[MOL] FYI [02133] Medicine On Line

[Date Prev][Date Next][Thread Prev][Thread Next][Date Index][Thread Index]


>From AOL site:

AMA Issues Web Ethics Guidelines

.c The Associated Press

NEW YORK (AP) - The American Medical Association is updating its Internet 
guidelines to help consumers assess the reliability of what they read online. 

As more patients turn to the Internet for medical information, the nation's 
largest doctors' organization hopes its new policy becomes a model for other 

The standards, published in today's Journal of the American Medical 
Association, could reduce worries about misleading information and breaches 
of confidentiality. 

``The guidelines stress disclosure, stress informed consent and stress 
privacy and confidentiality as absolute tenets that must be adhered to,'' 
said Robert Musacchio, the AMA's senior vice president for publishing and 
business services. 

Dr. Margaret Winker, who as deputy editor of the influential journal 
supervised the effort, said the medical group needed to raise standards 
because ``there's a lot more potential for ethical lapses on medical sites 
than other parts of the Internet.'' 

The effort was prompted by the upcoming launch of a for-profit site, Medem, 
by the AMA and six other doctors' groups. The site will offer health 
information and allow patients to correspond with doctors online. 

Currently, AMA sites offer journal research articles and limited consumer 

The new guidelines will apply to all of those sites. Authors of the 
guidelines believe private sites could adopt them as well, although the 
medical group has no plans to police or endorse other sites. 

Through the Internet, consumers can research anything from allergies to 
weight management and obtain details about prevention, symptoms and 
treatment. But there is potential for incomplete, misleading or inaccurate 
information, particularly with sponsors involved. 

And while many non-health sites routinely track how visitors spend their time 
online, doing so at health sites could violate privacy. For instance, 
employers or insurers could guess medical conditions by monitoring what 
diseases Web users research. 

The AMA will require its sites to warn users and obtain their consent before 
collecting personal information. Those sites may collect group data without 
consent as long as individuals are not identified. They should, however, 
obtain permission before disclosing information to outsiders. 

Deborah Pierce, an attorney with the Electronic Frontier Foundation in San 
Francisco, lauded the AMA guidelines, saying they surpass in detail and 
protection the policies at most other Web sites. But she said sites should 
get users' consent in all cases. 

The new AMA guidelines prohibit placing ads next to online articles on the 
same topic. They also call for sites to review articles for accuracy and to 
disclose outside affiliations - for example, if an author has a stake in a 
company that makes a drug discussed. 

Former Surgeon General C. Everett Koop, in particular, was criticized last 
year for failing to fully disclose the sponsors of his site, drkoop.com. For 
a time, Koop was entitled to a commission on products sold through his Web 

And the AMA was severely criticized from within and without over a 1998 deal 
to endorse products of appliance maker Sunbeam Corp. The AMA eventually paid 
Sunbeam nearly $10 million after backing out of the deal. 

Last month, a coalition that includes industry, academia and patients groups 
released a draft of an ethics code. A final version is expected in May. 

Dr. Helga Rippen, chairwoman of the coalition, said she believes the AMA 
matches her group's intent, though the AMA guidelines may be too detailed to 
be practical for every Web site. 

The new guidelines also do not address the ethics of doctors who make 
diagnoses online and authorize prescriptions without ever seeing the patient. 
Some rogue Web sites also let computer users order drugs without a 

Executives at other private health sites predicted that the AMA effort will 
prompt companies to re-evaluate their own policies and perhaps weed out 
questionable operations. 

Sharon Allred, executive vice president of eMD.com, an Atlanta-based drug and 
health resource site, believes her policies already meet AMA standards. Yet 
given the AMA's reputation, she said, ``it would not be wise ... to disregard 
it completely.'' 

On the Net: AMA site at http://www.ama-assn.org 

Code of Ethics from Internet Healthcare Coalition, 

AP-NY-03-22-00 0308EST

Copyright 2000 The Associated Press. The information contained in the AP news 
report may not be published, broadcast, rewritten or otherwise distributed 
without the prior written authority of The Associated Press.  All active 
hyperlinks have been inserted by AOL. 

Hunger petition:  asking Congress and the President to end hunger in America. 
 Just visit www.feinsteinfoundation.com where you can sign it right away.”
This is an automatically-generated notice.  If you'd like to be removed
from the mailing list, please visit the Medicine-On-Line Discussion Forum
at <http://www.meds.com/con_faq.html>, or send an email message to:
with the subject line blank and the body of the message containing the line:
unsubscribe mol-cancer your-email-address
where the phrase your-email-address is replaced with your actual email