Dear Dusti,
What a wonder you are! Here you are going through so much with your
mom, but right there to send such a caring, encouraging message to
Bess. I pray for both of you that God's goodness and love will be in
the midst of these final days, and that his peace will be with you
in a very real way. Love and prayers, Joicy
>Bess, I bet you are concerned. I am kind of in the same boat. I am getting
>ready to contact hospice for Mom. She is sleeping 18-20 hours a day and
>they have stopped chemo. Nancy wrote me w/ some info on hospice and I've
>heard of nothing but good things. I am reading a book called 'Final Wishes'
>that is written by 2 hospice nurses. It is giving me a better understanding
>of what I should be doing and what hospice can do. When all else fails, I
>head for the library. You are a researcher yourself, aren't you? Joy also
>wrote that Hospice can help w/ caretaking while you would be able to just be
>with your Tom. I really feel like they will ease your burden. God be with
>you during this time. I pray for strength for you & Tom.
>
>All the best,
>Dusti
>
>
>> ----------
>> From: BesTom@AOL.COM[SMTP:BesTom@AOL.COM]
>> Reply To: mol-cancer@lists.meds.com
>> Sent: Tuesday, May 09, 2000 1:42 PM
>> To: mol-cancer@lists.meds.com
>> Subject: [MOL] Hospice for Tom
>>
>> Dear Friends:
>> Tomorrow Tom will be leaving the hospital for the second time and
>> coming
>> home on hospice. We live in NYC and he will be using Cabrini Hospice. He
>> is
>> determined to spend his last days at home which is scary for me because we
>>
>> have just a few friends, all of whom work, and no family.
>> He will start out on liquid oxygen and after much agonizing we decided to
>> get
>> a hospital bed--this means we can't sleep together but I don't see how he
>> can
>> manage even with a wedge in his regular bed. Unless he makes a miraculous
>> rebound, my estimate would be a couple of weeks although he insists he
>> will
>> regain his strengthe when he gets home. If anyone has advice about this
>> experience and how to handle it, I would appreciate it.
>> We will continue to do a few things with our Chinese doctor that I hope
>> will
>> improve his quality of life and time. Love, Bess
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