I am hoping your group may be able to help us
understand the disease that my mother has recently been diagnosed with,
The disease is listed above.
We understand this to be a very rare form of
cancer. She has had many tests. Including a lung biopsy, cat scan
etc, We have visted 2 oncologists in Toronto, Ontario. and continue to go
for more testing. So far this cancer is only in the
lungs. The liver has been checked and it is not there. A
bone scan will soon be done and a brain scan. Approx, 8 nodules in
total in the lung. It has not grown since October of 1999. The
doctors feel this is a very slow growing cancer. Some reports
indicate that some patients have survived less than one year (the cancer was in
other areas) and as long at 10-20 years. Do you have any other
information regarding this disease. We would be very greatful for any
leads.
