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Hi Rohit,
Glad y'all are back home (I live in Tulsa, OK & we say y'all alot). I just wanted to write and say that unfortunately the answer to your question on being up & down so early is YES. But the good & important thing is that the pendulum is still swinging and that is surely a blessing even amongst all of the heartache. I send warm wishes to you & your family and will certainly send prayers your way. Hope your child is doing well & enjoying the fact that Mother is home again.
Take care,
Dusti
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From: Rohit Ramaswamy[SMTP:rohitr@worldnet.att.net]
Reply To: mol-cancer@lists.meds.com
Sent: Monday, June 26, 2000 10:53 AM
To: mol-cancer@lists.meds.com
Subject: [MOL] rough week
Hi everyone,
We're finally breathing again after a scary rough week - we were in the
hospital for four days out of the last five. Patty coudn;t get out of
bed last Tuesday, she was so weak - turned out her hemoglobin count was
low and she needed a blood transfusion. Then on Thursday she lost all
speech functions and motor skills on the right side - we went back to
the hospital, and did CAT scans and MRIs to find out whether the brain
mets had spread despite the radiation -fortunately they found no new
growths, but the brain swelling was worse, causing the symptoms. She had
been off her steroid medication for a week - interestingly no one had
checked to see if the swelling had gone down before taking her off the
medication. We spent 3 days in the hospital, back on steroid infusions,
and was finally well enough again to be discharged. So we're back to the
routine today, though our nerves are jangled.
Does everyone else have it this up and down so early, or is it just us ?
With the fever and the anemia and the swelling, every day in the past
two weeks has been different. And this is on top of the chemo, which she
also had last week. Now they have found low protein counts and so we are
doing hi protein shakes 3 times a day to supplement meals.
Seems like there is never any breathing room. What happened to the
periods of calm we were promised ?
Just venting .... glad to be back home.
Love
Rohit
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