In a message dated 5/30/00 10:17:26 AM, you wrote:
<<BessGosh, these Hospice programs must each be different. I know when we
used them, we had an RN who came in every day and took vitals. She would
show us what she was doing, explain why she was doing it, what stage the
patient was at, and just walked us right through it all. Both ended up going
into a coma and just going to sleep pernmently. It was so peaceful and I
knew after the tear's I had did the right thing. It was what they wanted and
I was able to give them their last gift in life, sending them off to their
maker. It is what sustained me through the grieving process.I had a aide who
did the baths, got them up into a wheel chair and took them out for walks,
plus fed them two meals. I was the next one on duty and fed the dinners.
The aide would have helped with the housework; but I said I preferred that
she give all her attention to the patients, to talk with them. She had my
aunt singing her head off. She had my mother doing wheel chair exercise. At
no time were additional meds called for. It takes the body a week or two to
shut down; but the patient is not in pain, (just we are!). I hope this is of
some help to you both. lovingly, lillian
We invite you to take a look at our Album.
www.angelfire.com/sc/molangels/index.html
( Very informational, good tips, Molers pictures, art work and much more....
----- Original Message -----
From: Barham, Dusti # IHTUL
To: 'mol-cancer@lists.meds.com'
Sent: Tuesday, May 30, 2000 7:34 AM
Subject: [MOL] Bess
Bess,
Hello there. I wanted to write and tell you that I think the Oncologist
really has a big part in this stuff. At first hospice told me that they had
never administered aredia at home but after speaking w/ Aetna and the
Oncologist, he made it directly clear to both Mom & I that they would
administer at home so she didn't have to go to the hospital if she needed to
be hydrated. Also, the day before she went in last time, my sister had
called hospice and told them how worried she was about Mom's calcium and to
please come and test her blood for it and they did! Not her normal nurse
lady but a different came and took blood and we had the results within 2
hours. I think the squeaky wheel gets the oil, you know? I'm sure they
don't normally do this but they are able to make exceptions. As far as
tremors go, do you mean body tremors? I know Mom's hands shake but I know
that is just because she is weak. I'm not sure about about body tremors. Is
Tom still eating anything? I remember hearing that if your bowels are not
working, then some toxicity can build up in the brain causing a little
confusion. Bess, I'll close for now. I hope you are doing ok, I know this
is a real tough time. Try and indulge yourself in some way, that always
makes me feel better. Like a big fat cheesecake or paint your toenails red.
Painted toenails always make me feel better.
Take care Bess,
Dusti
----------
From: BesTom@AOL.COM[SMTP:BesTom@AOL.COM]
Reply To: mol-cancer@lists.meds.com
Sent: Sunday, May 28, 2000 1:03 PM
To: mol-cancer@lists.meds.com
Subject: [MOL] Update on Tom
Dear Friends:
As you know my husband is home on hospice which is doing very little
as
far as I'm concerned except providing an aide 4 hours a day, a nurse once
a
week who talks to me, listens to Tom's chest, DOESN'T take blood, and
equipment.
Now Tom is getting rather bad tremors. He's on morphine, decadron,
antibiotics for thrush, xanax, a small amount of paxil, and 25 vials of
frozen shark cartilege, and a strong reishi tea formula. Any experience
with
tremors among this group? Is it a sign of drug toxicity? Of the disease
itself? Organ failure? Also do most of you on hospice get blood work
done.
Tom is housebound and totally oxygen dependent. I know there is no
treatment
except what we try at home, but I don't want him to be ignored to the
point
of slipping away before his time.
Anyhow, have a nice holiday. We will tryt o do the same. Love, Bess
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<HEAD><TITLE>Bess</TITLE>
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<DIV>Gosh, these Hospice programs must each be different. I
know when we used them, we had an RN who came in every day and took
vitals. She would show us what she was doing, explain why she was doing
it, what stage the patient was at, and just walked us right through it
all. Both ended up going into a coma and just going to sleep
pernmently. It was so peaceful and I knew after the tear's I had did the
right thing. It was what they wanted and I was able to give them their
last gift in life, sending them off to their maker. It is what sustained
me through the grieving process.I had a aide who did the baths, got them up
into
a wheel chair and took them out for walks, plus fed them two meals. I was
the next one on duty and fed the dinners. The aide would have helped with
the housework; but I said I preferred that she give all her attention to the
patients, to talk with them. She had my aunt singing her head off.
