Re: [MOL] We need some prayers for Tommy/from Nanc [01781] Medicine On Line


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Re: [MOL] We need some prayers for Tommy/from Nanc



Dear Kathy Q,
I am so sorry to hear about Tommy.
I pray for all the Mols everynight for sure, sometimes throughout
the day.  If I can be of any help, just ask.
Love, hugs & prayers to you and yours,
Nanc ():-)
----- Original Message -----
From: <Qksk@AOL.COM>
To: <mol-cancer@lists.meds.com>
Sent: Sunday, April 16, 2000 8:57 PM
Subject: [MOL] We need some prayers for Tommy


> Hello fellow MOLERS,
>
> Tommy has relapsed.  For those of you who are new, Tommy was diagnosed
with
> Acute Myeloid Leukemia in Sept. 99.  He went through aggressive chemo at
that
> time and the BMT registry began looking for a donor.  Although it appeared
he
> was not in remission when he left the hospital in late November, within a
few
> weeks tests showed he was.  We rejoiced!  They hustled to do a
consolidation
> round of Chemo in December and began the prep for the BMT, scheduled for
> early March.  They found a 100% match!  Just as he was being admitted to
> Stanford Med. Center for the BMT, they discovered a fungus infection.
They
> had to treat that first.  They could not risk compromising his immune
system
> while the fungus infection was active.
>
> He has been on ambizome for about 4 weeks and although there was an
initial
> improvement when he began the med, over the past 3 weeks there has been no
> improvement.  When he went for blood tests on Friday, his blast was back
up
> to 20% (norm is 1-2%).  The leukemia is on the march again.  The oncs were
> very nervous about the time between the consolidation chemo and the BMT.
> Every day that passed increased the risk of relapse.
>
> Here is the dilemma.  If he does still have a fungus infection, the chemo
> will disable his immune system and the fungus infection may take over.  If
> they don't give him chemo the leukemia will take over.  They are now
hoping
> that they misdiagnosed the fungus infection and that it was actually a
> leukemic mass.  It's a funny thing that we are all hoping it is leukemia
> rather than the infection...  The roller coaster ride continues.
>
> He is back on a stronger dose of ARA C (they can only administer it twice
a
> day rather than 24X7), Idarubicin, and towards the end of this week he
will
> be getting VP16 he thinks.  Just in case it is a fungus infection, they
are
> continuing the ambizome, plus 2-3 antibiotics.  It's like they're throwing
> everything at him hoping the combo will fight what's there and what could
be
> there.  This next week will be critical.  While they take his immune
system
> down with the chemo, we will find out if he really had a fungus infection.
>
> If you have time, please pray for him and ask anyone you know to pray for
> him.  I cannot tell you how many times since this all began we have seen
> miracle after miracle occur with him.  His attitude is still very positive
> and he plans to stick around for a good long time.
>
> I find so much solace and support with this group.  Thank you again for
all
> the support you've given to me and my family and all the others who are
lucky
> enough to find this forum.
>
> By the way... I also wrote a note to GBuckStop and forwarded several of
the
> MOLLER replies to his second post to him.  I'm also on AOL and noticed
that
> he hasn't read the mail yet (we can check on that between aol members).  I
> just wanted to let you all know that his silence may be due to not reading
> mail yet, rather than not responding to those who have sent it.
>
> Love to all,
>
> Kathy Q
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