Dear freind, here are some links that may be helpful to you and your
husband. Our prayer are with you...Joicy
Scleroderma Direction – Scleroderma news, information and resources
available here along with personal stories, scheduled chats,
newsgroups, bibliographies and related links.
http://ps.superb.net/smessick/sddirection.html -Yahoo!,
Snap
Scleroderma Foundation – The Scleroderma Foundation is a
national nonprofit health organization dedicated to a three-fold
mission of
Support, Education, and Research to help fight this
challenging
http://www.scleroderma.org/ -AltaVista, Direct Hit
Scleroderma Research Foundation [sfcure.org] – To find a
cure for scleroderma, a life-threatening and degenerative illness, by
funding
and facilitating the most promising, highest quality
research and placing the disease and
http://www.srfcure.org/ -Yahoo!, Direct Hit
I HAVE SCLERODERMA – Stories of real people who have
scleroderma. Living and coping with scleroderma. A site by people
with
scleroderma, for people with scleroderma. Useful links and
information.
http://www.ihavescleroderma.com/ -AltaVista, Direct Hit
Scleroderma from A to Z – A major resource for scleroderma
medical and support information, with 550+ pages and 1,500+ links.
Scleroderma symptoms, treatments, clinical trials, and
worldwide support group
http://www.sclero.org/index.html -Lycos, Direct Hit
Surviving Scleroderma – An Extensive resource for
scleroderma medical information, overview of disease and news from
related
organizations. A large service of support to visitors
worldwide since 1996.
http://SclerodermaSupport.com -Yahoo!, Lycos
The Michigan Scleroderma Page – Scleroderma support
information, Chapter listings and Scleroderma Registry for the
Michigan office.
http://www.tir.com/~silonet/homepage/semsf/semich.htm -
AltaVista, Lycos
Surviving Scleroderma – A major resource for Scleroderma
medical and support information and current research news.
Scleroderma
symptoms, treatments, clinical trials, and worldwide
support group listings
http://www.sclerodermasupport.com/ -Lycos, Direct Hit
United Scleroderma Foundation, New Mexico Chapter – USF
provides educational and emotional support for scleroderma patients
and
their families. The New Mexico chapter's Web site has
information and an events calendar.
http://swcybermall.com/scleroderma/ -Yahoo!, Snap
RI Scleroderma Support Group – For scleroderma patients
and their families in New England and elsewhere. Support,
information,
events, links, and scleroderma research fundraisers.
http://www.angelfire.com/ri/scleroderma -Yahoo!, Lycos
> ANY INFORMATION YOU COULD GIVE US WE CAN USE YOUR HELP. IS
>IT A FORM OF CANCER? IS THERE A CURE? DOES IT GET TO
>A POINT OF BEING SO BAD IT CAN TAKE A LIFE? BESIDE THE
>ROUGH SKIN AND THE SPOTS, AND THE NAUGH, ARE THERE SWELLING IN THE
>STOMACH? DOES IT AFFECT THE LIVER? AT WHAT STAGE IS IT IN WHEN A
>MAN IS TOLD NO MORE SEX ? AND WHY ?. CHANGE IN
>PERSONALITY ? T THE POINT WHEN THE DR. SAYS MORE REST
>AND LESS WORK? THESE ARE THE THINGS MY HUSBAND AND I NEED
>TO KNOW ABOUT .AFTER 46 YRS AS AN ARCHITECTS IT IS
>SO VERY HARD TO SLOW DOWN. TTHANK YOU FOR
>YOUR TIME AND HELP.
>THANKS
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