Hey Good Buddy: Glad your both home safe and sound. Do you think the chemo
increased the swelling of the brain or is it the meninges that are swollen?
I had this reaction to an adjunct therapy for cancer. You need to know what
caused the swelling so that she is taken off of that perticular medication.
Your lucky; so I will tell you your week has not been so bad. You know
comparisons always make us know how lucky we are. I had continued on the
drug that caused my meninges to swell for 6 months. I finally said enough
was enough. It ended up that my thyroid had died, my adrenal glands were
totally nonfunctioning and landed in the hospital with body shut down. All
in all, I started out the same way as Patty and ended up on total
disability. I am grateful to be alive; but the quality of life just ain't
there. So keep checking this out. Love you, lillian
We invite you to take a look at our Album.
www.angelfire.com/sc/molangels/index.html
( Very informational, good tips, Molers pictures, art work and much
more....
----- Original Message -----
From: Rohit Ramaswamy <rohitr@worldnet.att.net>
To: <mol-cancer@lists.meds.com>
Sent: Monday, June 26, 2000 8:53 AM
Subject: [MOL] rough week
> Hi everyone,
>
> We're finally breathing again after a scary rough week - we were in the
> hospital for four days out of the last five. Patty coudn;t get out of
> bed last Tuesday, she was so weak - turned out her hemoglobin count was
> low and she needed a blood transfusion. Then on Thursday she lost all
> speech functions and motor skills on the right side - we went back to
> the hospital, and did CAT scans and MRIs to find out whether the brain
> mets had spread despite the radiation -fortunately they found no new
> growths, but the brain swelling was worse, causing the symptoms. She had
> been off her steroid medication for a week - interestingly no one had
> checked to see if the swelling had gone down before taking her off the
> medication. We spent 3 days in the hospital, back on steroid infusions,
> and was finally well enough again to be discharged. So we're back to the
> routine today, though our nerves are jangled.
>
> Does everyone else have it this up and down so early, or is it just us ?
> With the fever and the anemia and the swelling, every day in the past
> two weeks has been different. And this is on top of the chemo, which she
> also had last week. Now they have found low protein counts and so we are
> doing hi protein shakes 3 times a day to supplement meals.
>
> Seems like there is never any breathing room. What happened to the
> periods of calm we were promised ?
>
> Just venting .... glad to be back home.
>
> Love
>
> Rohit
>
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