She had my mother doing wheel chair exercise. At no time were additional meds
called for. It takes the body a week or two to shut down; but the patient
is not in pain, (just we are!). I hope this is of some help to you
both. lovingly, lillian</DIV>
<DIV> </DIV>
<DIV> </DIV>
<DIV>We invite you to take a look at our
Album.
www.angelfire.com/sc/molangels/index.html
</DIV>
<DIV> </DIV>
<DIV> ( Very informational, good tips, Molers pictures, art work and much
more....
</DIV>
<BLOCKQUOTE
style="BORDER-LEFT: #000000 2px solid; MARGIN-LEFT: 5px; MARGIN-RIGHT: 0px;
PADDING-LEFT: 5px; PADDING-RIGHT: 0px">
<DIV style="FONT: 10pt arial">----- Original Message ----- </DIV>
<DIV
style="BACKGROUND: #e4e4e4; FONT: 10pt arial; font-color: black">From:
<A HREF="mailto:Dusti.Barham@tulsa.cistech.com">Barham, Dusti # IHTUL</A>
</DIV>
<DIV style="FONT: 10pt arial">To: 'mol-cancer@lists.meds.com' </DIV>
<DIV style="FONT: 10pt arial">Sent: Tuesday, May 30, 2000 7:34 AM</DIV>
<DIV style="FONT: 10pt arial">Subject: [MOL] Bess</DIV>
<DIV>
</DIV>
Bess,
Hello there. I wanted to write
and tell you that I think the Oncologist really has a big part in this
stuff. At first hospice told me that they had never administered aredia
at home but after speaking w/ Aetna and the Oncologist, he made it directly
clear to both Mom & I that they would administer at home so she didn't
have to go to the hospital if she needed to be hydrated. Also, the day
before she went in last time, my sister had called hospice and told them
how
worried she was about Mom's calcium and to please come and test her blood
for
it and they did! Not her normal nurse lady but a different came and took
blood and we had the results within 2 hours. I think the squeaky wheel
gets the oil, you know? I'm sure they don't normally do this but they
are able to make exceptions. As far as tremors go, do you mean body
tremors? I know Mom's hands shake but I know that is just because she is
weak. I'm not sure about about body tremors. Is Tom still eating
anything? I remember hearing that if your bowels are not working, then
some toxicity can build up in the brain causing a little confusion.
Bess, I'll close for now. I hope you are doing ok, I know this is a real
tough time. Try and indulge yourself in some way, that always makes me
feel better. Like a big fat cheesecake or paint your toenails red.
Painted toenails always make me feel better.
Take care Bess,
Dusti
<UL>
----------
From: BesTom@AOL.COM[SMTP:BesTom@AOL.COM]
Reply To:
mol-cancer@lists.meds.com
Sent: Sunday, May
28, 2000 1:03 PM
To: mol-cancer@lists.meds.com
Subject: [MOL] Update on Tom
Dear Friends:
As you know my husband is home on hospice which is
doing very little as
far as I'm concerned
except providing an aide 4 hours a day, a nurse once a
week who talks to me, listens to Tom's chest, DOESN'T take
blood, and
equipment.
Now Tom is getting rather bad
tremors. He's on morphine, decadron,
antibiotics for thrush, xanax, a small amount of paxil, and 25 vials
of
frozen shark cartilege, and a strong
reishi tea formula. Any experience with
tremors among this group? Is it a sign of drug toxicity?
Of the disease
itself? Organ
failure? Also do most of you on hospice get blood work done.
Tom is housebound and totally oxygen
dependent. I know there is no treatment
except what we try at home, but I don't want him to be ignored to the
point
of slipping away before his
time.
Anyhow, have a
nice holiday. We will tryt o do the same. Love, Bess
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References: <9A6616A3D99CD2118B8800A0C9EBC3DD025F5DA8@claven.cistech.com>
Subject: Re: [MOL] Bess and Dusti
Date: Mon, 29 May 2000 23:20:38 -0700
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>>
Yes it is different. We get a nurse once a week who listens to Tom's chest
and not much of anything else. I'm pretty fed up. Tongiht Tom had a
breathing crisis--the two tanks were on 23 (the highest they go) and he
couldn't breathe even with the mask. I called the hospice and they said they
close after 5:00 and that no one could come to visit me--we would have to
come in there to be stabilized. Am trying to write my father's eulogy for
toorrow and hope thatTom doesn't get in bad shape while I'm away. Love. Bess
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