Hi my name is Lana Howard and my friend, Patti
has this cancer. She isn't much with computers and asked if I could find
some info on this. Patti, 2 yrs ago went to Seattle and had Radiation
treatment. I think real severe treatment - anyway she had done really well
until late last year and now, after radiation in her rib area last Friday we
found out it has masticized(spelling?) in her bone in her rib and
vertebra. And the cancer now is in her nerve endings in her back.
As far as we know - nothing else can be done Only pain maintenance.
There isn't alot of information out there about this cancer - She knows how
rare it is. Patti would like to know if there is anyone out there who
has this cancer and maybe what to expect. She wants to learn as much as
Thanks so much for you web site, I printed out
the information you had and gave it to patti.