Lillian,
The SIUH is just for the stem cell withdrawal and freeze. We will be there
until approx 19th depending on how long it takes to get the ?million cells they
need, and then we go home. We come back for the Clinical Trial to Garden State
Cancer Center on the 24th and will be between there and SIUH for another 3
weeks, into May. This is to inject monoclonal antibodies with attached CEA-Cide
to target the tumors and hours and hours of scans to watch this happen. The 2nd
week if everything goes ok and tumors are targeted he will get a BIG does of the
same to try to eradicate tumor, the next day back to SIUH for one dose of
doxirubicin and constant scans again until everything has left his blood. Then
they will reintroduce the frozen stem cells (or transplant as they say. Thats
it. Sounds almost too easy. We have not made reservations yet, can't decide
whether to stay in Belleville or find a motel in NY. Running out of time, but
loath to make the final decision. I'm never this indecisive this is crazy -
just like me right now.
Peggy
Lillian wrote:
> Peggy!
>
> Are you going to a clinical trial or are you going to Staten Island Univ.
> Hos. Radiosurgery? I hope I am right; but I have not seen anyone who was
> disqualified. In fact, I just had dinner tonight with a man from Florida
> with very advanced lung cancer that has been accepted and he has had his
> lung cancer for some time. He also has several heart disorders. This
> treatment is also used for palative care for bone. So you hang in and hang
> tough! Besides if they turn you away, just tell them Aunti Lil will be up
> to beat them up!!! Giving myself away that I once was a city slicker!
>
> Keep that ray of hope and turn it into a big shinning sun, that is what we
> want to hear when you get back. Do you know how long you will be there?
> How many treatments? Do you know where you will be staying?
>
> You sound most nervous and no wonder. Girlfriend, I am storming heaven for
> you both.
>
> Just think when you get back you can check the archives and see if we talked
> about you? LOL! But ofcourse we would only say good things, is there any
> other?
>
> I had written in a second paragraph about my husband. I think many missed
> it and then with our Andy; etc. it is hard to gloat. His is prostate cancer
> with mets to the bone. When he got there they did a CT scan, which did not
> show anything; however the MRI did. Since the bone is in very good
> condition they did not want to drill into it and descided to play lets wait
> and see. So every three months he goes for a MRI here and we will just pray
> that what ever this is it will behave. So Chuck is by my side here.
>
> Now you know John and June are in the general area, so if you have some
> loose time you just may want to meet these two great people. Bess is in the
> area; but her husband is in the hospital.
>
> My prayers and my very best wishes to you both. Will be worried and looking
> forward to hearing how it all went and the good new's. Your friend, lillian
>
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