Lillian,
We're leaving for Staten Island on Thursday a.m. early. Oddly enough I still
don't know what time our appt is. Probably because Ken's final tests are
tomorrow to determine whether or not he is disqualified. The doc at Garden
State says looks like the only thing they would expect that might cut him out
would be too much bone involvement. To the best of our knowledge the only bone
involvement is in one vertabrae and two other tiny spots. This is going to be
close because his last test is a bonescan at 4 p.m. and has to be read and faxed
to the doctor. I guess she'll have to call early a.m. or on our cell phone to
tell us turn around. We'll will be two very upset people if he's cut out
because there's still nothing out there for medullary and this is certainly a
ray of hope for us. I probably will log off MOL for the time we are gone. God,
I hate to miss anything, but I'll never be able to catch up with everything if I
don't. Pray for us.
Have you heard anything about when Chuck will be back yet? Is this another
round of chemo or something else?
Love
Peggy
Lillian wrote:
> Hey Girlfriend, my husband leaves Sat. for Staten Is. U.H. His second
> trip.They have lodging that I understand is pretty good with a kitchenette
> and I believe that is $40.00 a night space available. They are also
> building more lodging. There are boarding houses; they are shared
> bathrooms.
> There is the Military Lodge not far;that is $60.00 a night; however has
> kitchenette. SIUH has a listing of places one can stay; but you know it is
> never easy to be away from home for something like this. The last time my
> husband was up there for six weeks. We do not know how long he will be
> there this time. The only complaint we had of SIUH is to hold onto your
> records and films! As far as their treatment aspect, excellent and that
> also is the main thing. I wish I could help you further, it does get
> expensive,I understand (not sure) that these cost can be picked up by some
> Insurance Co.; so perhaps it may be wise to check that out. Don't forget
> money for all the toll booths!!!! It was costing us $4.50 a day to come and
> go from Jersey to Staten Island. That adds up fast! Your friend, lillian
>
> Warmly, lillian
>
> We invite you to take a look at our Album.
> www.angelfire.com/sc/molangels/index.html
>
> ( Very informational, good tips, Molers pictures, art work and much
> more....
>
> ----- Original Message -----
> From: Peggy Hall <peghall@tir.com>
> To: MOL <mol-cancer@lists.meds.com>
> Sent: Wednesday, March 29, 2000 12:24 PM
> Subject: [MOL] Clinical Trial
>
> > Hi,
> >
> > I have been looking for trials for my husband for a while and finally
> > one came up that is very promising for medullary thyroid cancer. It is
> > Stem-cell harvesting and then CEA-Cide with monolclonal antibodies
> > administered at the Garden State Cancer Center in New Jersey. To be
> > accepted he has to undergo a lot of baseline studies to make sure he
> > falls within the guidelines. We tried to arrange to have the stem-cell
> > harvesting done in Michigan. I would think they'd do it at University
> > of Michigan or Michigan State, but we can't find anyone that does it.
> > Garden State is going to make arrangements to have it done at Staten
> > Island Hosital. So, if he's accepted we're going to have to stay an
> > extra two weeks in New Jersey area, about 4 to 4 1/2 all together..
> > That sucks, the cost is going to kill us.
> >
> > We haven't decided whether to stay in a motel or try to find a
> > campground because we could at least cook in (we do have a large 5th
> > wheel). Does anyone know the area well enough to recommend motels or
> > campgrounds? The Belleville Motel is $342/wk, Staten Island Campground
> > is $40/day (wow!!) and we're still looking. A 20 to 30 mile drive
> > wouldn't be too bad, I drive that far to work eveyday.
> >
> > We are suppose to have our appts given to us tomorrow so we know when
> > we're to be there for stem-cell harvest, and then the round of tests
> > begin to qualify.
> > Any comments?
> >
> > Peggy
> >
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