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Hi Lillian,
Thanks for asking, she has had an amazing week. It has now been 10 days w/out throwing up. They put her on some kind of nasal steroid but that is the only difference. The oncologist said that they will continue w/ the aredia to alleviate the hypercalcemia until Mom decides she is tired of it. We're just going to take it one day at a time. Starting this week, I am going to take wed & thurs. off so I can spend some good, quality time w/ her and also help my sister out. She & her fiance own their own business so lately she hasn't been going to work in order to stay w/ Mom. Mom has a couple of falls and mixed up medicine so we want her to not be alone at all anymore. Hospice is coming about 1-2 times a week. It's weird Lillian, like we have a short reprieve. Before this, I was certain death was close but it just wasn't time. I'm grateful and doing as well as can be expected. I feel fairly strong right now and just really cherishing every single moment. It makes my sister sick sometimes that I can be so cheery but I feel like God has done that for me in order to not be in despair. I don't mean that I am happy, I just mean that I am in a grateful state. Denise feels kind of bitter but somehow we are still lovingly connected as we are enduring this together. My son has just been the epitome of sweetness and has given his NaNa alot of love and he puts on a lot of shows for her, he is a real show off (like his Dad, ha ha).
Better go, love you,
Dusti
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From: Lillian[SMTP:firefly@islc.net]
Reply To: mol-cancer@lists.meds.com
Sent: Monday, June 05, 2000 4:05 AM
To: mol-cancer@lists.meds.com
Subject: Re: [MOL] Dusti!
I am signed onto the A-Cub forum and there's never anyone on. The only messages I receive are from someone who is asking for their name to be removed. Here I thought I could learn much about this form of cancer from that forum; but it is definitely not the case. How is your mother today? My love and prayers, lillian
We invite you to take a look at our Album.
www.angelfire.com/sc/molangels/index.html
( Very informational, good tips, Molers pictures, art work and much more....
----- Original Message -----
From: Barham, Dusti # IHTUL
To: 'mol-cancer@lists.meds.com'
Sent: Monday, June 05, 2000 10:43 AM
Subject: RE: [MOL] Greetings from Jeanie
I believe Marty had mentioned that there was a forum specifically for those w/ ACUP. I wish I had more info for you. Good luck though, I think you are making the correct decision to move to be with her and one you will not regret.
God Bless,
Dusti
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From: JeanieVan[ SMTP:JeanieVan@msn.com]
Reply To: mol-cancer@lists.meds.com
Sent: Saturday, June 03, 2000 10:50 PM
To: mol-cancer@lists.meds.com
Subject: [MOL] Greetings from Jeanie
I joined the MOL Cancer forum about a week ago, and have been "lurking",
devouring the information disseminated and enjoying the dialogue between
very selfless and sensitive people (plus the humor...boy, do I need a dose
of it now!!!!).
I am a caregiver...my mother was diagnosed with adenocarcinoma with unknown
primary approximately a month ago. The cancer has metastisized to the
brain, spleen, and esophogus--and thus the prognosis is very poor. She has
just completed 12 treatments of radiation to the brain, and will start
chemotherapy on Monday. She has a tremendous attitude, for which I am most
thankful...although we all know that we will have some tough roads ahead.
We lost my father ten years ago to sarcoma (stomach, liver, and pancreas),
and I am an only child--with no extended family. My husband and I currently
live north of Salt Lake City, Utah, and my mother lives in Huntsville,
Alabama, which is my home town. We have been struggling with what to do, as
we are reluctant to take Mom out of the Huntsville area where she has a
support circle of friends and neighbors. We have decided to pick up roots
and move to Alabama to be with her. I am thankful that our life situation
enables us to make this move in short order, as I know that time is so
precious. My husband, Steve (who is Australian...I know it doesn't quite
count as a "Pommie", David....but that language barrier is still just as
prominent!!), is currently in Alabama with Mom (Mum according to Steve!),
and I am back in Utah trying to get our things in order. The company I work
for has agreed to transfer me to Alabama, and we anticipate that I will get
the nod sometime next week.
The search of information is a long and arduous one....does anyone have any
information on adenocarcinoma with unknown primary? I have found small
blurbs of information, but most of what I have uncovered has little "meat"
to it. I would appreciate anything that anyone could float my direction.
I am thankful to have found such a forum, and do appreciate all of the good
information and people I have been exposed to this past week.
Always,
Jeanie
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