My Mom was diagnosed 16 years ago with Polycythemia...She
never asked what it was, how she got it or cared to ever
know.
Just recently the disease has progressed from giving blood to
now having to receive transfusions. My Mom thinks her Oncologist is just a
special blood Doctor. I now have had to get involved because she had taken
too much Hydraxea... per Doc's order. With my reading I am to say the least
surprised. My Mom never shared that she was concerned about this blood disorder
so I did not have any reason to be concerned. Now that I know of course I
worry...She still does not want to know what she has, knowing my Mom I
understand... I am having a problem with phone calls from my relatives who are
saying " Oh, ask the Doc to try this I hear it works well and oh I hear their is
a new drug out there that's not available in Canada but ask him if your Mom can
get some?"
My Mom is 73, I am wrong in thinking that this disease is
running it's course and that there probably is not much to do now but keep her
comfortable. She is not at the point where she is bed ridden or anything
but I see a huge difference from the 1st transfusion. Any info you can give me
would be helful.
