Re: [MOL] Need your Help [00505] Medicine On Line


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Re: [MOL] Need your Help



Hi Pat, my name is Bridget and I also had the Whipple procedure performed as 
a result of cancer in the bile duct. I'm not sure how much help I can be but 
I'll do what I can. By the way, I'm a Canadian so all my procedures were 
conducted here.
Once I was diagnosed, I was scheduled for the Whipple's. As I also live in a 
smaller city, the surgeon here recommended I consider going to a larger 
centre where there were more experienced surgeons. I did this and the 
surgeon who performed my operation was a liver transplant specialist who had 
performed numerous Whipples. As you know, this is an extremely complicated 
operation; did they suggest other hospitals with more experienced surgeons?
Following the surgery, I was told the cancer had spread to my pancreas (the 
head of which was removed) and lymph nodes(they tested 1). I also had tubes 
for drainage but did not experience the problems your wife is having. But my 
family doctor also had the Whipples (pancreatic cancer) and was vomiting 
consistently for almost a year following his surgery. They finally did 
another operation and he's fine now (5 years later). 6 weeks after my 
operation (this is the minimum time they have to wait) I underwent combined 
chemo and radiation treatments (8 chemo and 24 radiation). I don't know how 
much research you've done on this type of cancer but one of the things which 
make it so serious is it's rate of recurrance and it's tendancy to come back 
very quickly. This is why it has to be tackled with both barrels and no 
holds barred. The radiation (and chemo to a much lesser degree) are as 
important as the surgery according to my Oncologist (he was involved in a 
clinical trial on this during his training...lucky for me). I wouldn't waste 
another moment, if I was you Pat, in getting your wife to someone who has 
much more experience in dealing with this type of cancer and this surgery. 
If there is anything I can do or you'd like to talk personally, you can call 
me at 506-458-5598 and I'd be more than happy to talk to you. That is what 
this group is for so please feel free to let us help you in any way we can.
Your friend,
Bridget
You and your wife will be in my prayers; good luck!

>From: PTurner73199@AOL.COM
>Reply-To: mol-cancer@lists.meds.com
>To: mol-cancer@lists.meds.com
>Subject: [MOL] Need your Help
>Date: Tue, 9 May 2000 20:13:20 EDT
>
>I'm Pat Turner from Traverse City, MI. My wife has been in the hospital for 
>5
>weeks with Ampillary Carcinoma - Cancer in the Bile Duck, (also known as
>Cancer of the Ampulla Vater) that has spread into the lymph nodes. She is 5
>weeks postoperative from the Whipple Procedure.
>
>This is what I need help with: She's in a small northern Michigan hospital
>were they only average 12 Whipple Procedures a year, and her general 
>surgeon
>only averages about 2 per year. At this point she is on a "G" tube into her
>stomach for bile drainage, and a "J" tube into her lower intestines for the
>Kangaroo Feeding Pump. They have had her on Propulsid (also known as
>Cisapride) through her "J" tube since the surgery. Her stomach still will 
>not
>function 5 weeks postoperative. They say they don't know what else to do,
>there trying Reglan in hopes that it may do something, but I have found out
>it's only effective for the lower intestines which seem to be working. They
>have given up and are trying to get her off the IV so they can send her 
>home,
>which they have done twice before only to have her readmitted a few day's
>later with her Pertassiom (sp.?) dangerously low and her electrolytes out 
>of
>balance. She is not progressing only regressing. They had to put the Chemo
>and Radiation on hold indefinitely.
>
>I are very worried that with her in a small hospital they are to limited on
>experience in this type of case. I am hoping that you could help us with 
>some
>research trial information on Postoperative recovery from the Whipple
>Procedure, i.e., other options in getting her stomach to work again. We 
>need
>to challenge the thinking of her Surgeon before it's to late !
>
>Is there any way you can offer some information that may help us.
>
>Husband: Pat Turner     -  Home/Office: 231-933-4873
>                             -  Cell Phone 231-342-0608
>Patient: Patricia Turner at Munson Medical Center, Traverse City, MI.
>            Room 2012A  Phone: 231-935-5204
>
>It is our hope that with all the major cancer centers around the country,
>that there might be some study trials on this type of problems. Getting the
>Stomach to function again after the Whipple Procedure. 5 weeks on the same
>treatment with no results and not willing to try anything else, only leads 
>us
>to think that they lack the necessary experience that the major cancer
>centers have. We are praying that you can help us with information that 
>will
>challenge this small northern Michigan hospital to try harder, before it's 
>to
>late.
>
>Any help will be gratefully appreciated.
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