really like my thin shitty hair that I have
>fought to keep after each surgery !!! And I never never never wear hats,
>scarves or wigs and I just can't imagine doing so for the rest of my life.
>And I'm afraid bald just isn't a good look for me ... been there. I am
>terribly confused & not sure just which way to turn. I am lucky I have
>three
>options, as some have none. But being a whiney little girl this morning
>....
>I DON'T LIKE ANY OF THEM !!!! LOL
>Thank you for all your posts & support. They help more than you know.
>
>Love to all,
>Carol
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